2nd trimester miscarriage - what next ?

[minnie2021]

Looking for similar experiences and how you coped** if possible.
We've just been through our third miscarriage, this time at 16+4, our previous losses were at 10 and 12 weeks. The consultant at the hospital has asked for bloods to be taken at 8 weeks after the loss. Did anyone have any blood clotting disorders diagnosed that led to positive future outcomes? I'm 37 now and was desperate to have this baby, just looking for a bit of light and hope amongst this darkness. Thanks in advance. xxxx

@minnie2021 I am so sorry for your loss. All MC is horrible but Second trimester is so hard as you are beyond the golden ‘12 weeks’ and feel ‘safer’ that’s it’s all ok. I lost my daughter at 20 weeks. They did tests and found nothing apart from a potential clotting disorder. With my next pregnancy I had asprin and heparin injections and had a successful pregnancy with a little boy.

The following pregnancy was hard, especially the scans but my hospital offered counselling sessions to help me through it.. have you been offered anything like this? It really helped me to talk about it.

Sending hugs xxx

@Honey2 thank you so much for your reply. I'm sorry to hear of your loss, that must have been devastating for you.
We have been assigned a bereavement midwife worker who has given us some excellent support so far. She rang yesterday to say that the first round of bloods were 'normal' not entirely sure what she meant by this?- I have to wait now to have second bloods 8 weeks post loss - was this the same procedure for you? Thank you so much again for your reply xxxxxxxx

Hi @minnie2021 yes same process- for a diagnosis of anti phospholipid syndrome (blood clot issues) they need to see raised anti cardio lipin levels in 2 separate tests. But if your bloods came back normal from test 1 it’s unlikely that is a problem for you. Did they do an autopsy on your baby? Did you decide to give him/her a name? Xx

If you are able I would recommend getting an appointment with Prof Siobhan Quenby at University Hospital Coventry. She sees people privately as well as those in her area (via referral). Look her up - she is a pioneer in this area and could be of help. Sorry for your losses. I have been through similar trying to have a 2nd baby which I did eventually do 3 yrs ago thanks to help from Prof Quenby. X

Thanks @Honey2 the nurse mentioned that there was no sign of infection in bloods but didn't mention anything else but it did make me wonder about whether this can rule out the blood clotting disorder . These bloods were literally taken the day I went in to hospital when they discovered there was no heartbeat. My absolute worst fear is that they won't be able to tell me why this happened.
Yes we named him Ben, after his Dad. We didn't have a post-mortem but a skin test; the baby had clear combined screening results for the trisomies but I guess this isn't diagnostic so this could still be chromosomal. Thanks so much for your replies xxxxx

@SaigonSaigon thank you so much, we will certainly do that. Sorry to hear of what you went through xxxxx

Hi Both,

Sorry to hear about both your losses, I miscarried my twin girls at 19 weeks had been at the hospital an hour before for a small amount of spotting and was scanned the girls look perfectly happy and no known issues.

I’m currently waiting for results back from the placenta however I had a phone call from an admin person to say I’ve been referred to the fetal medicine but they couldn’t tell me why ?

So they still have me going in on the Tuesday with the consultant and midwife for results and then I have the apt on Thursday with the fetal medicine.

I was holding on to hope of being pregnant by the girls due date to get me through this year but now thinking I may have a problem, did any of you get referred to fetal medicine ?xxxx

Hi @elsa777 I’m so sorry for your losses, your grief must be unbearable— thinking of you. I don’t have much advice specifically but what I would advise is that the best thing to do is to ask medical professionals about every intricate detail of the reasons for any referral. I’ve found that with this loss you lose all sense of control so asking any questions I need to, to be in the know, is so important. Don’t be afraid to question and question - hope this helps xxxx

I had a three miscarriages. Two first trimester and one second trimester at same weeks as you. It was really tough. I was so worried if something was wrong. We had the tests done and nothing came up. Though they messed up testing the baby so we didn't get those results. I looked into private treatments for nk cells etc. The NHS consultant said to go home and when ready try again and see what happens. I was pissed off with that advice as I felt emotionally drained and seemed like a gamble I wasn't prepared to take. However we did it and I now have a beautiful toddler. I guess for me it was just bad luck having three miscarriages in a row. My 4th pregnancy was healthy and no issues. I'm now so glad I didn't go down the private testing route as it would have been so costly and stressful. But I guess that's possible to say now. Please give yourself time to recover emotionally as it's emotionally exhausting and I really hope it all works out for you xx

Hi Op, I had a stillbirth this time last year, followed by a miscarriage 3 months later at 9 weeks, they think I prob have a blood clotting issue. For my current pregnancy (27 weeks) I’m on 150mg aspirin and clexane injections and so far so good. I’m 39, nearly 40, if that makes you feel better about your age. Best of luck xxx