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Needing hope ahead of surgery to remove etopic surgery

18 replies

Livingonhope · 25/04/2024 19:14

Hoping someone can give me some home just been told today I have an etopic pregnancy and booked for surgery tomorrow
They want to remove tube as standard practice but I feel like fighting this as I don't have a rupture and pregnancy is only small?

has anyone had success with one tube ( bonus points if it was shortly after) I just need some hope through dealing with this :(

OP posts:
SagittariusUprising · 25/04/2024 23:36

I’m so sorry you’re going through this.

I had an ectopic pregnancy. Very different in that it did rupture, and it was an emergency procedure.

I’m not sure what you’ve been told by your consultant, but losing a tube doesn’t halve your fertility. The female body is amazing. The fallopian tubes can reach around and grab eggs from the opposite ovary, so the nett impact of losing one tube is only a 10% decline in fertility.

People can and do have successful pregnancies after an ectopic. We did. It took us a little while, but I was 38 at the time and it may have taken an while anyway. Hopefully you’ll get lucky soon. Wishing you all the best x

Ballybeee · 26/04/2024 00:06

Hang in there OP, sorry you are going through this. Exactly what PP said. I also had a rupture and tube removed. I was pregnant 5 months later, following acupuncture sessions. Be kind to yourself xx

ouch44 · 26/04/2024 07:51

I'm sorry you are going through this. I just woke up so not quite with it but wanted to answer your post.

Have you found The Ectopic Pregnancy Trust? They are online and should have a helpline too. I had amazing support through them. Also an online forum.

I had 2 ectopics pregnancies about 20 years ago so advice etc might be a bit different. I had 2 DC after naturally.

Your surgeon I expect though will make a decision based on how your tube is looking at the time. Like a PP said your tubes can move to the other side so although you may lose a tube it wouldn't halve your fertility.

Livingonhope · 26/04/2024 12:33

SagittariusUprising · 25/04/2024 23:36

I’m so sorry you’re going through this.

I had an ectopic pregnancy. Very different in that it did rupture, and it was an emergency procedure.

I’m not sure what you’ve been told by your consultant, but losing a tube doesn’t halve your fertility. The female body is amazing. The fallopian tubes can reach around and grab eggs from the opposite ovary, so the nett impact of losing one tube is only a 10% decline in fertility.

People can and do have successful pregnancies after an ectopic. We did. It took us a little while, but I was 38 at the time and it may have taken an while anyway. Hopefully you’ll get lucky soon. Wishing you all the best x

Thank you for sharing your story it's been massively traumatic I was brought in for surgery then they told me two hours later they wanted to do injection because they thought my surgery was risky due to previous admoninal surgery I have had THEN they came back again and said can't have injection surgery it is but they want to wait to tomorrow for hcg to double again and def rule out a normal pregnancy ( background I'm 5 weeks they seen something in the left fallopian tube that they now seem to have less conviction of it being a pregnancy) today has been one of the most confusing days of my life

OP posts:
Livingonhope · 26/04/2024 12:34

Ballybeee · 26/04/2024 00:06

Hang in there OP, sorry you are going through this. Exactly what PP said. I also had a rupture and tube removed. I was pregnant 5 months later, following acupuncture sessions. Be kind to yourself xx

what accuptunture did you have please? xx

OP posts:
Livingonhope · 26/04/2024 12:35

ouch44 · 26/04/2024 07:51

I'm sorry you are going through this. I just woke up so not quite with it but wanted to answer your post.

Have you found The Ectopic Pregnancy Trust? They are online and should have a helpline too. I had amazing support through them. Also an online forum.

I had 2 ectopics pregnancies about 20 years ago so advice etc might be a bit different. I had 2 DC after naturally.

Your surgeon I expect though will make a decision based on how your tube is looking at the time. Like a PP said your tubes can move to the other side so although you may lose a tube it wouldn't halve your fertility.

My surgeon doesn't seem to want to touch me because of a previous surgery and he will only remove tube as standard procedure he doesn't try to save it so its looking that is the definitive answer thank you for your response xx

OP posts:
Freckles81 · 26/04/2024 12:44

Hey OP, I had this done as was bleeding and close to/was rupturing.
I had had not one but TWO doses of methotrextae and it hadn't stopped the HCG climbing, so surgery had to be performed.

