Partial molar pregnancy

[arianasky]

Hello, I had what I thought was a missed miscarriage diagnosed at my 12 weeks scan and had ERPC 01.10, well a consultant has just rang me to say it was a partial molar pregnancy and I will be monitored by a specialist team, I thought I was on my period but I've just taken a pregnancy test and it's still showing positive. I'm so confused by all of this does anyone have any stories of a partial molar and what happened next? I'm worried now, thank you.

Hi, I'm literally going through the same thing! MC in September and had surgical management. Last week they called me with the results and said they suspect a molar pregnancy. I was gutted! I felt that my pregnancy tests 3 weeks after surgery were negative. After that news I took a test and there was a faint line, I followed up with a digital that said negative. I started my period on Tuesday but it was a bit off so took a FRER test and again a faint line. I am also concerned now this is due to the molar. This is my second MC so felling pretty low about it all. Im waiting to hear from charring cross. Bless you I totally get where you are coming from xx

I had an erpc at 10wks - the hospital didn't follow up with any calls to my Dr or me so I thought all was OK - but carried on bleeding on and off... went to the Dr a couple of times and they discounted things, but then went to a locum just when one of the bleeds started and she examined me and sent me for a scan... at which point I had another erpc, and ended up having 6 months of chemo. But that was really unusual.

I did manage to get pregnant again 2 years later (not being allowed to even try for a year after chemo finished) and my son's now 16. Had two mc after my son - each overshadowed by the worry about it happening again, at which point we gave up because it was too much to deal with again and again.

Hope all is much more straight forward for you!

Wow that is a lot to go through. I am 40 so I really hope I don't need to have treatment.

I'm sorry to hear about your situation. I had a partial molar pregnancy last year. I think one of the symptoms is super high hormone levels (it was how mine used picked up) which is possibly why your pregnancy test is still showing positive. They will take a while to go down. I had to have a surgical management of miscarriage to clear all the 'products of conception' and then was referred to the specialists to be monitored. I had to send off urine samples and blood tests fortnightly for about 6 months before they were happy and discharged me. If your hormone levels don't drop or start to rise you may need further treatment but this is rare. A partial molar is much less dangerous than a full molar and your risk of needing further treatment I.e. chemotherapy is much, much lower. They will likely say you shouldn't try to get pregnant again until they have signed you off which could take a few weeks, could take a few months. But once you're discharged there shouldn't be any trouble getting pregnant - I've just had my first happy healthy baby less than 18 months after my partial molar :)

Even in the very rare cases where you do need further treatment it responds really well and the likely outcome is just that you may have to wait a little longer before it's safe to try and get conceive again. It's a miserable experience but not usually one that has long-term implications. There's loads of good information on the Charing Cross specialist centre's website hmole-chorio.org.uk which I found interesting and useful since my doctors didn't really give me much information directly.

I had a molar pregnancy back in 2003 and was under Charing Cross for it. Once I had had the operation to remove it, it was just a case of sending blood & urine samples to them every month (I went to the hospital blood suckers for that bit) for about a year. I wasn't allowed to fall pregnant again until the tests were normal again, which was about 12 months. I also had tests after each birth/pregnancy afterwards as apparently that can trigger the molar growth again.I didn't have to have chemotherapy but it was mentioned as a possibility.

Did you guys have normal periods in that time as well?

I had a molar pregnancy in 2006. I had a bit of bleeding at 8 weeks and went to the early pregnancy unit at the hospital. The doctor said she thought it was a molar pregnancy, but it took a couple of weeks to confirm it via tests. I think mine was a complete molar pregnancy i.e. there had never been an embryo there.

I had a D&C and then had to take blood tests for six months. This was via Charing Cross Hospital. I had the blood taken at my local hospital and also had it "spun" there before it was posted to Charing Cross for testing. I wasn't allowed to get pregnant in that 6 months. Luckily my HCG levels went down.

However, every time you get pregnant, even if it's for a very short time you have to do 6 months of blood tests afterwards. So I had a missed miscarriage at 12 weeks after my molar and had to do 6 months of tests and then I had my third child and had to do 6 months of tests again. Luckily the levels always went down.

With my molar I had positive pregnancy tests, nausea, no periods, but there was no embryo. I understand a molar happens when there is the start of a pregnancy or not, but the cells attaching to the placental wall keep growing. It can become a kind of cancer, which is why the monitoring is done by an oncology department at Charing Cross. Charing Cross will tell you the statistics for molar pregnancy. I was in the 50% whose levels go down within 6 months after a pregnancy. Some have to be monitored for another 6 months and some need chemotherapy.

