ESA/JSA benefit - panicking very upset :-(

[Becca19962014]

I've no idea where to put this and I'm severely panicking. I've been in support group for years, always no problem as had support worker to help me do form. However, support worker abandoned my case end of last week after being told my ESA wasn't due to be renewed for months (that was a lie as form was sent in post that day!). Support worker cannot reopen file so soon after closing it.

CAB can't help until almost end of next month (that's way too late to be of any use, they claim money can be backdated but that's no help to me). Jobcentre gave me an appointment but it had nothing to do with ESA and was about me getting a job it was very upsetting - I can't wash myself anymore and they had a go at me for that and I can't afford a telephone anymore and they had ago about that too. I'm using next doors internet and ipad to use MN. I've no money to join a website to find out about things. The jobcentre said as I can use a pen I can easily work and I'm to go back on Thursday to fill in what they call the right form for someone like me, I'm worried that means JSA. I can barely walk and have two hands in casts, last time I was booted off JSA because of being disabled I was refused sickness benefits as I didn't have any doctors and no diagnosis, now I have diagnosis but no doctors as local hospital has got rid of them and I can't travel due to my conditions even in an ambulance I cannot get there due to the amount of pain I am in. I'm really struggling financially and cannot afford to lose a single penny.

I've no credit cards so can't join any sites online for help and cannot open a separate account to ensure what little money I get can come to me and not on debts (repayment plans were refused CAB did try but bank were adamant I had enough in my account to pay so must pay, I'm not trying to get out of debt to be clear I know it must be paid off, just a lot of my outgoings are not considered essential by them (medical expenses)).

I see no doctors or anyone now as my care was stopped months ago. My GP is struggling alone and is concerned for my mental health but can do nothing to help me.

I'm really struggling mentally anyway and have no idea what I can do about this. I don't know what I expect from this thread though I'd appreciate not being flamed, I'm really scared and upset as it is and I tried talking to someone in real life but they had no idea e.g. They said benefits are never stopped for people like me.

I'll try and come back later in case anyone replies.

All my cats it is hard to understand if you haven't experienced it. But this is how hospital transport would work for me. My appointment could be at 3pm the transport would pick me up at 8.30 because they have other people to pick up. I would struggle to get up at that time due to three lots of opiate painkillers and a lot of trouble sleeping. Plus my condition means I find mornings very hard. I would then sit in an uncomfortable bench like seat ( I don't feel sick but I imagine that would be awful for the op , I doubt the driver would stop as they are on a timetable). The journey that would take 40 mins in a car would take over two hours picking everyone up. Imagine every bump in the road sends pain shooting through your body this could well be how the op feels. Then you get to the hospital at 10.30 your appointment is at 3pm , you sit on on a plastic chair in pain for four and a half hours. You don't have money for a carer but need help to go to the toilet, get a drink etc who is going to do that for you?
Op if that isn't your experience I hope you don'tind me explaining how hard it can be. And yes I understand how due to pain how hard coping with other things can be.
Yes you need to change dla to pip even when I life award. The earliest this will happen is October 2015 and they will write to you.

allmycats I can't really give much more information as it would tell people where I am living in terms of the town and I don't want anyone to know that so I'm sorry for confusing you.

I can't sit for more than 15 minutes, not in a car, car is much worse. They won't stop a car that often. Sitting in my room is totally different to travelling in a car pain wise. The driver doesn't stop for car sickness, they give travel tablets and a sick bowl, they don't stop and you can't have windows open, it takes hours to get to and from the hospital using that transport. My GP said it wasn't acceptable with my conditions to travel that distance. I've done it before, when my conditions were more stable and was in agony as well as very ill. I couldn't make it back the same day. It was a nightmare.

I don't have a chair to sit on in the room, I sit on the bed, there is no room for a chair. I've a bedside table and various adaptions in the room. It is a single bed with levers to help me get up. It really is that tiny. I can't afford bigger on housing benefit where I live anymore.

I need to discuss these things with my GP obviously and I appreciate your response. Hopefully I've not caused you more confusion. I'm sorry if I have.

anotherstitchintime I totally expected Linky to link me to an organisation called Linky! Lol. I've sent them an email. Thanks for the advice.

soontobesix my experience is very similar to yours, the roads are awful as I'm somewhere very rural, the only difference being the hospital is over two hours drive away direct, so the transport leaves or did anyway about 5am, it comes back before the end of clinics so if you are seeing someone who overruns you can be there and not be seen. I have to get medication every day from a pharmacist and take it every two hours, I cannot do that if I have to spend a day travelling so I'm without my medication as well.

Thanks for the DLA/PIP information as well!

Becca19962014 Have you had help since then?
Find me on facebook jane lauppen ,I can possibly direct you to more support if things are still bad for you,which I am hoping they aren't!That apllies to anyone in hardship with ESA and the benefit denier system currently implemented by the coalition

Try fightback on facebook, they are a free service who often give help and you make a donation when you can afford it x