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Miscarriage/pregnancy loss

5 miscarriages!

30 replies

jadew0108x · 04/02/2019 23:32

Hi, so... I've now had 5 miscarriages...

And The hospital have advised me if all my blood tests come back fine then there's nothing else they can do for me.. which is very disappointing and upsetting.

Has anyone else been through this? I feel like it's going to keep on happening to me. Is there anything I can take to prevent this? (Other than folic acid and aspirin as advised by the recurrent miscarriage consultant).

Any advice is appreciated I feel like I'm at a dead end and ready to give up!

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charlotte0808 · 19/07/2021 10:25

I asked about the dr quenby and I had a phone call back that I have to get funding from nhs Wales as it's in England so dr kumar said about the Tommy trial so takes quicke me as she will sort it all out for me x

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charlotte0808 · 19/07/2021 10:26
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Beaky1234 · 19/07/2021 10:33

Hello - I'm new to this thread, but sadly not new to miscarriage. I've had 5, 2 MMC (8 weeks) and 3 "chemical losses" (5weeks). I've been under Proff Quenby in Coventry since March this year, I've been through the first part of her trial but sadly have just had another loss. The referral to appointment happened within 2 months. She is great and knows her stuff. It's so frustrating when everything comes back negative, but clearly somethings not right. I've just organised a follow-up telephone call to ask to explore NK cells etc as this is not tested as part of the clinical trial.

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Amy00 · 19/07/2021 11:03

@charlotte0808 I'm sorry about your losses, this is such a shit journey. Yeah I was worried about progesterone masking a mc but was cautiously optimistic this time as we saw a heartbeat at 6 weeks and again at 7 weeks, and we had never got as far as a heartbeat before. Sadly it stopped shortly after the 7 week scan. It has also been sent off for dna testing. I'm under the local recurrent miscarriage clinic on the NHS but they've done all they can and it hasn't helped so now I'm looking at my options. Thanks for the link. I think I need to get involved with these specialists like dr quenby.

Hi @Beaky1234 I'm sorry to hear about your losses as well. It's so unfair. That is interesting to know that NK testing isn't part of the trial. What does the trial involve?

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Beaky1234 · 19/07/2021 12:19

@Amy00 You have to wait a full cycle then you have a biopsy under local of your uterus (also known as a scrap) they test this for inflammation or endomitritis, if you are positive for this - which I was, they enter you into the clinical trial and you get randomly assigned to doxycycline or placebo. You then have another biopsy the following month but don't get any results for this as it's research only. You have bloods done also before starting. You are given pegesterone and told to start trying after last biopsy. It's been worth doing as you feel you are helping us understand more and trying to help future women not have this pain. Also Proff Quenby takes you under her clinic so you can have telephone calls to discuss concerns at any point. I would recommend Tommy's, they are doing lots of good work.

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