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Miscarriage/pregnancy loss

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Recurrent Miscarriage with NO LIVING CHILDREN

17 replies

Getintogear963 · 12/01/2019 21:07

Hi ladies
Do any of you have similar issue to me, suffering recurrent m/c (x6 plus 1x failed IVF) with no existing living children?
Think I’m at the give up point tbh 😞
Would be keen to hear your stories.
Thanks xx

OP posts:
Getintogear963 · 12/01/2019 21:10

To add. I’ve not gone into detail but I’ve had every test under sun. No real reason why it’s not happening for me and I’ve been advised that I can keep going if want to. Tried supporting meds (many) with a each pregnancy. Failed.
I’m 44 and been trying since age 39.

OP posts:
coppercolouredtop · 12/01/2019 21:23

Hi Lou
I know you probably want to hear from other women who are in this position and childless but wanted to say I so sympathise- I really wanted children with my partner who I didn't meet until I was 42. I got pg at 44 but lost her due to disability at 14 weeks . It didn't happen again for me and I feel like something is missing thobi do have children from a previous relationship though they are well and truly grown up and with their own lives.

I just didn't want to read and run. Are you taking anything for egg quality?
I'm 46 now so probably well past it. - but even then I haven't completely given up. Good luck for a sticky x

Getintogear963 · 12/01/2019 22:40

Hi coppercolouredtop. Bless you, thanks for your message. I’m so sorry for your situation. Don’t give up if you still have the courage to go on. Like a doctor once told me “the time you definitely won’t have one is when you give up”. Women can get their miracle at 46,47,48 and even older xx
Yes tried various egg quality vits as advised by many experts in the past. Included CoQ10 and another one (some white powder with water, can’t remember name). I’ve also tried steroids, aspirin, clexane, progesterone plus more along my entire journey. I’ve honestly tried everything and had laparoscopy/ MOT / tests etc. Plus I took egg quality meds when I did the IVF.
If I ever pluck up courage to try again I’m just going to go for it totally naturally and not take or try anything. I’m at the point now that if it’s meant to be then it will.
Me and hub have considered adoption and not ruling it out. I’m already lucky to have 2 step children though so may just leave it at that.
I’ll post back here if my journey changes.
I wish you all the best and like I said, if you’ve got the will and courage, then do keep going. Wishing you all the best with whatever your outcome xx

OP posts:
MsJuniper · 12/01/2019 23:07

Hi Lou

As with the other poster my situation wasn't identical to yours but I did have 6 mc so I do understand how difficult it is to go on. I wondered if there had been any pattern? I had my first 2 at 9w which my body just rejected for no apparent reason (scans at 8w ok) and then 4 early ones (5-6w) which had possibly not implanted properly. I had an endo scratch as part of a medical trial and then had a successful pregnancy from my next cycle after that. You may have had this procedure as part of your IVF but if not then it might be worth considering. It was like having a slightly more invasive smear and is supposed to help with implantation. I was almost 42 when I had my baby.

I had also followed advice for egg quality and took aspirin which it sounds like you are all over already.

It's such a cruel thing to go through. I wish you all the best.

jessstan2 · 12/01/2019 23:12

That is so sad, op.

In your position, I'm pretty sure I'd give up and concentrate on something else. I've known childless friends who have had interesting and fulfilling lives and done a lot of good. For them it was as if one door closed but another opened.

Wishing you every good thing for your future Flowers.

teacher84 · 26/01/2019 17:14

I've had three. One many years ago and two in the last 8 months. Been referred but awaiting an appointment. Had a hysteroscopy after the second one as ongoing bleeding lead them to believe I had a polyp. I didn't. Any tips or advice out there would be hugely helpful. Everything I read seems to suggest that tests very rarely show anything and even if it does, they can't do very much. Life feels pretty hopeless at the moment. Stuck in a should we try again and can I bare to go through this again! Some of tests say 12 weeks apart. Everything just seems like an eternity! Help! X

LASH38 · 26/01/2019 17:28

I’ve had x5 miscarriages, all IVF conception.

My need for IVF was not miscarriage related, it is a separate issue and I cannot conceive on my own.

IVF plus PGD (embryo testing) uncovered that between my husband and I we have a chromosomal issue, our embryos have always looked perfect (AA grade, lots of blastocysts) until miscarriage/testing.

So with age I’d suggest IVF and PGD.

