Stillborn at 36 weeks-genetic testing

[OPGsMummy]

I lost my baby boy 2 weeks ago, he was born sleeping at 36 weeks with severely enlarged ventricles and a bleed on his brain. He has gone for a post mortem and genetic testing, specifically trying to look for the L1CAM mutation. The consultant had to warn us it could be up to a years wait. Im in a nightmare right now and to think that could be the case just makes me feel even more hopeless. Does anyone have any experience with genetic testing with the NHS?

if it does come back that baby has inherited L1CAM, I will only be able to have baby girls. I can’t even imagine the anxiety I’ll experience if I get pregnant again after going 36 weeks with no problems.

Xxx

Thank you everyone for your messages, here is my beautiful boy. I can’t believe as humans we have to go through things this painful, I can’t see a way out at the moment but I hope for Oscars daddys sake I do xx

He's beautiful x

What a lovely, lovely little face. Im so sorry OP. I can only imagine the pain and im sure that's only a fraction. I hope you both are being offered all the help and support you can possibly be.

What a beautiful boy

Oscar is so beautiful.
Im so very sorry.
You will be allowed IVF with genetic testing of embryos or sex selection if they can’t screen.
so very sorry

So incredibly sorry for your loss. Oscar is a beautiful name and very fitting for such a handsome little boy. Sending you lots of virtual hugs

He is beautiful op. May your memories of Oscar be a blessing.

What a gorgeous baby, much love to you and Oscar’s daddy.

I hope in the future that you will be parents again and will be able to share Oscar’s story and memories with his siblings.

What a beautiful little boy.

Sending you strength OP, 💐🩵

I’m so sorry. He’s absolutely beautiful. Sending you strength 💐

Your boy is beautiful op. His hair!!
Gorgeous...

I'm so, so sorry for your loss. I hope you have lots of real life support. Thats a lovely photo. 💔
I love the name Oscar.

Oh OP your beautiful boy made me tear up, such a lovely boy. Sending you so much love at this awful time

What a beautiful boy 🥰 so sorry for your loss. Sending you all the love xx

I am truly so sorry for the loss of your precious boy Oscar. He is so beautiful

Oh Oscar is so beautiful. Thank you for sharing him with us. The pain is unbelievably raw just now. It doesn't feel like it in the early days (months) but you will learn to live alongside the loss of Oscar, always taking him with you. The waves of grief continue but the sea will become calmer most of the time. I didn't believe that for the first few months as it was so, so difficult.

Re when you said above about struggling of thinking about what to ask the consultant at the time and having more questions, that is completely understandable. I hope you have a bereavement midwife or a contact at the hospital and you can ask them for a meeting at a later date, hopefully this will be arranged for you.

I agree with others on here. Oscar is the most beautiful baby boy and I am so very sorry for your loss.

So very sorry. He's gorgeous

The most gorgeous baby boy 🩵 I am so sorry, why is life so cruel 😞 xxx

Hello I just want to ask you, how do you feel those days. I lost my baby boy 5 days after your boy. 8 of June this year.
It was also stillbirth in 38 weeks, out of the blue. I stopped feeling movement, but was too late.

Cute little person, beautiful boy. I just can believe it's so common and our boys hasn't got chance opened their eyes and we hadn't got chance to hear their crying. This all situation is just insane. You just cant wake up because now it's your life and every morning you have been asking yourself ok, new day so what we should do today , should we start crying or should we somehow try to find positive energy and try to learn how to be happy on new conditions

Ps.Congratulations for became parents and you know what we are parents but parents of our guardians Angels in heaven who knows maybe our boys already playing together on the clouds and I know they have been watching us whenever they are not busy up there with the rest of our families.

So sorry about that loss of your precious boy Oscar 😔❤️

Sorry for your loss 😔❤️

Oscar just has the most beautiful face.