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Miscarriage/pregnancy loss

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Immune/NK Issues - aka Pred Thread no 25!

999 replies

Eeviee · 19/05/2020 19:57

An introduction to this thread. It has been running for many years and has proved a saviour for so many of us who have suffered recurrent miscarriages as we go through this incredibly tough journey.

Discussions cover immune issues, NK (natural killer) cells, thyroid issues, PGS and many many more.

Welcome to the group no-one wants to be in 

Tagging people from the previous thread but please tag anyone else I've missed.

@KittyKatSmile @FrannyAnny82 @HoldingOn2Hope @Crystal2020 @Countrygirl220 @HarrietM87 @williteverhappen @Wishing5tar @hrtbrk2 @KtAgs @Gooe @peperethecat @zoe16 @williteverhappen @mezgaski @VenusStarr
@Ultra26 @ceebee21*@Luckyducky2 @weddinghelp1* @Hippo20

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hrtbrk2 · 02/08/2020 23:14

@Mini82 sorry to hear that - it's so tough, I really hope Dr S can give you some positive next steps x

Wireless77 · 02/08/2020 23:35

@hrtbrk2, it'd be great if you could inbox me. It won't hurt to take a look at least. At the moment I'm open to all suggestions and thoughts out there.

HoldingOn2Hope · 03/08/2020 06:57

@hrtbrk2 could I have some info too? I was going to make an appt with Melanie Brown Nutritionist but she didn't have any until sept. I know what you mean as I think I eat fairly healthy but I'm sure I don't 😬
@Mini82 sorry to eat your going through this :( I'm seeing Dr S today too so hopefully we both get some answers x

HoldingOn2Hope · 03/08/2020 07:01

@Wireless77 I'm so sorry 😐 I know it's just so heartbreaking, you start feeling positive when you're on a plan with a consultant and then lose hope when this happens. Be gentle on yourself and you will pick yourself up again and do what's right for you. Will your baby be tested? Xx

CATALYST2019 · 03/08/2020 07:51

@hrtbrk2 would you mind sending me any information you can about the healthy eating please, turned 40 in July so I would be really interested . Thank you so much xxx

hrtbrk2 · 03/08/2020 11:30

Yeh sure @HoldingOn2Hope no problem - rather than inbox it I might as well put it on here in case of interest to others then. I paid good money for the advice so hopefully it will go further by me passing it on! Haha!

Protein - do you have some sort of protein with every meal? For example if you eat cereal or toast for breakfast the answer is no. We don't get anywhere near enough protein which is not well known. Eggs, fish, some meat, beans, pulses and seeds are all the different forms of good proteins and we need to incorporate something from them into every meal and then also snacks. A minimum of 50g per day - so I now eat porridge with ground flax, chia seeds, fruit and a scoop of protein powder - it keeps me going for hours without feeling hungry or having cravings etc. So that's the main one - protein keeps you feeling full, stops you having sugar crashes and therefore helps in balancing bloody sugars and hormones. A good rule of thumb is to have a higher proportion of protein than carb with every meal.

Carbs: eating good carbs only - so brown rice, quinoa, wholemeal or rice flour pasta, sweet potatoes etc and not white carbs (white bread, white rice, potatoes, pasta) white carbs are all fast release carbohydrate therefore effectively becoming sugar in our systems and contributing to sugar highs and lows - good carbs are slow release so with protein contribute to balanced levels of everyrhing throughout the day.

Sugar - no refined sugar, so pure maple syrup is a good one to use instead of sugar, coconut sugar is another, fruit, things that have natural sugars rather than sweets and chocolate. This is def the hardest part - but once you remove refined sugar after a while (took me about 2 weeks) you stop craving it all together and it gets easier

Fats - good fats like avocados, oily fish, nuts, etc all have good fats and really good for fertility - the worst things are trans fats found in crisps and convenience foods.

Caffeine/alcohol etc minimised if not removed but we all know that one!

Greens - aim for 2 handfuls of leafy greens a day, for iron, folate and other good nutrients. I often have a smoothie with a spoonful of greens powder in or spinach or have a salad with my main meal for example.

