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Miscarriage/pregnancy loss

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Recurrent miscarriage

8 replies

GinaG678 · 04/01/2021 11:34

I’ve had a late miscarriage (missed baby died 18weeks only discovered at scan)
And I’ve also had chemical pregnancies following this.
Been referred for tests but the waiting list is 9 months long. It’s just broken me. I can’t believe I have to go 9 months without knowing what’s wrong, if anything. They might see me and say can’t find anything so for you go. Meanwhile I’m wasting precious time as not getting any younger. I feel so infuriated that it’s all so hard.

Has anyone else been in this scenario? How do you deal with it? Did you try anyway while waiting? Go private? Or just wait and not try until seen? Thanks

OP posts:
GinaG678 · 04/01/2021 11:35

Should add had some tests after the late one. Baby was all normal as were all my bloods

OP posts:
Parsley1234 · 04/01/2021 11:36

Yes I had 3 miscarriages at 8/12 weeks I was seen at the John Radcliffe but cd find nothing wrong I had reflexology and it worked for me Good luck ♥️

twinkledag · 04/01/2021 11:37

Can you afford to go private?

GinaG678 · 04/01/2021 11:40

I’d imagine going privately would be very costly considering all the bloods/investigations etc? So probably not.
I just feel so desperate. Even if I knew that once I was seen they would find the cause and fix it, at least it would be hope. I just feel scared that they’ll check everything and it will all be normal and then I’ll have wasted time

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VenusStarr · 04/01/2021 13:14

I am so sorry for your losses ❤️ I have had 4 losses, all first trimester. The last one was tested and was healthy, no chromosomal or genetic causes found. I have had nhs tests but they found no answers and told us to just keep trying but we didn't feel safe to try again without more tests. The nhs tests are lupus anticoagulant, antiphospholipid syndrome and thyroid issues.

I'm seeing Dr Shehata privately at the CRP Clinic in Surrey, he mainly looks at immune factors for recurrent losses. I have been diagnosed with an overactive immune system and low vitamin D. It is costly but I'm now under the care of someone who hadn't told me its just bad luck (3 of my losses stopped growing at the same point).

Best wishes x

GinaG678 · 04/01/2021 17:35

@VenusStarr sorry for your losses too. It’s great you are now finding out something that could be causing it.
I don’t really know what to do as I feel like I don’t want to risk another loss and might go through all this waiting only to be told they can’t find anything. Or whether to try anyway and we might get lucky. The latter seems unlikely given my history :(

OP posts:
twinkledag · 04/01/2021 19:50

trytryagainblog.wordpress.com/

My friend had 6 miscarriages and now has 2 children. She blogged about it. Hope it helps. ❤️

HowLongTo2022 · 04/01/2021 20:04

So sorry to hear of your loss at 18 weeks.

I had multiple first trimester miscarriages. We were told not to try whilst we had tests done (this was a decade back so little waiting list but some tests took ages) but we kept trying anyway and turned up for our results 6 weeks pregnant so we got a tut and a scan. Worked out for us as that scan showed a heartbeat and it was a sticky bean. In our case they found no reasons for miscarriages, which isn’t uncommon for first trimester recurrent miscarriages.

I really feel for you. I remember still how all consuming it was and how alone I felt.
Personally, whilst a doctor would want to know about them, I wouldn’t think that having a few chemical pregnancies should factor into whether you do try or not whilst waiting for tests. Before these sensitive pregnancy tests, women would have just thought their period was late and I suspect chemical pregnancies where the egg gets fertilised but don’t embed or develop properly happens very frequently. My friend refused to test until she was at least two weeks overdue her period after a miscarriage but I never managed that... I always started testing 3/4 days before period was due.

All the best with it all. Take care.

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