Hi, i'm just looking for some opinions and advice on my situation. I had a MMC and have been so disappointed with the level of care but I don't know if it's just me being hormonal and expecting too much, especially with covid affecting the NHS.
We found out about the MMC at the EPU on 24th Nov and then had to wait a week for a follow up scan, even though the sac measured 30mm at this scan. There was no sign of an embryo at all so I'm guessing it would be classed as a blighted ovum but no one has used that term. I had been suffering with awful pregnancy nausea for weeks already so having to wait another week was a nightmare, they gave me cyclizine but this didn't have much of an effect. I'm wondering could they have called it a MMC at the first scan due to the sac size, rather than making me wait a week?
The second scan confirmed the MMC. I then immediately said I wanted an MVA, they said they don't do that procedure here, they only do general anaesthetic which I said ok, when could I have that? The waiting list was two weeks long.. I was really upset at this, it just seemed cruel to have to wait this long. The only options they gave me were for me to call around other hospitals to see what their waiting lists were like but that it would probably be the same length of time elsewhere. The nurse also said I could go on the waiting list for 15th Dec (earliest date available for surgery) in case there were any probs with the medical (which I was v anxious about). After going home for the evening (still feeling sick) I decided to go for the medical management, I really didn't want to go down this route but I wanted an end to the symptoms asap so I thought I'd brave it.
I did the tablets at home on 2nd Dec, it was pretty horrible and I lost a lot of blood, but I thought it must have worked. However one week later I was only feeling about 10% less sick, also had exhaustion and racing heart. Called epu and I went in for blood tests which showed very low iron compared to the start of the treatment, so am now on supplements. Also now prescribed Ondansetron for sickness which does seem to be working. However I feel like the doctor was fobbing me off a bit. I asked if it was normal to feel fully sick after a week, she said it can be but that's why I have to wait 3wks to do a pregnancy test and that will tell us if the tablets worked. She then said if it was still positive they could then look into more treatment e.g. more medication.. at which point I burst into tears and said I didn't even want the tablet option in the first place! I then mentioned that I should be on a waiting list for the surgery for next week as that's what I was told at the last appointment. She said they should never have said this, it would be far to risky to do any surgery two weeks after the medication (is this true?!) And I'm not on any waiting lists.
I also asked about my HCG levels which they would have been able to see from the blood tests I had on the day the tablets were given and the one a week later - she said we don't even look at that as we need to wait 3 weeks to give the medication a chance to work. I have read that sometimes they do blood tests 48hrs apart when they suspect miscarriage.. surely they could see what my levels are one week apart?? Anyway she wouldn't give me any info on that. I said I was anxious that it hadn't worked, what if I had a private scan to check and she said she didn't think the hospital would look at a private scan so there wouldn't be any point doing that.
As I was so upset she said I could call next week if I still felt sick (two weeks after I had taken the tablets) and they would review the situation but I may not get a scan that day, it could be the following week.. it has just been awful and the thought of not knowing what is happening is really upsetting. I am hoping the medication has worked and that the nausea will fade soon but I'm also getting random period type pains although the bleeding is very light now.
If I'm still feeling ill next week - does anyone know if it would be worth calling around other hospitals? As I was so early on, my pregnancy wasn't registered which is why I thought I had to go to this particular EPU, it's a bit like an a&e / walk in for early pregnancy. I was also left to wait ridiculously long times while feeling really sick in the waiting room, it has just been a rubbish experience.
I'm not sure what I'm asking for really, just wanted to vent and get opinions (if anyone has got this far - thank you!)