Unfortunately, I was living in Thailand at the time (teaching), and the private hospital I had it done at (covered by my medical insurance via the job) decided, without my consent, during the oeration, when I was under and thus asleep/unaware, to 'scrape' e.g. laser scar tissue from the other tube.

The doctor informed me this upon awaking, and told me I now had a three month window in which to get pregnant, because scraping the other tube would cause formation of scar tissue, essentially blocking my tube beyond any use!!!

He then said that however, because I had had two shots of methotrextae that I shouldn't fall pregnant for 6 months, because it would cause birth defects.

He then proceeded to tell me about IVF being my best option for the future due to this. Unbelievable.

That tube should have been left alone- and the reason they performed the scraping/removal (laproscapy) was it added more money they could claim back on insurance. Just a money grab.

Perhaps my other tube would have resulted in another ectopic down the line; who knows? But maybe not. It was wrong to take the choice away from me and render my tube scarred anyway, by proxy of acting to scrape it. The lunacy of it all.

I wish I had had the warewithal to sue the hospital at the time, but I was reeling from my abusive ex husband not coming to visit me during that time, losing a job due to needing time off after the surgery that my international school disagreed with (seriously wtf- a story for another time), and then moving back to the UK alone, penniless. It was a tumultuous time indeed!

I am infertile, and at 43 years old have made my peace with it.
I used to think 'why me?' but now I think 'why not me?'

You will be in safe hands with the NHS, and as you can see from others posting above, likely to have a baby. I am sure it will happen xx

All the best xx

Livingonhope · 26/04/2024 13:45

Freckles81 · 26/04/2024 12:44

Hey OP, I had this done as was bleeding and close to/was rupturing.
I had had not one but TWO doses of methotrextae and it hadn't stopped the HCG climbing, so surgery had to be performed.

Unfortunately, I was living in Thailand at the time (teaching), and the private hospital I had it done at (covered by my medical insurance via the job) decided, without my consent, during the oeration, when I was under and thus asleep/unaware, to 'scrape' e.g. laser scar tissue from the other tube.

The doctor informed me this upon awaking, and told me I now had a three month window in which to get pregnant, because scraping the other tube would cause formation of scar tissue, essentially blocking my tube beyond any use!!!

He then said that however, because I had had two shots of methotrextae that I shouldn't fall pregnant for 6 months, because it would cause birth defects.

He then proceeded to tell me about IVF being my best option for the future due to this. Unbelievable.

That tube should have been left alone- and the reason they performed the scraping/removal (laproscapy) was it added more money they could claim back on insurance. Just a money grab.

Perhaps my other tube would have resulted in another ectopic down the line; who knows? But maybe not. It was wrong to take the choice away from me and render my tube scarred anyway, by proxy of acting to scrape it. The lunacy of it all.

I wish I had had the warewithal to sue the hospital at the time, but I was reeling from my abusive ex husband not coming to visit me during that time, losing a job due to needing time off after the surgery that my international school disagreed with (seriously wtf- a story for another time), and then moving back to the UK alone, penniless. It was a tumultuous time indeed!

I am infertile, and at 43 years old have made my peace with it.
I used to think 'why me?' but now I think 'why not me?'

You will be in safe hands with the NHS, and as you can see from others posting above, likely to have a baby. I am sure it will happen xx

All the best xx

Thank you for this and I am so do sorry your choices were taken from you and such horrible circumstances it's true what they say there is always someone who has had it worse than you....wishing you healing from something so awful x

OP posts:
Stickthatupyourdojo · 26/04/2024 13:50

Sorry you're going through this OP. As a previous poster said, fertility isn't halved as the remaining fallopian tube can reach over. I've been "officially" pregnant four times (as in, shows on a scan), the ectopic was #2. Every one was from the same ovary which is the side of the tube that was removed. After the ectopic I had a miscarriage (nothing to do with the ectopic, just one of those sad things) then a (second) successful pregnancy. Thinking of you.

Trinity69 · 26/04/2024 13:50

I had an ectopic removed as an emergency back in 2001. The tube was removed and the pregnancy wasn't planned. I didn't try to get pregnant until 2007 and it took a year of trying but my son was conceived naturally. After him my daughter was also conceived naturally. Your fertility shouldn't be affected.

