Partial Molar Pregnancy

[PollyOaks]

Hi all,
Just looking for some first hand stories and information on this so I had a MMC 4 weeks ago picked up on my 12 week scan, where the baby's heart stopped beating at 11 weeks . I had surgical management for it 2 days later. Today I had a phone call from EPU to say after testing the tissue it's suspected partial molar and that they were doing further testing on it and in the mean time I have to go in from Friday for weekly blood tests. I did a pregnancy test today that I should have done last week at the 3 week mark and it is positive, not super strong but noticeably positive. I've had no bleeding for about a week now are these good signs to indicate it's naturally resolving?
Trying not to panic, trying not to google. My two best friends are pregnant we were all due within a couple of weeks of each other so don't feel like I can talk to them so feel a bit alone with the information. Husband is not much of a talker. I think they said something about being referred to Charring Cross but there was a lot said on the phone which has blind sided me as I wasn't expecting any testing.
No need to sugar coat anything, I just like to be prepared for all outcomes.

Thanks in advance and my condolences to those of you who have had to experience this also <3

Hi @PollyOaks i’m sorry you are going through this.
I had a partial molar pregnancy last year. I didn’t find out til 4 weeks after d&c as it wasn’t suspected.

I had a d&c on 2nd May, and was then doing urine tests & blood tests with the Sheffield centre (same as charring cross but i was referred to Sheffield due to where I live)
I was getting faint pregnancy tests for quite a long time. But it went pretty smoothly, and I got discharged to TTC again at the end of July.

Please let me know if you want to know anything else x

Hi @Figtree11 so sorry for your loss too. Thank you for replying. Did you have to have a second D&C? The midwife mentioned today something about the tissues that were sent off didn't weigh enough for gestational age which is in line with a molar so possible for another d&c and possibly chemotherapy. She's told me google is going to scare the hell out of me so I'm really resisting googling much and going down that rabbit hole.. x

@PollyOaks no I just had the 1 d&c. I’d been told they did a scan at the time which showed nothing left in there, it’s just unfortunately the nature of partial molars that your hcg levels can stay high a while. So doesn’t mean that there is anything else sinister growing.
Please try not to worry about things like chemo (I know easier said than done!) but the chances of a partial molars developing into cancer are tiny. You’d have to be extremely extremely unlucky for that to happen x

Ah OK I've not had a scan since the procedure, wasn't actually a d&c it was the erpc. Maybe they will do a scan after a blood test if levels are still at a high level. I will try not to worry from then until now and hopefully it's straightforward. It's difficult to process on top of the grief still. It feels like just as I was picking myself back up a bit it's just brought it all back and not letting me "move on" :( I'm also coming up to 37 years old and realise time isn't on my side and struggle with ovulation and getting pregnant so each month is precious to me as I've been told obviously not to try until I get told it's safe to again.
Thank you for your replies x

@PollyOaks mine was technically an ERPC too, and apparently they did a scan while I was still asleep for it.
Oh I know it’s so awful to process, it really knocked me sideways when I got told it was a partial molar. I’ve been having a rough ride with recurrent miscarriages & getting diagnosed with PCOS so it’s been a difficult road, but we just have to try and hold onto a bit of hope to get us through. Please feel free to reach out at any time xx

So sorry for your loss OP. I had a full molar pregnancy in between dc1 & 2. It took 9 months to get cleared (full molars normally have more cells and higher hcg) and all I could think about was the big "C". Luckily everything was fine. Just to give you some hope, I had dc2 a year and a half later and he was perfect. Thinking of you ❤️

I’m sorry that you experienced this. I had a full molar pregnancy 20 years ago so I may be a little behind in medical advances, but based on my experience…

You mustn’t get pregnant until you have the Ok to do so.

I had weekly and then monthly urine and blood tests, which had to be sent off to Charing Cross. The bloods were done at the local hospital and then posted along with the urine.

I have gone on to have two completely normal pregnancies, the first at the age of 36 and the second at 38, so you’ve got time yet.

I think it was 12 months until I had the ok to get pregnant again. After each one I had to have further testing to ensure that my pregnancy hadn’t kicked off the molar growth again, which it didn’t.

I wish you all the best in your journey

I know somebody who had this. You need to be in a testing programme to make sure it’s resolved. A partial molar pregnancy will usually do this, a full molar can take longer and worst case scenario require chemo HOWEVER the treatment is very effective and if that was needed it would be swiftly dealt with. There are three centres for testing I think, Charing Cross, Sheffield and Dundee. The person I know had to test for 6 months then immediately got pregnant.
it can recur but it’s unlikely if you’ve completed the testing before getting pregnant. You can’t get pregnant because that hcg rise will mask molar regrowth.
it’s a very, very weird thing. Common to feel alone as not many people have even heard of thi but you are not alone. This will be a season of waiting and I know that’s hard but it will pass.