Molar pregnancy: Tell me your story.

[LuluF91]

Hi,

Me again... I'm just looking for others who experienced a molar pregnancy to talk through it with me as when I've gone on to Facebook support groups they seem to be less than positive
Does anyone know when I get confirmation of diagnosis from the lab? I had the procedure to remove on Wednesday and afterwards was when he said that would be his diagnosis but needed confirmation.

Secondly, just where to go from here? I physically am pretty OK...in a much better state than I was in as my body had been trying to miscarry for weeks without success and just causing alot of pain. Emotionally things are not so good. I am grateful to have closure to it all, I am relieved i didn't have to terminate "a baby" as such. I don't mean that to disregard others feelings but it is what helps me not to crumble. At night though I just cannot sleep. I have alot of support but I feel very overwhelmed. I'm not crying day or night but I'm just in constant search of answers and information. The Facebook groups scared me with regards to the potential of chemotherapy if it was not fully removed.

Just I'd love to hear others experiences. Whether you are going through it or out the other side. It feels like this is going to be a long journey

Apologies I have copied and pasted this as I think I didn't have it under the appropriate topic. Hope I've not broken rules!

@MustStopSnacking28 I can see why you would be feeling this way, its hard since there is no real reassurance you can be given other than the scans and progress over time. I guess just take it one day at a time. I hope you can find some positives things to focus on .

When did you guys go back to work? I've been referred back to Sheffield. As 2 weeks on I'm still having intense sickness and my most recent blood test showed my hcg was 150,000.

I've been off for 2.5 weeks since the 12th of feb I'm at Sheffield today to discuss the way forward. I don't know whether I should go to back to work tomorrow or just go back on Monday

Hi @14down sorry you’re still suffering, I hope that Sheffield were helpful? I was actually off anyway as my dad died at the same time I had the MMC and I didn’t know about the molar pregnancy at that time. I definitely needed more time off though as everything came to a head at once. If you feel ok you could return to work but if you are very sick I would wait for a while if you can.

@Allnew2021 thank you, I have decided to book a private scan in a few weeks to see if everything is ok. I feel pretty rough (not as bad as with the molar) which I hope is a good thing but it’s hard to know after last time! Will just have to wait and see I guess...

@14down After my ERPC was signed off for two weeks and then it was half term (I am a teacher) so I had 3 weeks in total. I was physically fine by this point but I have found being back this last week and a half difficult at times (with still feeling emotional and stressed over waiting for more information regarding the molar diagnosis/follow up).
You should take whatever time you need off work, I'm sure your GP will sign you off for longer if you need it? I hope things went well at Sheffield.

I have received my first sample pack from Sheffield today so I will get that sent back this week.

@14down don't rush going back to work if you don't feel up to it. I had 3 months off... I work on the front line emergency services and didn't feel safe going back. Especially after 2 failed surgeries and a massive haemorrhage, I then caught covid. I'm sure your doctor will sign you off if needs be. Hope your all doing okay x

Hi all,

I hope you are all well.

I wanted to update you all after my last message and for any future people looking at the post. I had my first bloods and urine and a month after my MVA, my bloods were 3 and my urine 10! So I am already in the normal range. I have one follow up urine end of March and if all good, I will be discharged! My period came on Monday, so a month after the MVA surgery and today I heard from Charing Cross that my tissue was retested by them and confirmed it was a partial molar!

Ready to start TTC next month 🌈🤞🏻🙏🏻 wishing you all the very best and thank you for all your support xxx

@Busybee32 That is great news about your levels! Fingers crossed for a discharge in March .

I had my first sample pack from Sheffield and got my results back last week (they were very quick to contact me with it being my first result - 3 working days!). My levels are below the normal range which is great news. The nurse said that with it being a complete molar I will still be monitored for 6 months with fortnightly urine samples and a blood test at 12 weeks post ERPC. However, because my results got this low within 6 weeks is a really good sign and it is pretty much certain that I will not need any follow up treatment, just the monitoring.

Appreciate this is an old thread but wondering if there is any update on your journeys @LuluF91 @Busybee32 @14down @MustStopSnacking28

Im currently going through a PMP & struggling. First pregnancy.

Hello I am sorry you have been through this. I wasn’t aware that mine was a molar pregnancy for quite a while after my miscarriage so continued trying and got pregnant quite quickly after. They advised that this wasn’t a good idea because remaining tissue can be there but in my case it worked out fine and I have a 2.5 year old now. Look after yourself. It was a very tough time for me but I hope that you will have a happy outcome too

Hi @AnxiousPoster I am so sorry to hear you are going through this. It is a really difficult time and I remember being filled with such sadness and upset. I wanted to let you know that I got the all clear in the April and then fell pregnant with my son end of May. He is now 2. I did have him at 34 weeks and no reason was found. I do wonder if following the MVA whether my cervix was weakened. He is perfect and healthy, so all is good. 4 weeks ago I had my second son, 9 days overdue 🥰 In both my pregnancies, I was closely monitored and offered more scans and tests. I wanted to share this to let you know that pregnancy after a molar is possible and very positive and to just let you know, it seems crap now but things do and will get better. Things will get better and the fog you are in now, will lift! Sending you lots of love xxx

@Busybee32 @MustStopSnacking28 wow thank you both for replying to me and giving me a little hope. I am still in the trenches with this and as this was my first pregnancy I think I am grieving my future - I am worried I will never become a mother and incapable of having a healthy pregnancy. So thank you for sharing that there is hope! ❤️ especially when you are both on the other side of this and hopefully it’s all a distant memory.