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Miscarriage/pregnancy loss

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Possible miscarriage and SHOCKING nhs response

35 replies

ProfessionalOverthinker1 · 23/07/2025 14:37

I’m currently 5 weeks and 1 day pregnant. I’m 32 and this is my first pregnancy. I’ve taken multiple pregnancy tests, digital and strip, and the lines developed immediately each time. There was no doubt. Since finding out, I’ve been experiencing period-like cramps, which I know can be normal in early pregnancy. However, I’ve also had sharp, intermittent pain on one side, which worried me, though it would come and go. Aside from that, I haven’t had any other pregnancy symptoms. Then today, out of nowhere, I passed a large clot. It wasn’t like the clots I’ve experienced before during my historically heavy periods. This one had a shape and structure to it. It was deeply distressing to see, and something inside me knew immediately that this wasn’t right. Then came the part that really pushed me over the edge: dealing with NHS to get some help on what do I need to do now. I called 111 for advice. After answering their standard set of questions, they advised me to contact my GP directly, saying the information from our call would be shared with them. I was already anxious about calling my GP because past experiences have taught me to expect coldness, not care. Unfortunately, that expectation was confirmed. A grumpy-sounding receptionist answered. I started explaining, calmly and clearly, that I’m five weeks pregnant, have just passed what appears to be a tissue-like blood clot, and that 111 directed me to contact them for help.

What I got in response was silence. Then, in the [redacted by MNHQ] tone of voice that make me feel like a nuisance, she exaggerated back to me "A WHAT?! A BLOOD CLOT?!” Like I’d just said something completely absurd. I repeated myself, trying to stay composed. Still no effort to get my name, any details, nothing. Just huffing and puffing on the line, literally!

Then she asked, “Why weren’t you referred to the hospital?” I told her I didn’t know, I was simply following 111’s advice. She abruptly said, “Hold on,” put me on hold for all of two seconds, and came back saying she spoke to the doctor (how conveniently fast). She said I could walk into the Early Pregnancy Unit.
The hospital’s own website clearly states that the EPU only accepts referrals. No walk-ins. I tried calling the unit anyway no answer. Straight to voicemail.

I called 111 again, back in tears, to explain everything again and how the GP offered no help, how the receptionist didn’t arrange an appointment, didn’t offer a callback, nothing, so what am I supposed to do now. Thankfully, the lady on 111 line was kind and understanding, but I'm still left in limbo, awaiting call from 111 clinician...

I don’t understand how this level of indifference is acceptable. How can someone working on the front line of care, especially with someone who may be miscarrying, be so dismissive and unkind?

I know no one has answers for me, but what I experienced today was just beyond shocking. I wish anyone could hear how I was spoken to by that receptionist....

OP posts:
NaranjaDreams · 23/07/2025 14:41

I'm really, really sorry for what's happening.

In my experience, care for a miscarriage is non-existant, especially as early as you are. I'm not really sure why 111 referred you back to your GP, who won't be able to do anything at all...

They can process a referral to EPU, but EPU refused to see me at 9 + 4, because there's nothing they can do about a loss at that stage.

I hope 111 call you back soon, and if you want to be seen, I hope that's organised quickly. Bear in mind that there may not be instant confirmation of what's happening, both because it's difficult to tell immediately, and because often there is a policy of not scanning at your gestation so the only confirmation you could get of the pregnancy continuing would be blood tests to see if your HCG is doubling, taken 48 hours apart.

It doesn't excuse her tone at all.

Digdongdoo · 23/07/2025 14:49

Are you sure you can't self refer to the EPU or the midwifery service?
But realistically, they often don't do much or anything for such an early miscarriage. Even if you go for a scan, there might not be anything conclusive to see.
(But please don't say "retarded". There's no excuse for that kind of language)

Ooothatsagoodone · 23/07/2025 14:53

I'm sorry for you, it's not acceptable. Please change your GP to a more caring practice. Why put up with this shit show?

Teapleasemilknosugar · 23/07/2025 14:57

I had a similar experience, I'm sorry for what you're going through!

My GP refused to see me because "pregnant" and directed me to the midwives, the midwives refused to see me because I wasn't yet booked in with them (in my area you have to be 10w to book in) and directed me to the GP. And so we went round in circles.

