Molar Pregnancy

[LStar1]

Hi Everyone

hoping to start a chat about Molar pregnancy to see if anyone else having a similar experience and help speak through the process.

I had my 12 week scan on the 3rd August 23 and was sent straight to the hospital who confirmed suspected partial molar pregnancy.
I had a d&c 4 days later.

I had my first blood and urine test on 5th September and thought I came on my period on the 6th however it was really heavy and clotty and lasted only 3 days so not sure if period or something else? I had my first lot of results back from Charing Cross on the 8th bloods ~7 and urine ~15 and confirmed partial molar.

did any one else have those kind of results back at first and did they go down again or up?

Hi, I also had my 12 week scan last month and was told it looked like a partial molar pregnancy, which has now been confirmed. Had d&c 3 weeks ago.

I haven't had my period come back yet, but apparently your periods tend to start again once your HCG is below 100, so it could well have been a period.

How are you feeling?

Hi @Burningthroughthesky

sorry to hear your going through this too. How are you?

im hoping it is and that the clotting is getting rid of anything else that was left.

i had never heard of molar pregnancy and there’s just so much to take in and so much waiting.. results, getting body back to normal.

have you been referred to a specialist yet x

It's a really shit club to be in isn't it. Hopefully the clots were your body doing it's thing and like you said getting rid of anything else that was left, fingers crossed you have a negative result next time you do a sample.

I don't even really know how I feel to be honest. People who know what has happened keep asking how I'm feeling, and I just say I'm okay or tired, but I don’t know how to explain how I'm actually feeling. This was my first pregnancy and I had a couple of private scans and had seen the heartbeat already, so the 12 week scan was a big shock. I think I'm still a bit in shock, just feel all over the place. I (stupidly maybe) went to a friend's baby shower today, so really felt all over the place today.

I had heard of molar pregnancy before, but only the worse case scenario of needing chemotherapy and then not being able to try again for a while. So when I heard the word "molar" at my scan, I just thought of chemotherapy and was terrified. The staff were nice but couldn't really explain anything. I now know that the chance of that happening with a partial molar is really really small (1%), but it's lingering in the back of my mind still. I'm in my mid 30s so the main thing that scares me is the thought I won't be able TTC for a while.

I've been referred to Sheffield hospital for monitoring, haven't heard from them yet. It's just hard not knowing how long monitoring will go on for, just wish time could speed up so it could "all be over" sooner.

Hope you are okay.

@Burningthroughthesky

i completely understand it’s my first pregnancy and I’m also in my mid 30’s.

its like you plan your life for the next 9 months and then start preparing for all your life changes for it to be over in seconds of a scan. Then all this information and waiting, my partner keeps talking about trying again but there’s so much waiting it’s hard to know when you can!

the shower must of been really hard, I imagine just thinking this should of been me soon and thinking of what could of been.

you should definitely call the hospital and keep chasing x

Hello both. I just saw your posts and wanted to reply with a little reassurance, hopefully. I had a partial molar pregnancy at age 36 and went on to have a healthy baby who is now a healthy teenager. I remember having some very heavy bleeding whilst everything settled back down. My HCG was slow to go down and in the end they decided (at Charing Cross) that my 'normal' levels were slightly higher than typical so nothing to worry about. I remember well how horrible it all was, especially as no-one I knew had experienced it. I joined a baby loss support group and that really helped. Be kind to yourselves, take one day at a time and I wish you both all the very best.

Hello I also had a partial molar a couple of years ago. The fetus had a heartbeat and everything. It was a really sad time. I'm really sorry but I can't advise on the specifics of the numbers etc in the follow up as I honestly don't remember the details, it's all kind of faded. I remember it took about 6 months of fortnightly blood tests before Charing X signed me off to try again. I got pregnant very quickly after that and it was successful and I now have a lovely two year old. There are rarely any long term implications of having a partial molar so although it is a miserable experience it will pass and the likelihood is you'll go on to have a healthy pregnancy next time, it's just frustrating having to delay. Wishing you the best OP, life is not easy sometimes. The other thing I'll say is that I felt extremely ill with my partial molar so look after yourself in this heat x

@LStar1 yes it's very strange to go from being pregnant to not being pregnant, and then getting your head around the fact that you can't try again for however long. My partner also keeps talking about trying again. I do want to try again, but I just want to still be pregnant tbh. I'm gutted about having a miscarriage in the first place. It's just such a mind fuck to think we're hoping for a negative pregnancy test so we can start trying again.

@thedevilsavocado thank you for sharing your story, it's so reassuring to hear from people who have been through this and come out the other side. One day at a time is good advice. How did you find your next pregnancy?

@ChillysWaterBottle thanks for sharing, I know it will pass, hopefully in a few months, but it's hard when you can't see the finish line. I think my emotions are still a bit all over the place (thanks hormones!).

