2 x ectopic same tube

[extremity1]

Ok so just deleted my last msg by accident. V v annoying.

I'm currently having my second ectopic in the same tube 2 years apart. I have had 2 other losses and 1 dc (5).

Both ectopic pregnancies have been conservative management. Although there was damage to the tube during the last one. This was verified via scan with internal bleeding found. They did not operate the first around as my body was dealing with it and it was found very late after being misdiagnosed as a mc. Again this one seems to be resolving itself. Low hcg, tiny mass and no bleeding this time. Just pain. The pain is low but pretty constant with the occasional sharp pain.

I was admitted over night through a&e due to shoulder pain/numbness and not feeling right. Had a scan booked for today already. They kept me over night finally found me a bed nearly 10 hours later. Had my scan and they sent me home.

I feel awful. I feel like I'm wasting time and resources. I desperately would love another dc. But am terrified about it. What are the chances it happens again? Should I continue to try for another? Should I just give up and be happy? I know these questions are relative and opinion based. But please share your thoughts. Please be honest. I'm very very torn between logic and emotion. Thank you

You poor thing @extremity1
I’m just recovering from an ectopic after my first round of IVF. I needed surgical management. I’ve read on the NHS website that if you’ve had an ectopic then there is a 10% chance of another with subsequent pregnancies. It sounds like you’ve been incredibly unlucky! I’m scared of trying again (probably more IVF for us) but I’m going to just crack on because I really want a baby. I will insist on early blood tests and scans to check as early as possible. I know I’ll be really anxious though, and it will ruin the joy of having a positive test. Don’t worry for one minute about taking up NHS time and resources! I don’t know how I’d feel if I already had a child I’m afraid. I’ve got no advice but tonnes of sympathy for you. Sending love xx

Thank you for replying. Sorry to hear about yours as well. No one really preps you about that 1% chance. I'm a bit of a mess. My hcg seems to be dropping rapidly but no bleeding as of yet. I just want it to be over and done with now. More bloods will be drawn today

I still haven't decided what to do. Time will help I suppose. Thank you again x

I've had 2 ectopics both ruptured and lost both tubes. To be honest if I was in your situation with having 2 in the same tube and having been told one is damaged I'd request for it to be removed as the odds are you'll just end up with another one in the same location?

@ivfbeenbusy
I spoke to my Consultant about removing the whole tube with my ectopic (I actually had a partial salpingectomy as my ectopic was close to my ovary). He told me that if you remove the whole tube close to the uterus, this doesn't remove the risk of further issues. It actually puts you at future risk of cornual ectopic on the affected side which can be very difficult to deal with. He said if I was to have another ectopic he would rather it was in the remaining tube (that they could easily remove), than end up with a cornual ectopic. It seems that you can't fully remove the risk, which is very disappointing!

@bicyclesandbeyond

When my second tube was removed they also performed a stumpectomy to remove both "stumps" to the tubes so this would reduce risk of implantation in what's left behind - my surgeon said it would be incredibly low risk to have a corneul ectopic but I suspect that was because I had both tubes removed and IVF was my only option.

I was still at risk of a c section ectopic though but I'm now pregnant with twins via IVF that are in the right place 🥳

@ivfbeenbusy
How interesting, I’ve never heard of that procedure before. It sounds like it certainly did the trick for you! x

@bicyclesandbeyond

It was actually me who asked the surgeon to do it whilst they were operating as I read on some ectopic support groups about ectopics occurring in the stumps - it meant opening up the old ectopic scars though so my stomach looks like a particularly brutal game of noughts and crosses 🤣 - they just labelled it as a stumpectomy on my discharge notes so maybe it's a medical thing just to stick "ectomy" on the end of things as they also did an adhesionectomy to remove some of the scar tissue too

Sounds awful. And congratulations on your twins!

I keep getting reminded that there's a pandemic on and if I wanted the tube removed it would be classed as elective surgery (as they dont think it needs to be done) and it would take a very long time to happen. They have been good but I always feel like a slightly naughty child after I ask a question.

I have been reading that with ivf there's a slightly higher elevated risk for ectopic pregnancy. So now terrified of that as well.

It's a minefield of information and of course personal experience. I may call a private clinic for a consultation to get some idea of treatment available. I wonder if getting that treatment (forgot what its called) that clears your tubes is worth it?

Had my 6 or maybe 7 th hcg draw today. Fingers crossed for a massive dip.

@extremity1

Yes unfortunately that's true - my second Ectopic was from An IVF transfer in what I was told was a normal, healthy tube 🤷‍♀️

Absolute nightmare.

My hcg has dropped drastically to 33 so more bloods in 4 days and then hopefully I can be discharged.