Our local EPU don't take walk-ins and only accept referrals from GPs or A&E.

Awful experience. No compassion.

There isn't much they can do anyway if you are unfortunately miscarrying but a little empathy and compassion really wouldn't go amiss.

watchingplanesicantafford · 23/07/2025 14:58

I'm so sorry you're going through this, however at five weeks it's likely that no one will see you because it's too early for a scan and there is nothing that they can do. I do sympathise though and I hope 111 call back with some guidance for you.

ProfessionalOverthinker1 · 23/07/2025 15:00

Thanks everyone for your comments so far.

Yes, I am very aware that this is super early and there is very minimal if anything at all, but all I wanted to know is - what do I do now ? Do I wait? Do I need to see the doctor? Do I go to EPU ? Anything at all... surely when passing a blood clot, that should have been checked as it could be anything or nothing. What if it's ectopic pregnancy, surely is better to know sooner rather than later?

There is absolutely no excuse for anyone in a health care field to speak like this to anyone, especially when dealing something potentially distressing...

OP posts:
Foreverm0re · 23/07/2025 15:02

“Retarded” seriously?

ProfessionalOverthinker1 · 23/07/2025 15:02

Digdongdoo · 23/07/2025 14:49

Are you sure you can't self refer to the EPU or the midwifery service?
But realistically, they often don't do much or anything for such an early miscarriage. Even if you go for a scan, there might not be anything conclusive to see.
(But please don't say "retarded". There's no excuse for that kind of language)

I already self-referred to the midwife, I got a letter yesterday inviting me for 12wk scan but that came from Radiology unit, there is only contact number to call if I need to cancel my appointment, no other guidance what to do between now and then and what to do if there is potential issue

OP posts:
ProfessionalOverthinker1 · 23/07/2025 15:04

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

Mathsdebator · 23/07/2025 15:04

You lost me at "retarded"
Vile.

Baggingarea · 23/07/2025 15:05

Sending you love. I'm not a hcp but have been through something similar and it seems 111 followed the correct procedure in this case. I would speak to the gp practice manager urgently and explain what was said. Totally batshit response.

Ps i know its a hard time for you but please dont use offensive phrases like "r**d".

Mrsttcno1 · 23/07/2025 15:06

I’m sorry you’re going through this OP. As others have said the attitude and care is severely lacking but the unfortunate truth is that at 5 weeks there is nothing they can do, even a scan wouldn’t be conclusive of anything at 5 weeks. Generally the advice is that no, you don’t need to see a doctor and the vast majority of women miscarry without ever seeing or needing to see a medical professional. You take tests until they go negative, if that doesn’t happen then at that point you would seek advice incase of retained product.

They don’t really provide advice because there isn’t any really, especially as early as 5 weeks a scan wouldn’t even conclusively show an ectopic pregnancy, viable pregnancy, pregnancy of unknown location etc.

It’s just a wait and see game, as rubbish as that is.

ProfessionalOverthinker1 · 23/07/2025 15:07

Baggingarea · 23/07/2025 15:05

Sending you love. I'm not a hcp but have been through something similar and it seems 111 followed the correct procedure in this case. I would speak to the gp practice manager urgently and explain what was said. Totally batshit response.

Ps i know its a hard time for you but please dont use offensive phrases like "r**d".

Once this is over, whatever the outcome, I will be raising this. I had some horrible treatment from this practice, refused appointment on many occasions. Since the calls are recorded for training and monitoring purposes, I'm sure they will have no problem to get that call out and listen to it... absolutely shocking. No written words can even describe how this call went...

OP posts:
Digdongdoo · 23/07/2025 15:08

ProfessionalOverthinker1 · 23/07/2025 15:02

I already self-referred to the midwife, I got a letter yesterday inviting me for 12wk scan but that came from Radiology unit, there is only contact number to call if I need to cancel my appointment, no other guidance what to do between now and then and what to do if there is potential issue

The midwifery team will be in touch soon regarding your booking in appointment. You're so early that they just haven't caught up with you yet. If you're ok in yourself, personally I'd just wait it out for now. If you become unwell then A&E.
But I think the receptionist was just making sure she heard you right. Don't take it so personally. Sure she could have been nicer, but I imagine she was being factual rather than deliberately rude.