This the website at Charing Cross for information
hmole-chorio.org.uk/

@Robgem81

Did you guys have normal periods in that time as well?

I bled for about 2 weeks after the surgery and then my periods returned as normal a couple of weeks after that.

@Robgem81

Did you guys have normal periods in that time as well?

I had normal periods once my body had settled down after the operation.

@ChillysWaterBottle @WitchDancer my periods have also done this. I was hoping that was a good sign that there was no HCG floating around still.

How long did you wait to hear from specialist centres?

I can't remember in all honesty. I don't remember it being that long, but the initial operation and consultant were at my local hospital. I remember Charing Cross being mostly postal rather than face to face. Whether that's still the case now I don't know

I am not sure if i am able to join this conversation. My wife is going through partial molar one and it's a hell of ride. She would rather stay ignorant than curious to leanr technicalities like I do visiting/psoting into this forum.

Her 12 week scan in august confirmed partial molar and she was offered D&C in week 15. Thanks to botched up management and possible mountainious fibroid that was sitting right at her cervix opening, evaculation was not 100% with awful lot of tissues left. She started with hcg level 35K after D&C.

Worse part is that she did not get peiods until now and so nothing got flushed out as it should have. Her ovaries have enlarged and it looks like periods and ovaries are in catch 22 situations. I feared that this persistent situation will need us going to charing cross one day.

By novmember, hcg level reached 7k and started fluctuating. Last 3 tests shows them at same or at slighty elevated levels. And as feared, she is scheduled to start her chemo sessions from this friday.

I have possibly looked up everything i can to manage what coming for us. It's just two things which bothers me if anyone can help.

Has any of you have missed periods for months after D&C ?
And how bad will weakness and sicknees be during chemo?

Hi @Jigar, I'm sorry you are both going through this! Your wife had to wait 5 weeks after diagnosis for a D&C, that seems so long. I hope she is doing ok it's an awful thing to find out you won't be having a baby and then find out it's a molar. She has a bit of journey in front of her. My period returned 4 weeks after D&C, it was fairly light and lasted 7 days. My second period was more normal. I haven't heard from the specialist hospital yet but they have my referral so I'm sure it will be soon.

Firstly, I am so sorry to hear about your loss. September 2020, at my 12 week scan I found out I had a molar pregnancy so I was booked in for a d&c the next week. Biopsies were sent to Dundee Ninewells, who confirmed a partial molar. Follow up monitoring consisted of bloods/urine monitoring every 2 weeks until I had 2 normal level results. I was discharged in the December and I fell pregnant again on the first cycle in January, I am currently awake doing a nightfeed with him.

@Jigar sorry you're going through this with your wife.

Some people find that the chemo doesn't affect them badly - someone that was having treatment at the same time as me was at work throughout. I felt completely floored by it - it was on a 2 week schedule with chemo every other day 4x and then 6 days off... by the beginning of the next set of treatment I was about emerging from the last, still very tired. The good thing is that if you feel sick, they have great options to treat that side effect - and you need to make sure your wife gets every thing that she needs to deal with the side effects.

I hope that she copes really well with the chemo and doesn't have bad side effects.

Many thanks for that @mistlethrush

Wife is at the charing cross. Completing the first round of 4x tomorrow and getting discharged. Showing no signs of obvious side effects whatsoever. Infact, her problem is quite the opposite, that she does not feel sick and still has to spend days away in hospital for no reason. She had a hard time passing time feeling all up and fine.

However, every doctor and nurse keeps telling her that it will get demanding along the way into the treatment. She feels fine to resume work but doctors keep telling her to take time off and to be prepared for fatigue and pain and eventually time off work.

This is so confusing to us at the moment. with no idea when or if intensive pain will begin in future. Can't really plan anything for the next 4-6 months isn't it?

@Jigar it all depends how quickly the levels go down... i found the most soul destroying time was the fact that I had to have another final set after levels had reached 0.

I didn't have pain (apart from the time they hit a nerve with the injection - that wasn't fun!) just absolute fatigue. First round it wasn't too bad - although by the time I had my last of the 4 injections I was sleeping quite a bit in the day as well as at night. I found the good thing was that after the first round I was at least just in for the injections - and then later on only the first one and I was allowed to take the remaining 3 home, store in the fridge and take them to the Drs to have... getting the Drs to book me 3 appointments in a set was another issue!!!

@Jigar - sorry, should have said - only real pain was due to mouth ulcers - they had stuff to help with that but they weren't good.