@Freckles81 that's just shocking. So sorry you went through that.

SagittariusUprising · 26/04/2024 13:50

Livingonhope · 26/04/2024 12:33

Thank you for sharing your story it's been massively traumatic I was brought in for surgery then they told me two hours later they wanted to do injection because they thought my surgery was risky due to previous admoninal surgery I have had THEN they came back again and said can't have injection surgery it is but they want to wait to tomorrow for hcg to double again and def rule out a normal pregnancy ( background I'm 5 weeks they seen something in the left fallopian tube that they now seem to have less conviction of it being a pregnancy) today has been one of the most confusing days of my life

I’m so sorry you’re going through this.

There doing their due diligence to make sure they don’t cause any unnecessary consequences, and also to make absolutely sure they don’t impact a potentially healthy pregnancy, just in case.

But, the waiting, uncertainty and not knowing is agony. I’ve been there. Just hang on in there. It will be clearer tomorrow. I hope it all goes well for you x

Freckles81 · 26/04/2024 13:56

Trinity69 · 26/04/2024 13:50

I had an ectopic removed as an emergency back in 2001. The tube was removed and the pregnancy wasn't planned. I didn't try to get pregnant until 2007 and it took a year of trying but my son was conceived naturally. After him my daughter was also conceived naturally. Your fertility shouldn't be affected.

@Freckles81 that's just shocking. So sorry you went through that.

Thanks lovely- just made me appreciate our NHS more when I returned home, because there is no way it would have happened here!

And the lovely reponses on here go to show Op that there is so much hope; she will more than likely go on to successfully conceive. 💐

Freckles81 · 26/04/2024 13:57

Livingonhope · 26/04/2024 13:45

Thank you for this and I am so do sorry your choices were taken from you and such horrible circumstances it's true what they say there is always someone who has had it worse than you....wishing you healing from something so awful x

The waiting is the hardest part, and your emotions will be all over the place, OP. But they will do the best by you, and you will definitely be a mother in future; I know it. Big hugs and sending love 💐xx

Ballybeee · 28/04/2024 18:03

It was fertility acupuncture combined with some herbal Chinese teas. Pm if you need any further info. Hope you’re ok 🙏

Livingonhope · 03/05/2024 13:10

Hi all 6days post op and the more I read online the more I worry. When I came our of surgery they had removed the left tube as well as a small cyst on my right so now I'm worried about scarring on the right as well ( Albeit surgeon wasn't concerned) I'm really struggling to keep any hope whatsoever and feel it's better to give up that put my family through ths heartbreak again :(

OP posts:
Sealover123 · 03/05/2024 13:17

It's good they removed the cyst and like you said the surgeon wasn't concerned.

Kindly, don't have a defeatist attitude and try to maintain a positive mindset. Enjoy the conception process with your partner.

I had an emergency tube removal at 38 and was pregnant after 4 months TTC (we waited a few months for me to heal afterwards, so it ended up being around 7 months). I'm 39 now and expecting our twins this month!

Livingonhope · 03/05/2024 16:43

Sealover123 · 03/05/2024 13:17

It's good they removed the cyst and like you said the surgeon wasn't concerned.

Kindly, don't have a defeatist attitude and try to maintain a positive mindset. Enjoy the conception process with your partner.

I had an emergency tube removal at 38 and was pregnant after 4 months TTC (we waited a few months for me to heal afterwards, so it ended up being around 7 months). I'm 39 now and expecting our twins this month!

I think it I had of woke up and it just had of been one side I would have been fine but because he removed a cyst on remaining side I'm worried about scarring and that in itself causing a blockage I know I shouldn't have a nagtove attitude it's fear more than anything fear of getting my hopes up x

OP posts:
SagittariusUprising · 03/05/2024 18:58

I totally understand why you are nervous, but please try not to be. Fertility stuff is so hard because you can’t see what’s going on inside, so there’s a lot of unknowns. However, it doesn’t follow that you will definitely have scarring in your other tube. The cyst may have resulted in a blockage anyway, so it may be that your fertility has been preserved rather than damaged. It’s difficult, I know, but try to have faith. Wishing you all the best x

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