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Miscarriage/pregnancy loss

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Medically managed failed? Not sure on advice given to me?

8 replies

Hellofreckles · 28/02/2018 15:29

Found out on the 20th at my 12 week scan (though I believed I was more 10-11 weeks due to irregular periods and knowing the dates partner and I possibly conceived and had an early scan that was meant to be 6 weeks but turned out to be 4.5) was told baby had no heartbeat and was 9.5 weeks. No blood tests done to check hcg levels. No signs, still felt pregnant so was utterly shocked and devastated (understatement!) this was my first pregnancy.

Booked in yesterday (27th Feb) to have medically managed miscarriage. Was an uncomfortable stay and just wanted to go home after taking the meds. No follow up scan was offered before taking place and no blood tests to check hcg. Had 4 tablets orally at 11:00am Got cramping discomfort that increased but was not ‘painful’ just uncomfortable. Left hospital at 430pm after no bleeding happened. Got home pooped and had a little bleed, like a slightly heavy period no clots - I checked. The bleeding then tapered off considerably and was in pain by then but that tapered off eventually. I woke this morning (28th) with no cramps no bleeding, it all just stopped!

Anyway when I’d left the hospital yesterday they said to wait 3 WEEKS!!!!???? Or come back if I start feeling sick!!!! Shouldn’t they of offered a second dose or offered vaginal meds - even at the hospital when nothing was progressing we were there from 10 and didn’t leave till past 430!?!?! Home pregnancy tests are still showing positive. So if I’m still producing the hormones shouldn’t they of given me meds to stop producing it as well as the ones that cause contractions? I just feel like it’s been a bit of a stuff up and I haven’t been offered all options. I DO NOT want surgical intervention but it seems that that’s what they’ll end up pushing for despite not giving me further options.

It was bad enough finding out our little baby was dead and knowing I had to wait to grieve properly but now all this. I’d psyched myself up for increased pain and passing my little baby and now nothing and no other options but waiting or the surgery route which I don’t want. I’m so emotionally wrecked and have felt so angry today at it all and at myself. My partner and I want it over so I can wallow and heal and move on and we can try again.

Should I be calling the hospital to get a scan or to have more meds or just wait??? I just don’t know what to do and don’t know what’s normal.

OP posts:
tipuptruck · 28/02/2018 15:54

So sorry for your loss. It's really shit isn't it Thanks

I tried the medically managed route after my first mmc. I had no bleeding at all so contacted EPAU after three days. They had me go in for a second set of presseries. They didn't work either so ended up going down the surgical route. They did extra scans to confirm that the pregnancy was still there prior to the second set of presseries and prior to going down to theatre.

I wouldn't expect any blood tests or scans routinely. They should have asked you to take a pregnancy test in three(?) weeks to confirm everything was back to 'normal'.

tipuptruck · 28/02/2018 15:58

Sorry, posted too soon (my first ever post!)

If your pregnancy was measuring 9.5 weeks they would have been able to see a heartbeat if there was one, which is why they didn't try any other diagnosis.

I would suggest getting back in contact with the hospital if more than 48 hours has passed. Did you get an open access pass in case of too heavy bleeding? Mine had a phone number on.

Hellofreckles · 28/02/2018 16:04

It really is! I tried so hard not to get attached cause I was scared I’d lose it and now I have. It’s cruel and totally changed how I view miscarriage.

I think I might call them in that case, get a second dose of meds to try to kick start it again. I really don’t want the surgical route unless it’s an emergency. I just feel stuck in limbo!

It just starts effing with your head. I think ‘what if they were wrong and my baby’s still alive’ even though I know it is not possible at the dates I was. 😔

OP posts:
Hellofreckles · 28/02/2018 16:09

Yeah that’s what I thought too, guess there’s just that stupid mind thing of wishful thinking when you want something so much and feel so lost when you’re told it’s not happening.

Thank you for taking the time and effort to comment to me sorry you had to go through this horrid stuff too.

Yes I have an open access number. I’ll call them tomorrow and urge for another round I think.

OP posts:
jimijack · 28/02/2018 16:09

Hi, sorry this is happening to you.
I assume that the scan showed no heart beat with your little one?
This is the definitive diagnosis of miscarriage, unfortunately blood tests would not give any useful or additional information, this is why they don't do them.

The tablets sound like they have started things off, if the pregnancy ended as early as 5,6,7 weeks there may be nothing else now to come away.

With regards to the 3 weeks, this is correct..unless you begin to feel unwell, have a smelly discharge, temperature and tummy pain or very heavy bleeding before then.
Don't torture yourself by keeping doing pregnancy tests, unfortunately they can come up positive for several weeks AFTER the pregnancy had completely passed. The residual hormones can remain.

There is little the hospital can do for you, they can give advice and guide you through this awful thing, but other than that, they are as helpless as you are. It's very upsetting for everyone involved.
All the best x

Hellofreckles · 28/02/2018 16:24

Jimijack- thank you and for replying.
Yeah no heartbeat found, was told it stopped at 9 weeks 5 days. We never got to hear it. We saw it clearly though in the sac at the scan and that was just over a week ago so I’d imagine I’d have some clots and stuff to pass.

I just wish it would progress. I thought the meds would bring it all on and it would be over with not start then stop. I was glad when I started to have a little bleed after waiting all day but it’s just come to a holt now I tried walking at the hospital to help bring it on so was exhausted at the end. I hope it picks up again in the next few days.

I have no more tests lol so won’t keep doing it. I just have no idea what’s normal what’s not. I definitely would prefer going through another dose before the surgical option.

OP posts:
Throwaway4misc · 07/03/2018 09:29

Hi OP. Firstly so sorry for your loss how are things now. I'm in a similar situation after an emergency scan at 11+5 due to very small amounts of red/brown spotting we were told growth had stopped at 9+5 no heartbeat or blood flow.
I'm due in today for an MVA. Really struggling with the whole idea as we had a scan at 9 weeks and everything was fine.
Hope things are better for you, at least as well as they can be in this situation xx

MagicalCreatures · 07/03/2018 23:09

Hi OP
I’d give them a call. If your certain that you haven’t passed everything and don’t within 72 hours then it’s highly likely you’ve still got pregnancy tissue and you do not want to wait 3 weeks to be told you do.
The same thing just happened to me.
I was sent home with pessary’s to end mine at 9 weeks and I had no bleeding and no pain except mild cramps.
I went back 6 days later for another scan and they said that the sac must have absorbed sometime within that week after taking the pessary’s as they couldn’t see it.
4 weeks later I’m still getting positive pregnancy tests so went back and they found something still in my uterus. Had to have it out there and then with no pain relief. I’m absolutely traumatised. Do not let them mess you around. I’m now going through a complaints procedure with the EPU over it all.
Take care of yourself. It’s a really tough time x x x

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