16 yr old doesn't want to claim PIP

[Sherrycat]

Hi, I am being asked to give bank details to carry on paying DLA for my dc until a decision about PIP when they turn 16 has been made.

My dc doesn't wish to claim PIP. Does anyone know what happens next? Do we need to inform the DWP, or just ignore the letters & then their DLA just automatically stops after their 16th birthday?

Sorry that was to @caringcarer

Benefit fraud does happen, even disability fraud. I don't personally know anyone but I've seen some people who've talked about people they know trying to get full awards and doing everything possible to meet the criteria when in reality they don't but PIP doesn't know this. So they get awarded. We don't like to talk about this but it happens and it ruins things for genuine claimants.

And lots who should have it dont get it!!

Same! They have asd too & have improved a lot with hygiene etc recently.

And? One of mine also has higher rate pip for mobility and can sometimes do those things. And no one knows the ins and outs of anyone else's life no matter how close they think they are.

90% of pip claims are currently being turned down (incidentally I think about 80% of those who appeal are winning). They do not award it unless there is evidence of your needs. You can't just say I struggle with xyz and get it. They want medical and/or other evidence

@DontBeBitterGlitter2023 if you genuinely believe someone is committing fraud then you should report it, and their claim would be looked at more closely. It’s far more likely they have needs you aren’t aware of or you just don’t know much about their disability. What happens far more often is that people see others with conditions that fluctuate and assume the good days they see are the norm not the exception. Having been through the process for a severely disabled relative I would be surprised if you could just ham it up and get an award. You need consultants letters and quite detailed history of difficulty to qualify. It’s far far more common for people to be turned down and then get awarded on appeal.

And she has absolutely zero issues with mobility. EVER

Interestingly the same person also boasts about never getting a job because jobs 'are for capitalists'

She got DLA for ASD/anxiety/depression as a child. Never been reassessed.

Report her then? But I guess like many you're only seeing a small snapshot. I have days where I'm fine but you won't see the days where I'm struggling to dress myself appropriately or communicate and make myself clear.

@DontBeBitterGlitter2023 People aren't reassessed for asd. YOU don't see her have any problems with mobility, it doesn't mean they don't exist. Asd people mask for a start and unless you're with her every minute of every day you have no idea what gives on in the background. If you're so sure report her. But it is not easily to swindle pip.

@HecticHedgehog Im well aware of masking, I've been doing in my whole life

Then you should know what you see isn't always the 'real' person.

OP - what are the health etc issues that led to the DLA award and how do they manifest themselves now?

PAge here from Scope gives an overview of how process works:

https://www.scope.org.uk/advice-and-support/moving-from-DLA-to-PIP-when-child-turns-16/

As regards an Appointee the general principle I think is that a 16yo is capable enough to receive benefits in their own right. Obviously, if they have more profound issues with coping day to day with money etc an Appointeeship is still possible.

If you need help I'd suggest professional advice from an independent source for example Citizens Advice, your LA or a charity applicable to your child's health/disability.

I get it, and the criteria changes too for pip meaning that they may not meet it especially with asd. We did successfully claim from 16-21 then lost it

She doesn’t have to have physical mobility problems to be awarded the mobility element. With conditions like ASD you get it for planning, following a journey etc.

Oh yes like being able to go unaccompanied on a train to gigs all over the country... my comment still stands

Well if you aren’t going to report it you are helping her commit fraud.

What? The op isn’t committing fraud. The dla award is valid and will expire when the award ends. If the op doesn’t reapply (for PIP) it will just stop. No fraud involved. 🤷‍♀️

Op I would urge you to apply for the PIP. If your dc still has needs just go for it. It’s not as horrible as everyone makes out. I was awarded first time on just my paperwork - no assessment at all- and they spoke to my rheumatologist. I was given an ongoing award at the highest rates. People only tend to talk about the horror stories.

It will be harder for your dc to claim from scratch again in the future if they don’t claim now as they will wonder why their needs have suddenly got better and then worse again.

@Xrays I was responding to @DontBeBitterGlitter2023 s post directly above mine where she describes a person fraudulently claiming PIP

Apologies. I didn’t realise.

It's not that difficult in some regards. What do both have to lose - you've got a lot to gain. It's a gateway to so many services.

Go for it and never mind what other people say.

There is an element of luck in terms of who you see. Some people do get it for lesser conditions while others get turned down. It seems easier to get it for neuro diversity than physical disability. My DD needs help with showering, can't stand or walk far and was not eligible, yes we did have help with the form. But you only get one point if all you can manage is putting a ready meal in a microwave for example.

It seems easier to get it for neuro diversity than physical disability.

Looking at the statistics on the benefits and work website that doesn’t appear to be the case. For example, ADHD/ADD, Asperger syndrome, dyspraxia, dyslexia all have a below average success rate. Autism does have a higher than average success rate, but a lot of physical conditions e.g. several types of arthritis, back pain, CP also do.

You get 2 points for not being able to cook a simple meal using a conventional 2 cooker but being able to do so using a microwave.

My understanding was it was very much harder to get for neurodiversity.

DD1 has ASD, LDs & a brain malformation. She went from Higher rate care, lower rate mobility on DLA to Enhanced for both on PIP. Hers was a paper assessment because we had so much recent paperwork to evidence her needs.

@DontBeBitterGlitter2023 I have known several young people with ASD diagnoses who gallivant around the country to gigs or themeparks, or TV locations or whatever their interest is with no "disability related support". I don't understand how they get PIP but I dont begrudge it. I'd rather they did this than stay home and get anxious and depressed and feel bewildered that they can't mould to a neurotypical work world, because that's the risk I'm afraid. If workplaces really accommodated people with ASD it would be different.