Recurrent miscarriages

[Vlcky90]

So... it’s been a while since I’ve been on here... I had my first miscarriage (awful experience and appalling treatment) on the 11 January 2018 at 12 weeks. Had my second miscarriage July 2018 picked up on an early scan at 9weeks 4 days; hyperemesis on both! After over a year trying I finally got pregnant again, turned out I was ovulating later than I thought when I started using ovulation kits... then... 21 April I miscarried again at 5 wks 2 days.

I’ve now been referred for further tests .... only to be told I have to wait a minimum of 6 months because that’s the waiting list and on top of that’s it’s going to be longer because of covid. I know getting pregnant with this isn’t a good idea but when you want something so bad it seems to outweigh logic. I was told to go on the pill until I start the tests.... I’m so confused about what to do :( I could wait 6+ months for tests and they could find nothing .... I could try again and lose again and on top of that probably put more pressure on services that I know have probably got lots of staff off or moved to other departments. I feel selfish because I want them to just sort me out whilst all this pandemic is going on but every day that goes by is another day not knowing if I’m ever going to have a baby.....

It just all really sucks :( I just wanted a rant really. Any advice on anything I can do would be greatly welcomed.... It would be good to know if people’s experience of testing after recurrent miscarriage in the times before covid 19 too; anybody have any good news stories, what type of tests do they do, anybody still trying .... I have nobody who’s been in this situation to reach out to, have read miscarriage association a million times ... can’t afford private treatment and all my hormone blood tests are apparently normal ...

Praying for a miracle

Hi, I am sorry you are having to wait such a long time it’s awful and I fully understand the wanting to know ASAP. I have had 3 miscarriages over the course of 18 months (all at 10 weeks), I went to an NHS specialist and he was great, they said the waiting time was 3 months but I got seen in 8 weeks and I had lots of blood tests, scan and swabs done. They found out I have factor v Leiden and that it may be the cause of the miscarriages, they couldn’t say for definite though. I have since read it is a major part in lots of women’s miscarriages and at least gives me an answer (at least I’m telling myself this is it).

Lots of women have the blood tests and don’t find anything but there are women with different clotting issues not picked up on the nhs tests and people advise taking low dose aspirin as soon as you find out you are pregnant. Progesterone and high dose folic acid are advised after 3 miscarriages in a row to.

I hope this helps a little and you can get seen soon, take care.

Thanks flowers245. I’m sorry to hear of your losses, it’s just so hard and I can’t seem to detach my feelings even though this time I tried to. I hope that because they have found a potential reason. With you it hopefully means that they can treat it and you’ll get your baby 🤞

It really is rubbish, I work for the nhs myself (not a brave front care worker I work in HR) so totally understand why they are stopping things it’s just so hard :( I hope I don’t have to wait 6 months + I took low dose asprin on this pregnancy :(

I’m think I’m going to wait a couple of months and just try my luck again while I am waiting and hope that covid has calmed down 🤞

Thanks for you help

I'm so sorry @Vlcky90 it is really shit. I was lucky to get tested after 2 miscarriages, partly due to my age but we are on the fertility pathway too so my consultant wanted to get me tested before we tried ivf.

The recurrent miscarriage clinic were lovely but all my bloods are normal, so we were sent away to continue ttc and I could have an early scan next time. The only thing that was raised was my thyroid (only slightly) but they've put me on levothyroxine and it's on repeat prescription now for 6 months.

I did conceive naturally again this year but miscarried early February - I'd only been taking the levothyroxine for 2 weeks so coincidence I think.

I'd just started private nk cells testing at Coventry hospital, but my first biopsy was normal, my second was cancelled due to covid. I'm convinced we're not going to find an answer, so we've resumed loosely ttc until clinics reopen. I'm going to take aspirin if I do conceive - both my fertility and rmc consultant said it will do no harm. I'm also going to ask my GP to prescribe progesterone - the rmc said I need to have 4 mc before they'll offer me that.

I'm sorry you're in this situation ❤️ xx

@vicky90

Sorry you are going through this

I'm under the care of a recurrent miscarriage clinic and I had to wait 4 months for the appointment which is standard in most areas so 6 months isn't too bad considering the situation at the moment

If I'm honest I found them pretty useless - don't want to upset you but please don't pin all your hopes on them finding a magical answer. They'll run a few standard blood tests - blood clotting thyroid etc and then wave you off with a "call us when you next get pregnant and we'll see you at 6 weeks" by which time it's probably too late to make a difference

They aren't interested in progesterone levels, NK cells, or testing for sperm fragmentation.

All these tests however can be done for a couple of hundred pounds by a local IVF clinic - in the end we went down this route as didn't have any confidence in the recurrent miscarriage clinic x

I am sorry you tried the aspirin and it didn’t help @Vlcky90, maybe if you contact your doctor and ask if you could get progesterone pessaries as soon as you are pregnant and high dose folic acid & vitamin d? How much aspirin did you take, my specialist recommended 150mg a day.

I’ve heard of lots of women trying steroids to, worth looking into? Also, maybe worth asking your dr to check thyroid function/ vitamin levels?

I really hope you get some answers, no one knows what it is like unless you have been through it. Take care of yourself :)

My miscarriage clinic wouldn't proscribe aspirin or progesterone or steroids I have to get them from my Ivf clinic

Thanks for your messages everyone. It sucks to all be on the same boat but it’s really helpful hearing peoples experiences. I was only on 75mg asprin because I wasn’t prescribed it I just read about it and started taking after I told my go that’s what I was going to do. They said it would do no harm so I just carried on.

They have done some blood tests on me but tbh I don’t fully k ow what they have done, they just said female hormone levels have been checked but they done them the day after my miscarriage which seems strange to me because surely they would be a bit out anyway.... I don’t know.

I think I’m just going to try again .... I can’t keep waiting for some miracle answer or for covid to go away when that could be another year, I may ask about progesterone I’ve heard quite a few people say that.

I contacted a private clinic but they said they aren’t doing anything because of covid 😕

They have said I’m not high priority until I’m 35 or over and I’m 30 atm so I guess all I can do is keep my fingers crossed.

wishing for rainbow babies for us all 🤞