Re all the other drugs such as aspirin cleaner steriods intrallips, I’ve had them and still miscarried.

LASH38 · 26/01/2019 17:30

I should add that I’m late 30s currently heavily pregnant with that IVF PGD cycle after TTC for the past decade.

teacher84 · 26/01/2019 17:42

Lash38 - is your reply to me?

Brunilde · 26/01/2019 17:57

I have had 6 early miscarriages and 3 failed IVF cycles. For most of my journey I was classed as unexplained. There was no obvious cause and I'd had every possible test. I was also given quad therapy which is clexane steroids aspirin etc. Each time I would miscarry between 5 and 6 weeks. Could never see anything in a scan as they didn't develop properly. With each IVF cycle I had a good number of eggs retrieved 16/17 however did not get any good quality blasts. They did put back some poor quality ones which ended in miscarriage and had none suitable to freeze. After a cancelled cycle due to OHSS concerns they told me I have PCOS. This had not been diagnosed previously as although I had ovaries typical of it, I had no other symptoms eg weight hair etc. After the last failed cycle our doctor suggested egg donation which made sense as the poor embryo quality pointed to poor egg quality which can be caused by PCOS. I am currently 8 weeks pregnant from our egg donor cycle and am feeling optimistic for the first time as this is the furthest we have ever got. Scans etc look good and had great quality blasts including some frozen. I know this may not be the answer you were looking for but I'm now confident we made the right decision to use donor eggs as the contrast between how well this cycle went compared to my own eggs is amazing. In hind sight I think it would have taken a miracle for a successful pregnancy with my eggs. You may not yet be at the point to consider other options but if you are it might be something to think about.

teacher84 · 26/01/2019 18:16

Thank you, Brunilde. All have been 9 weeks, last one had a heartbeat at 7 weeks and was attached properly. Others, we didn't have scan. Haven't had any sort of extra help as yet (don't understand half of the jargon people are using, but unfortunately I'm sure I soon will), but worth knowing where the journey may take us. Feeling quite hateful and resentful of others who seem to have everything easily at the moment. I guess that's just part of the healing process. X

Brunilde · 26/01/2019 18:27

Yeah I haven't got past that feeling yet. In a way this seems too good to be true after so long so whilst optimistic I still get that jealously of people who find it so easy. People at work were discussing timing it so they had a September baby and methods to get a boy etc. I was just quietly raging that they get to be so naive that things like that are even a consideration. All I want is a healthy baby, and if I get that I will feel like the luckiest person alive. I just keep reminding myself that they don't any better and all the comments which feel so personal al and hurtful are never meant in that way as they don't have a clue what I've been through.

LASH38 · 26/01/2019 18:46

@teacher84 oh my gosh, no my post was a general message to the OP as she had already mentioned IVF, not to you directly.

It’s a tough one, we went through the recurrent miscarriage investigations and I agree, science hasn’t really caught up to give any answers there.
We both found it difficult to keep going but I actually think it is braver to stop and felt this way for a few years.

The emotions are not unusual, we had a lot of therapy and still even now have difficulties with those who have found it easy. I’m happy for them but a bit bitter as to the years of heart ache we experienced and what it did to us individually and as a couple.

@brunhilde I wish you all the best, 8 weeks is brilliant I still remember the climb of day by day, week by week with all of my pregnancies.

It is scary. I am still in shock and find it surreal, unfortunately with weeks to go I’m a bit paranoid about things going badly and at late stage and how I would deal with that.

Anyway, this thread is about recurrent miscarriage and I don’t want to derail, I just wanted to explain what seemed to work for us.

LASH38 · 26/01/2019 18:50

@teacher84 I’ve just re read my post, advising IVF PGD would be a leap frog, no that advise was not to you.

Re time and investigations, it does depend on how old you are? If late 30s I would think about going private for reproductive/fertility investigations so that if there is an issue it is diagnosed quickly.

If mid 20s/early 30s then you do have time. I would stay as healthy as possible and keep trying while pestering the docs for investigations etc.

The waiting is excrutiating. I cannot say I ever found a solution for that.

teacher84 · 27/01/2019 16:53

35 in April! X

missmarry · 27/01/2019 18:54

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LAURAPAX · 04/01/2023 00:13

Realise this is an older post but keen to hear how you all got on? Hope everything worked out well whatever way that looks. Xxx

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