That's the very short and general jist of it - it sounds a lot and it is, BUT I started it slowly and incorporated bits at a time (it's easier than you think once you start swapping things in and out) but the main crux of it and how it's works is that human beings were never built to eat the amount of processed foods we have in our current diets, bread, pastas ready meals etc all hugely over processed so our bodies process them in such a way that is detracts from the other things our bodies should do... that's why we have gluten and lactose intolerances, bloating, IBS etc. For example, if you eat cereal for breakfast and then are starving a couple of hours later, your body is at a low, it then over compensates by trying to balance these issues which takes away from other functions it carries out you then eat something quick like a biscuit or chocolate bar and it flies up again ... constantly battling to keep you in check, this takes away from all its other functions - this is why lots of ppl with PCOS fall pregnant naturally after changing their diets, because their hormones, blood sugars etc have been balanced so everything operates as it should .... so you ovulate correctly because your body hasn't had to focus it's attentions elsewhere. You produce the right kinds of cm at the right time, you digest food better so you don't have additonal inflammation causing fertility issues (which is what endometriosis is, nk cells etc ... all related to inflammation) If that all makes sense?

It's really hard to put it all in once single post as I had weeks of consultations about it so there is a little more too it (the following link also may help to break down some of the other bits I've not detailed

www.pinnaclehealth.org/wellness-library/blog-and-healthwise/blog-home/post/fueling-fertility-how-nutrition-can-improve-your-chances

Before I did it it took me over a year to fall pregnant - then when I started it it took me only 3 months, then 5 months after my worst MC. I always also used to have lots of period pain, clotting etc - when Im following it I have literally zero pain, no cramping, nothing and I believe also that because of this it is keeping my endometriosis under control... so any questions just give me a shout but I just wanted to pass it on because I feel really strongly that this is advice we should get from our health professionals before they just blithely pass us off to fertility centres and we undergo, very often, unnecessary and expensive ivf procedures.

Hope this helps and doesn't overwhelm - my consultant told me if you can do it 80:20 that's enough to have it make a difference - and any changes you make will have an effect on the eggs/sperm that we produce in 3 months time xx

hrtbrk2 · 03/08/2020 11:31

@CATALYST2019 Just seen your post lovely - I've popped in all in a long ramble for you all below! Smile hope it helps x

Wireless77 · 03/08/2020 11:50

Many thanks, @hrtbrk2! @HoldingOn2Hope, yes, awaiting test results as we speak. If it's chromosomal, at least we have an answer and there was nothing anyone could have done.

KtAgs · 03/08/2020 12:00

That's so helpful @hrtbrk2. That approach to food is fairly similar to Joe Wicks' plans and I might bite the bullet and do his 90 day plan.

So interesting what you were saying about balance and CM etc. I've been so much healthier this month and I've really noticed a difference in my CM and I ovulated 4 days earlier on my ovary that usually is day 15 so I really noticed a difference. Can I ask what protein powder you use? I've tried getting some pea protein and hemp protein powder but both have fairly strong tastes so are only good for like curries and savoury sauces rather than smoothies. Xx

CATALYST2019 · 03/08/2020 12:12

@hrtbrk2 thank you
What an amazingly lady you are for sharing this with us all
Wishing you only positive things xx

hrtbrk2 · 03/08/2020 13:04

@KtAgs yeh of course - I've used 'the proper food project' who do a chocolate one (with cacao also a really good fertility food) which is organic and I've also had this one which I believe my husband gets from amazon - a good general rule of thumb is go to organic where possible as it's whey protein you want to avoid all the estrogens found in bovine dairy products (so when eating dairy always go full fat and organic if possible) xx

@CATALYST2019 you are more than welcome - this road is long enough we have to help each other where we can!! Xx

@Wireless77 no problem - good luck for test results, keep us posted xx

If anyone wants any recipe ideas for getting good proteins / carbs in to diet let me know as it's not easy at first to think what to do for the best xx

Immune/NK Issues - aka Pred Thread no 25!
hrtbrk2 · 03/08/2020 13:06

@KtAgs that doesn't surprise me - since I got all of this information a few years agai I've seen it more and more - it's almost as if the penny has dropped in the health world and as a lifestyle change it's actually something you can do permanently rather than fad diets and unreachable targets - because I for one don't have the will power for all that!!

