PIP for Dyslexia

[Rayoflight2020]

I have telephoned and made an application for a PIP today. I am now waiting for the booklet to arrive to fill it in and return.

Has anyone been through this process?

I was wondering if it would take a long time and if it can be backdated at all. Nobody mentioned PIP to me until the other day and until now I was totally unaware of it.

I do not claim any benefits. I am currently employed and historically never claimed any benefits except DSA whilst at university.

Should I look at anything else as well?

There is help out there I’m just not aware of it and that where you all come in.

Any help is appreciated. Thank you in advance

www.google.com/url?sa=t&source=web&rct=j&url=www.citizensadvice.org.uk/Global/Migrated_Documents/adviceguide/pip-9-table-of-activities-descriptors-and-points.pdf&ved=2ahUKEwiN0_WpxbbpAhUoSxUIHapdDvAQFjALegQIBBAC&usg=AOvVaw1_0vW3XCAeqXtDbu7FHJxt

Have a look at this OP.

Ok so what you told us in your post at 19.42 shows that your health conditions have a significant impact on your daily life, much more than was indicated by your thread title and first post, which referred only to dyslexia.

"I scored 12-14 points on the self test"
In that case you are definitely right to claim PIP. However, you should get expert advice to complete the form if possible. Your local citizens advice might be doing phone appointments.
Otherwise if completing it yourself, this guide is helpful:
www.hertfordshire.gov.uk/media-library/documents/adult-social-services/money-advice-factsheets/personal-independence-payment-guide-to-completing-claim-form-2016.pdf

To answer your question. The assessment goes over the questions in the form. It doesn't matter why or what the difficulties are. It is how they impact you and your ability to complete tasks such as preparing food. Washing and dressing. And physically mobility. How far you can physically walk.

Wait for the form and go through each point and see if you feel you have enough issues collectively that make each task difficult. Evidence. Evidence. Evidence.

PIP is about the difficulties you have with daily living and mobility and scoring enough points for an award. You can be working and claim PIP- it is extra money to help with the extra costs of living with a disability. In my opinion ( and I know many may disagree) DLA for children used to be very easy to get some years ago. It is harder now. DLA and PIP are different benefits with different criteria. Part of the key to getting an award is backing up what you say on the form regarding your disabilities with medical evidence showing how your condition affects you.
It is not easy to get an award - I help people to claim all the time. I have just had a cancer patient with metastatic disease turned down and having to appeal the decision !

My oh has pip he has a condition which leaves him with seazures, tremurs, fatique, halucinations, tempory parellelsis at times.

I have all the dYs,s I don,t.(and neither expect or need it.) But it sounds like your main probs are not due to your Dys,s.

DSA is to help with specific learning needs, i.e. software and one to one learning support. PIP is for daily living like cooking, washing, going outside.

What does a phonological age of 7 mean? Does it affect how you function on a daily basis?

You say you are dyslexic and have a phonological age of 7, well my ds who is dyslexic would never be able to write a statement as well as you do, and he’s now 30

My child is on the higher rate of PIP. You will not be awarded PIP at all OP. It’s famously tough with regards to who qualifies and for what.

Exactly @granadagirl but even if she couldn't write a coherent sentence I still don't get why that would warrant a PIP claim 🤷‍♀️
The other ailments ie headaches are ongoing and under investigation so may not be permanent anyway. I think it's very unlikely PIP will be awarded.

I'm also a little confused about what you are wanting to claim for?
Which descriptors so you think you qualify for?
Dyslexia would only really apply to the reading descriptor, you mention headaches but how do they affect you day to day?

Don't want to sound negotiate, but would you be using a PIP award as evidence your medical negligence claim?

Negative not negotiate!

I'm dyslexic but had support and worked hard to overcome a lot of the problems it causes so wouldn't say I'm massively effected. However I appreciate people do experience it very differently.

You keep comparing it to DSA. But they're totally different. DSA is to help with studying which typically needs reading and writing as a core component so as a dyslexic person you would be at a disadvantage.

Where as Pip is supposed to support with disadvantages you experience (particularly extra costs) from a disability. So I think you would very much struggle to demonstrate this from dyslexia.

It sounds like you have other isuues going on which need a bit more support but that's not dyslexia.

Thank you everyone for your advice.

I think I will detail both issues and hope to see a neurologist ASAP. It’s delayed due to COVID-19. My doctor told me to wait. If it gets rejected I can always appeal after seeing neurologist I guess. I have copies of my medical records already so I will start getting that together. Thanks again everyone

@bigbluebus

My children with asd get pip as do many many others.

What makes you think your children wouldn’t?

@TowandaForever My DS wouldn't get PIP as he doesn't need significantly more help with daily living than many people without ASD. Nor does he have any issues around mobility/getting around by himself. He has been living away from home for 4 out of the last 5 years with minimal input from us, travelling by public transport including planes, boats, trains and buses unaided. Although he needed 1:1 help throughout school it is clear now that it was the environment that lead to him needing that help to cope and that Uni/work life has suited him a lot better thus far.
I am not disputing the fact that people with ASD can get PIP just that getting DSA is not an indicator of qualifying for it and that ability to function in day to day life has to be significantly impaired. I have many friends who claim PIP/ DLA for their DC but the impact on their day to day lives is very different than for our DS. As I'm sure you know, it is a very broad spectrum.

@bigbluebus

I couldn’t be happier for you that that is the case for your son.

You must be incredibly proud.

Your appeal won't hold up. I think you need to go back and read just how strict the criteria are for PIP. You don't stand a chance. Get real.

For dyslexia? Really?

I think half the country would be getting PIP payments if they were awarded for dyslexia!

@TowandForever Thank you. We certainly are. He has come a long way. It hasn't been the easiest of rides for any of us and he/we have had to change direction on a number of occasions but he now seems happy with his current choice of direction and happiness is the most important thing I think we all want for our DC's.

@TowandaForever - apologies for incorrect tagging

Your writing skills are very good. Based on those alone I don't think you'd qualify as your literacy skills are above 'functional'. You might based on your health needs.

Actually, dyslexia can affect a variety of things, not just reading. Whilst I'm waiting for assessment for adhd my uni did an assessment for dyslexia, they assess all sorts including memory.. which, is a problem for me. It was never picked up for me as I managed reading and writing well and was top of my classes in school, college and my first year of uni. Turns out I am dyslexic, but my biggest issue is memory, concentration and auditory processing.

You can work when in receipt of PIP. It's about additional costs due to your illness, not your ability to work.