@Burningthroughthesky I had some bleeding in the early weeks of my pregnancy with DS, which was hard to deal with. I had really good support from the Early Pregnancy Unit at my hospital, though. The rest of my pregnancy went smoothly although I don't think I fully believed it would all be ok until he was born. I do remember his early weeks being some of the happiest of my life though, so it was all worth it. Pregnancy loss is so hard to deal with, it was years ago for me now but I still remember the difficult days. Take good care.

I had a complete molar last year.

Had "coffee grounds" type bleeding at 7 weeks, phoned the midwives who said it was likely implantation and to test in a week but my gut said no. I booked a private scan who confirmed there was no yolk sac but there was some debris, called midwives back and they booked me in EPAU, scanned and told no sign of molar but to have another scan in 2 weeks. Next scan they confirmed molar and didn't really explain to me what it was but just mentioned chemo from the get go so that wasn't the best start.

Had D&C 2 days later.

My post surgery bleeding lasted about a week, blood tests were coming down and I think it took 8 weeks for my bloods to come into normal range and to be urine only tested. Was told that periods only return when HCG under 100.

Had last urine test in Feb this year and result had gone up to 24 but as Charing Cross said it was still below 25 they could sign me off but to have a scan, I did believe I was pregnant anyway but because of HCG, you can never really trust a pregnancy test after molar. Went for a scan and what was believed to be 8 weeks to find out I was 6 weeks pregnant and confirmed viable.
I'm now 35 weeks.

Just checking back in, can't believe it's been two months.

How are you getting on @LStar1?

My HCG is really low now, but not quite low enough to be discharged from monitoring just yet.

@hdbs17 Congrats, hope everything went well 😊

Hi @Burningthroughthesky

thank you for your message hope you are well, how have things been hoping you get discharged soon.

I got the all clear from Charing Cross at the start of October they discharged me when urine level was 4.

3 weeks later I found out I was pregnant again, it’s really a bag of mixed emotions! I went for a 6 week scan and every looked to be ok but the magic of the excitement from the previous pregnancy isn’t here this time, just pure worry and feel like just waiting to be told bad news.

I have had a lot of nausea this time which I didn’t have before but that stopped 2 days ago all I have now is daily nosebleeds I have an 8 week scan scheduled next week just a different feeling this time x

Hi there appreciate this dates back to last year but hoping I can get some support. I have found out today I have a partial molar pregnancy following d&c 4 weeks ago. It’s been a complete shock and very traumatic.

Nervous of the next phase I was so adamant on TTC quickly. Now just feel so defeated. Wondering if you both could provide an update and how things went? Thanks 🩷

Hi.I had a complete molar pregnancy twice.The first time my levels continued rising after a d&c.I ended up having chemo(overnight stays) at Charing Cross hospital for 6 months.
It was a dreadful experience,I lost all my hair.

Three years later I got pregnant again.I had a missed miscarriage and everything looked normal at the scan(no sign of molar preg) until I had another d&c.The tissue was sent to the labs.Results came back three weeks later confirming my worst fear.Another complete molar pregnancy!

I would like to say that the other ladies who were going through what I did went on to have normal pregnancies after their first experience of molar pregnancy.They went on to have many beautiful healthy children.

I really hope it works out for you.I am keeping my fingers crossed for you.

Hi @AnxiousPoster, I'm sorry for your loss and that you also find yourself here. I also had a partial molar pregnancy and found out at my 12 week scan. That was about six months ago now, and it feels strange to think back to that time: I know that I felt in so much pain and hopeless, but I can't accurately remember how I felt now if that makes sense. What I am trying to say, is that you won't always feel like you do right now, but right now you probably feel really scared and confused and sad, and that's normal. But you won't always feel like this.

I was cleared to start trying again just before Christmas, but we decided not to try again immediately as we didn't want to be in the two week wait over Christmas, and tbh, I just wasn't ready. It took about four months for my hcg levels to get to negative, but my D&C did not fully work and I had what they refer to as "retained products" and so I think that is why it took a while. Some people do reach negative within weeks rather than months.

I feel in a much better place now, though I am still sad about what happened, and probably always will be, but I feel ready to try again now and hopeful about what will happen.

It's been the longest but also the shortest six months of my life, and if I could give you any advice, it would be to let yourself feel whatever it is that you're feeling. Lean on people close to you, but prepare yourself for the fact that no one you know will "get it". In my experience, no one knew what a molar pregnancy was, and they definitely did not understand how it affected me emotionally. That's not their fault, but it was hard at times. Don't let anyone dismiss or minimise your feelings. There is a group on Facebook called "my molar pregnancy support group" which helped to validate what I was feeling and made me feel less alone and crazy.

There is a lot of information to try and get your head around while you are grieving, so I would also say take it a day or week at a time.

Feel free to PM me if you need to chat 💜