Foreverm0re · 23/07/2025 15:11

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

Your attitude is appalling.

Hoppinggreen · 23/07/2025 15:12

I am really sorry you are having to deal with this, I experienced similar 20 years ago but hoped things had improved all over.
I said to the nurse at the EPU - is this the first miscarriage you have dealt with? Because its the first one I have and you should try and remember that
A few years later I was in a position to effect changes on how the EPU dealt with MC and managed to improve things quite a lot with just a few small things - such as its location just off the main scan area where happy parents to be were sharing 20 week scan photos and/or making phone calls to announce the sex to theri families

Criteria16 · 23/07/2025 15:25

I experienced similar many years ago (many times unfortunately), except the coldness. Sad to see the gap in care and clear guidance for early pregnancy is still unresolved.
What I did back then was just to show up at the EPU and they never turned me away, but I guess it could be a hit and miss strategy. Once I got accepted in all was taken care of with the most kindness.

JustSawJohnny · 23/07/2025 15:29

ProfessionalOverthinker1 · 23/07/2025 14:37

I’m currently 5 weeks and 1 day pregnant. I’m 32 and this is my first pregnancy. I’ve taken multiple pregnancy tests, digital and strip, and the lines developed immediately each time. There was no doubt. Since finding out, I’ve been experiencing period-like cramps, which I know can be normal in early pregnancy. However, I’ve also had sharp, intermittent pain on one side, which worried me, though it would come and go. Aside from that, I haven’t had any other pregnancy symptoms. Then today, out of nowhere, I passed a large clot. It wasn’t like the clots I’ve experienced before during my historically heavy periods. This one had a shape and structure to it. It was deeply distressing to see, and something inside me knew immediately that this wasn’t right. Then came the part that really pushed me over the edge: dealing with NHS to get some help on what do I need to do now. I called 111 for advice. After answering their standard set of questions, they advised me to contact my GP directly, saying the information from our call would be shared with them. I was already anxious about calling my GP because past experiences have taught me to expect coldness, not care. Unfortunately, that expectation was confirmed. A grumpy-sounding receptionist answered. I started explaining, calmly and clearly, that I’m five weeks pregnant, have just passed what appears to be a tissue-like blood clot, and that 111 directed me to contact them for help.

What I got in response was silence. Then, in the [redacted by MNHQ] tone of voice that make me feel like a nuisance, she exaggerated back to me "A WHAT?! A BLOOD CLOT?!” Like I’d just said something completely absurd. I repeated myself, trying to stay composed. Still no effort to get my name, any details, nothing. Just huffing and puffing on the line, literally!

Then she asked, “Why weren’t you referred to the hospital?” I told her I didn’t know, I was simply following 111’s advice. She abruptly said, “Hold on,” put me on hold for all of two seconds, and came back saying she spoke to the doctor (how conveniently fast). She said I could walk into the Early Pregnancy Unit.
The hospital’s own website clearly states that the EPU only accepts referrals. No walk-ins. I tried calling the unit anyway no answer. Straight to voicemail.

I called 111 again, back in tears, to explain everything again and how the GP offered no help, how the receptionist didn’t arrange an appointment, didn’t offer a callback, nothing, so what am I supposed to do now. Thankfully, the lady on 111 line was kind and understanding, but I'm still left in limbo, awaiting call from 111 clinician...

I don’t understand how this level of indifference is acceptable. How can someone working on the front line of care, especially with someone who may be miscarrying, be so dismissive and unkind?

I know no one has answers for me, but what I experienced today was just beyond shocking. I wish anyone could hear how I was spoken to by that receptionist....

Two things, OP.

One, I'm so sorry you're going through this and I hope you receive better care going forward.

That said, you had good advice from 111 on both occasions and they did try to help you. It's not really fair to go down the 'Shocking NHS response' line when in reality you've been dismissed by a snappy receptionist.

You are well within your rights to complain to the practice about this, but let's not repeatedly and unnecessarily kick 'the NHS' due to a crappy phone call with one person who is not even medically trained.

