Partial molar pregnancy

[Lost34]

Looking for abit of support and similar experiences.

i went for a 12 week scan and was told that there was no heartbeat and baby had stopped growing around 8weeks. After a difficult decision I decided to have a d&c procedure as I had no signs of miscarriage not even spotting. I had the procedure and was told to complete a pregnancy test in 3 weeks, this was positive and still quite apparent. They then asked me to repeat in 5 days, again still noticeably positive. I was asked to attend for a scan, this showed what appeared to be retained products. They also made me aware my d&c results showed I had had a partial molar pregnancy, meaning it would never have resulted in a viable pregnancy but that I would need to have my hcg results monitored until they returned to normal. I then had to have a 2nd d&c under local to remove what was left behind, she told me during this procedure she was unable to get everything and I would have to come back the following week for a 3rd procedure.

I don’t know what to think, is it normal to need this many procedures to remove tissue or am heading down a path to one of the more complex complications of molar pregnancy?

im hoping someone had a similar experience and can put me at ease

I'm very sorry to hear this and hope you are holding up okay. I had a complete molar pregnancy in 2022 so not quite the same as you, and only had to have one d&c. I wouldn't worry that having more than one will lead to complications - the main thing is that once they have removed everything your HCG goes down. I know it's easier said than done but try to take things one day at a time. I know looking up anything to do with a molar, partial or complete, is scary, but you'll be able to get through it. My HCG took a while to go back to normal, but it did, and I didn't need any treatment. I also had my period back in 6 weeks.

Thank you for your reply, so sorry to hear your story, and for your loss.
im ok, im just starting to feel like it’s never going to end, Its been nearly 7 weeks since I had my the initial d&c and I still have retained products, my 2nd Mva is this week, im just hoping it is all removed and I can start to move past this part of the process. It is reassuring to know everything worked out for you, thank you

Gosh that's so tough. I'm so sorry it's dragging on, but glad at least your next MVA is soon. Have you got good people around you? I had some wonderful friends who really helped me through.

I do have some really lovely people around me yes thank you. sometimes it’s nice to hear from people who know what you’re going through. Thank you for sharing your story x

My pleasure. If you want to ask anything else do drop me a message; I'd be happy to answer. Best of luck x

Hi I would just like to post to share that I am also going through this. I had my D&C at the end of February and found out today I had a partial molar pregnancy. Very anxious about the monitoring and future TTC.

How have things been since you last posted?

@AnxiousPoster I'm so sorry you are going through this - it's the worst. I had a complete molar in 2022 but my recovery was quick and I didn't need chemo. Let me know if there is anything you'd like to know. I actually posted a big thread about this not too long ago which I can share with you if that sounds useful? I did it to share my experience with others, and also to provide a positive update (these threads don't always have them) that I went on to have a normal pregnancy not long after

Hi @AnotherStory23 thank you so much for taking the time to message me especially as this is behind you now.

Firstly I am so pleased you recovered well without needing treatment and you have had a successful pregnancy. Was the molar pregnancy your first pregnancy/loss, like mine?

I only found out on Monday so am still just going through the raw emotions and am terrified of needing treatment. Hopefully that won’t be the case. It feels hard to be positive did you find this also or how was your mindset?

please do share your thread and let me know if you’re open to private messages although you maybe don’t want to relive this.

thanks again ❤️

Hi anxiousposter,

im so sorry for your loss and what you’re going through. And im really sorry this has been your first experience of pregnancy, it’s an awful situation. I hope you have good support around you

I did have alittle bit more complex journey than some. I had my initial d&c Under general on 7th December, and ended up having 2 further evacuations on January 15th and 26th as there was retained products. Then about 5 days after went to a&e with increased blood loss and clots, they kept me in and gave me medication. I did have to do urine samples and send them by post in the mean time and fortunately for me my Hcg levels came down quite quickly, I had a normal result 2 weeks ago, I’ve send another just and in 2 weeks I’ll have a blood test hopefully giving me a normal result. It’s extremely difficult to get the idea of ‘cancerous’ out of your head whilst going through it, but I did at home urine tests weekly and could see my line Fading and I felt alittle reassured by that whilst waiting for official results.

its been 3 months since I found out about my miscarriage so it’s been a slow process.

i know im not the best case scenario but i hope this has given you some insight. And know that the majority of people don’t have to go down the route of chemotherapy.

please feel free to private message if you have any more questions or if you just want someone to share your thoughts with, the loss hit me much harder than I ever imagined and it does feel a lot like nobody understands how you feel unless it’s happened to them.

be kind to yourself x

Hi @AnxiousPoster sorry for my delay. I hope you are feeling a little better this week. Yes it was my first pregnancy too. And I definitely did struggle with my mental health, particularly with waiting for confirmation after the ERPC.

Here is the thread with my full story, as well as other people's, if you want to read:

https://www.mumsnet.com/talk/miscarriage/4651461-molar-pregnancy-story-for-others

But feel free to message me too - I don't mind discussing this, in fact I'm happy to. Helping other people who are experiencing this too has been one of the positive things that has come out of what was a very tough time