Recurrent miscarriage

[Softscoop35]

Hi

Ive been referred to the recurrent miscarriage clinic for having 4 miscarriages consecutively.
In short 4 pregnancies, 4 losses, (one of the resulted in my 4yr old son but he was a twin)
Im currently just going through a MC at 5 weeks 😔

I was just wondering how long it took from your referral to 1st appointment?
And how long before testing and results were given.
I have to have fertility treatment to get pregnant and im hoping to do Embryo transfer as soon as possible (earliest will be around Fwb next year)

Thanks

Anyone.....

Hi @Softscoop35

So sorry your in the same boat as me with recurrent miscarriage.

My last miscarriage was measuring 10 weeks. I had my ERPC 3rd of September. From this I waited 6 weeks and got 9 blood tests.

The wait was for all levels to normalise.

The bloods were taken on the 14th of September. Testing done on my erpc was done badly so we were offered genetic testing on both of us. Got this test two days after the 14th.

All results are sitting waiting for me but I am told because of the waiting list it will be another 5 weeks or so before I get a letter. Then I'm to make an appointment so dear knows when that will be.

It's a long wait in my case but I hope it isn't as long for you.
Although any length of time feels like a lifetime when waiting for answers.

Let me know if you need any more info etc
X

Sorry bloods were taken 14 October. *

My RMC ran every other week for an afternoon and from referral by the EPU I think it took about 7 weeks for our first appointment but that included Christmas that year. I got the results 4 weeks later and was already pregnant again but lost it soon after.

There’s a real postcode lottery to recurrent miscarriage treatment, I was lucky that my consultant is obsessive about “curing” it as he has his wife suffered losses too. In 16 years of treating women he’d had 3 not go on to give birth to a take home baby. In my 6th pregnancy which gave me my DD I took a huge cocktail of stuff despite no diagnosis for my losses and neither he nor we will ever know what did the trick, he threw the kitchen sink at me based on an idea that he couldn’t evidence about the reason.

He’s not the only incredible doctor working in the field and the research on miscarriage is developing all the time so I wish you every success. There are a couple of centres of particular expertise and I understand you can get referred to them by your GP depending on where you live. See how the referral you’ve been given goes. My consultant works with women who are conceiving with ivf as well and the tests should be the same. I was fortunate to be able to conceive naturally but getting them to stick was a whole other issue.

My recurrent miscarriage appointment took 4 months between referral and seeing the specialist.....

To be honest i found it all a bit of waste of time - they only do blood tests looking for "common" issues - blood clotting, thyroid etc
They aren't interested in NK cells, karyotyping, sperm fragmentation or even looking at progesterone levels! You get told to ring in when you next get a BFP and they'll see you at 6 weeks pregnant which If the issue is progesterone it's too late

I moved onto IVF and my recurrent miscarriages is clearly a combination of poor egg quality and chromosome issues as we did a round of PGS with IVF and all our embryos came back with chromosomes problems. My IVF clinic is much more supportive than the the NHS clinic - when I've managed to get pregnant naturally between. IVF cycles they tried everything they could to try and prevent miscarriage x

It really depends where you are .. from referral to my rmc appointment was about 2years .. I had already given birth to my son and was back at work after maternity leave. I went back to work when DS was 6 months. So it was at least 18 months from the referral as my 3rd recurrent miscarriage was in the April before we found out I was pregnant with ds in July. I went privately for the pregnancy with him with a dr specialising in fetal medicine who started me on aspirin and had close monitoring- also ended up on high dose folic acid, iron tablets and b12 injections. Apparently I would be on higher rate aspirin and high dose folic acid from the beginning of any future pregnancy.
Good luck

Thank you all...

I am from the midlands and luckily Dr Quenby (who is highly recommended in the miscarriage world) is based at my local clinic to where i have had IVF.

I recall being on aspirin on my 3rd pregnancy to which i had my son (as ive said, he was my only successful pregnancy but we still lost his twin) and ive had clexane on the last 2 pregnancies also.
Ive had 2 chemical pregnancies and i just cant deal with another.

On the flip, due to many reasons, money and OH age, we cant wait months, let alone years to do these tests, especially if only 50% of cases, they find a cause. I may not tell the clinic about the referral and hope that i get an appointment before my FET is due to start.

The other pickle i am in is that we really do not want a multiple pregnancy, however, clearly i have issues with pregnancies and i would like to maximise my chance of staying pregnant. So i have the mindset of transferring 2 embryos next time, in hope that i have better odds of actually having a baby at the end of it.

The problem is, EVERY time ive had a blastocyst (day 5/6) transfer.... i have got a BFP. Every single embryo has stuck... (including the chemicals) so i have a good chance of both sticking next time.

Im really torn on what to do

Hi OP
I’m watching your thread with interest as also have recurrent miscarriage (inc with ivf).

With regards to whether to transfer one or two embryos - is it just a case that you have a number of frozen embryos left to transfer and can either put them in together or separately? If so then then it really depends on how strongly you want to avoid a potential multiple birth and also how you are funding treatment / your financial situation. As the odds of success are cumulative and someone with two frozen embryos left has a higher likelihood of having a baby with two separate transfers rather than a double embryo transfer, there is an argument for putting them back separately. However if you are self funding separate cycles (ie not on nhs or a self funding package inclusive of all embryo transfers) then cost per transfer will also be a factor. The embryos are the age as per egg collection so I wouldn’t factor age into the decision too much. Sorry just seen you said ‘OH’age.....I still think age is unlikely to be the deciding factor. I’ve probably just clarified what you already knew OP but best of luck deciding!

Hey...
Thanks for the reply.

There are so many factors in this..

So, mainly, i dont want to drag this out any longer... either our family will be extended, or its going to be a family of 3. I just want to know and put it all behind us, whatever the outcome.
The reason why i want 2 back is because, every blastocyst i have had transferred, i have had a BFP. Even with my son, i had 2 transferred, both stuck. Only, with every pregnancy, ive also had a loss. So my thinking was that if i had 2 transferred, 2 stuck, that if history did repeat itself and i dis suffer another loss (assuming i got a BFP and both stuck) that i could still take a baby home at the end of it.

As for the age, my age isnt a factor but my husband is a reasonably older than me. So this is why we dont want to be hanging this out. I have said in my head by December 2020, i will know our fate.
We really dont want twins. It means new house, car no holidays and im not even sure my husband could handle 2 to be honest...

Ouch, in that last sentence, ive just answered my own question
Realisation just whacked me hard in the face.....