Baggingarea · 23/07/2025 15:29

ProfessionalOverthinker1 · 23/07/2025 15:07

Once this is over, whatever the outcome, I will be raising this. I had some horrible treatment from this practice, refused appointment on many occasions. Since the calls are recorded for training and monitoring purposes, I'm sure they will have no problem to get that call out and listen to it... absolutely shocking. No written words can even describe how this call went...

I'm so sorry. I had similar problems with a GP and chose to move practice. Best decision I've ever made. Hopefully this is an option for you also.

Momstermash94 · 23/07/2025 15:40

OP I bled for 4 days when I was 5-6 weeks pregnant, I had intermittent sharp pain and cramping on one side. After speaking with 111 they had an out of hours GP call me (it was a bank holiday weekend) and he asked me some questions over the phone and referred me to A&E to be checked and scanned in case I was having an ectopic pregnancy. I hadn't yet been assigned a midwife so I didn't know what to do or who to call. I would go to A&E if I were you, they gave me blood tests and a scan there. They wouldn't have been able to do anything if I was losing the pregnancy but at least they investigated what was going on. Thankfully I am holding my healthy 6 month old and everything was OK, but I am glad I went to a&e, I was terrified I was losing the pregnancy. I hope you have a similiar outcome and that everything will be ok ❤️ but I agree, GPs can be extremely unhelpful with things pregnancy related

chunkybear · 23/07/2025 15:41

So sorry you experienced this, miscarriages first trimester are common sadly, and there’s nothing that can be done except wait to see at this stage. I’ve had many too sadly, I’ve even had a horrible senior nurse tell me my uterus was ‘empty’ … how cold and blunt she was and I was already in tears before she said those awful words to me, I was bereft

it may not be a loss as bleeding is common, at 5 weeks the microscopic blastocyst is just arriving in the uterus and embedding into the wall of the uterus (hence the pains and sometimes blood) and sometimes that doesn’t take for many reasons, other times it does. With my first actual baby I had a horrific bleed at 12 weeks that lasted 5-6 weeks and she was fine, others haven’t been so lucky. DS I had when I was 40 and it was literally text book with no issues whatsoever except the implantation bleeding which I thought was my period coming a bit late, but at a trip to the EPAU for an early scan he was measuring 5 weeks 1 day with no heart beat, when he should have been 5 weeks 6 days, but he was born on his due date at nearly 9lb so keep positive, and if it doesn’t work this time, it will another time - good luck

beautyqueeen · 23/07/2025 15:45

Agree with PP it’s a bit unfair for you to complain about the ‘NHS’ after a problem with one receptionist at your GP’s, especially after two positive encounters with 111. Just send a complaint to the practice manager about the receptionist, sounds like she could do with some additional training. Try and be factual, rather than emotive, and don’t use the language you did in your OP or they’ll just dismiss your complaint.

Hopefully you’ll get a call back from a 111 clinician soon who will be able to answer any questions you have. At 5 weeks it’s a watch and wait game, our EPU wouldn’t even see you this early, they’ll probably advise you to retest in two weeks.

LindorDoubleChoc · 23/07/2025 15:49

I'm so sorry for the horrible day you are having, but what you have experienced is not a "shocking NHS response" it was an extremely rude and lacking phone call with the GP receptionist. When you are feeling better, do put your complaint into writing in the form of an email to the practice manager. Be very specific, as you have on this thread. You are definitely owed an apology and that member of staff needs talking to and further training.

Superstorefan123 · 23/07/2025 15:52

With one sided pain and passing clots I’d be concerned about ectopic pregnancy which is a medical emergency. Call back and use the term ectopic pregnancy and you should be seen very, very quickly at an EPU (I’ve had two and every time I visit I’m seen within 15 minutes do to history and the risk).

Superstorefan123 · 23/07/2025 15:55

You need scanning and regular blood tests. To be clear, I also bled heavily during my successful 5th pregnancy so all is not lost! And whether the pregnancy is a healthy or unhealthy pregnancy inside the womb is a bit of a waiting game at this stage. But ectopic is absolute an emergency and needs to be ruled out asap - to sound extreme but my symptoms at 5 weeks were identical and I was very poorly.