hrtbrk2 · 03/08/2020 13:07

This is a good one for fruit smoothies

Sorry to clog up the feed - I shall be quiet now!! Xx

Immune/NK Issues - aka Pred Thread no 25!
HoldingOn2Hope · 03/08/2020 13:39

@hrtbrk2 thanks so much! This is pretty much what Melanie brown suggest and I've done my own research and trying to follow a Mediterranean diet and was doing so well for a few weeks and then got distracted with all the biccies and cakes in the supermarket. I have cut down on junk food and use coconut sugar to. We generally don't eat white bread, pasta, rice unless I fancy paella or orzo. It's so dam hard but I tell myself some changes are better then none.
I'm definitely taking up your brekkie idea as I struggle for protein at breakfast time so adding protein powder to oats is a fab idea! I was told by an Ayurvedic dr to avoid low fat milk/dairy so try to have small amounts full fat. And then there's days when I think so and so eats crap and has banged out a few babies and that's when I'll end up in the naughty cupboard 🙄

Recipe ideas are welcome too pls :)

HoldingOn2Hope · 03/08/2020 13:41

@hrtbrk2 I buy the Arla high protein yogurts for breakfast and have it with fruit as I eat a lot more veggie food than meat so eggs aren't always an option. I eat them but only because I have to and not because I like to.

KtAgs · 03/08/2020 14:22

I hear you on the whole comparing ourselves to others who have eaten a terrible diet before getting pregnant @holdingon2hope. I do the comparing a lot and I wish I didn't as it makes me so cross. I try to stay off social media for that reason too.

I second the recipe ideas! I've got a few Joe Wicks ones that are quite good and happy to share.

HoldingOn2Hope · 04/08/2020 14:41

Hello ladies,

My appt with Dr S went ok yday 😬 he did start going on about the lab rejecting the testing as I forgot to update Geri on Friday that it was false info. So when I told him he just looked at me with that 'look' and said 'ok let's move on' although he has insisted he wants the full report sent to him. My nhs consultant telling me it's normal or abnormal won't be good enough so I've got to chase for a full report once results are sent. He's moving me on to hydroxy and pred and has basically said let's see what happens. What are the side effects with hydroxy? I just feel a little nauseous and irritable but that could just be me 😆

HoldingOn2Hope · 04/08/2020 14:43

@KtAgs I need to look into this Joe Wicks plan I might do it too. It's so hard to eat healthy especially when what we are all going through mean we have crap days and crap days mean chocs biccies and all things rubbish!

hrtbrk2 · 06/08/2020 14:44

@HoldingOn2Hope @KtAgs oh my, I am with you sisters! The people who smoke, drink, are on strong pain killers or meds, eat crap and drink like fish and 'woops' got pregnant - but, I've learnt along the way that that kind of anger and annoyance only affects me negatively not them - so, my journey is different, I will have to work harder, but I will also know an appreciation and love when it happens that none of those people will get to experience - that's how I look at it, if only to save me sanity!

Just in the waiting room at dr S for follicle scan, fingers crossed for some decent follys!

Ps I saw your notes re. Recipes - I'll pop a few bits over that might help shortly! xx

KtAgs · 06/08/2020 15:11

Good luck for your follicles babe. I'm rooting for them 💪🏽 @hrtbrk2.

And yes - trying to be positive about these things really helps. Negativity can really take over x

HoldingOn2Hope · 06/08/2020 15:44

@hrtbrk2 Goodluck for today's scan! Hoping those follies are nice & ready :)

hrtbrk2 · 06/08/2020 17:11

Oh ladies - I always think things can't get any worse and I'm always proven wrong.

Endometrial chats grown to 5cm (likely. because of taking progynova which can aggravate cycle because it's estrogen, none of which I was told was a risk when I started taking them) he therefore couldn't see one of my ovaries because of it and no dominant follicles on the other - abandoned cycle and won't go any further until I've had surgery. Waiting list with the nhs could be months and to have it privately though the clinic he said he had no idea how much but a minimum of £3k. OH is ready to start the adoption process as after 6 years I don't think we can take any more or wait any longer or put any more thousands towards it ... aside from each of my miscarriages this might be the worst day of my life - I'm gutted x sorry not to be one of the positive stories on here guys x

hrtbrk2 · 06/08/2020 17:54

*cyst not 'cycle' or 'chats'

VenusStarr · 07/08/2020 08:52

Oh @hrtbrk2 I am so sorry to hear this. It is a big shock and devastating for you ❤️ sending lots of love xx

Jellystar23 · 07/08/2020 10:04

@hrtbrk2 I’m so sorry to hear your news! Stay strong, be kind to yourself and take some time to come to terms with your news. Sending you a massive virtual hug ❤️