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Miscarriage/pregnancy loss

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Recurrent miscarriage advice needed on antiphospholipid antibodies

4 replies

shazzaren · 29/07/2008 21:48

This is my very first post so sorry if already covered. I am waiting for an appointment at St Mary's recurrent miscarriage unit after 3 missed miscarriages at 7/8 weeks in the last 10 months. I am almost 39 and am hating waiting on further tests (have had normal bloods/cervix) done between m/c 2 and 3. Also had hysteroscopy, all normal. I have a 4 year old already but with ex husband. Has anyone out there had immunotherapy as would love to hear any stories on it. Has anyone had a child already then miscarried and tested positive for antiphospholipid antibodies then been treated with aspirin & heparin successfully? Has anyone organised and paid for their own tests for this? Bit of a brain dump I know but just decided to ditch my consultant as I just dont think he is any good and needing information. Any info really welcome.

OP posts:
misi · 29/07/2008 23:23

you need to be under someone qualified for this. I have not personally treated anyone with this as the only person I know with this is my sister. 5 kids though but had 4 miscarriages, the last MC at 18 weeks. (my sister is great at not taking advice from me or taking anything I recommend, a great advert for me huh?!!)

I have/know a natural supplement that is made from soya that is far more effective than heparin, warfarin etc in dissolving clots in that it dissolves clots if they are there but does nothing if no clots are present, whereas warfarin et al just thin the blood out with all the inherent risks. it keeps the blood and other effected parts clear of clots but you need to be under supervision to use it in my opinion and I won't even give you the name I am afraid.
do you know what your INS reading is by chance?
if you are unhappy with your current consultant, ask for another, it is your right to do so and you need to be with one

nikki2607 · 09/02/2009 21:41

Im so sorry to hear bout your loses.
Im new on here and only just read your post which i know was a long time ago but still felt i would write my story for you.
I had a misscarriage when i was 18weeks preg and they found out i had antiphospholipid antibodies. When i fell preg again i had to go straight to the Early Pregnancy unit where they did a scan and found i was 5 weeks preg. They started me straight away om Clexaine injections. I had to do these every day in my stomach and at the same time each day. Had to continue to do these till the end or when i felt i was going into labour.
I am now a mummy to a little boy Charlie.
I hope this helps you and gives you a bit of hope.
Take care. Thinking of you.
x

KateHSF · 08/03/2012 12:45

This reply has been deleted

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KatAndKit · 08/03/2012 14:32

I don't have a child already but after two miscarriages and blood tests I have been diagnosed with "probable" APS (I have sometimes borderline, other times positive blood results)

I have been treated, at my local NHS hospital, with heparin and aspirin and am now 35 weeks pregnant. If you have not already been tested for APS, you should have this done as part of your routine NHS investigations, you shouldn't have to pay for it privately as it is one of the things they are supposed to test for. Ask your consultant what tests have already been done. Since you have a different partner to the one with whom you conceived the child you have, have you both had the genetic karotyping test to check the problem is not a chromosomal issue on his side?

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