Complete Molar Pregnancy

[BergamotMouse]

I had what I thought was a normal miscarriage in December and had an ERPC. Then I got a terrifying phone call yesterday saying I had to come into the hospital immediately to discuss the results from histology and was told it had been a complete molar pregnancy.

At the time I was relieved as had built it up to me something much worse in my head but now I've read about it it all seems pretty shit!!

The bit that's really got me down is being told I have to wait 6 months to TTC as they monitor my HCG levels.

Has anyone had a molar pregnancy - it's hard to find experiences as it seems quite rare - the nurse said they only see 1/2 cases in the EPAU a year? Would love to talk with someone who's been through it.

Hi,
I have had this, 14 years ago. Was heartbreaking and difficult time but went on to have two healthy children. If you want to talk about it please message me
Look after yourself

Thanks for replying. It's nice to hear your positive end result. Luckily I have a daughter already so know I can have a healthy pregnancy.

I found after the miscarriage (if it's even classed as that now) starting to TTC kept my hopes up. But now I've been told to stop trying which is very disheartening. I'd been hoping I might have got pregnant before I'd been told it was molar (as nothing anyone could do to help that) but that is seeming unlikely now.

The wait just seems unfair even though I know the reasons are valid. How long did you wait / it take before you got pregnant again? Did your HCG levels drop back to normal naturally and stay low?

Hi Bergamot I had a complete molar pregnancy at the end of 2014. It was, clearly, not a very nice experience. I was lucky in that my HCG levels did drop on their own, however they were incredibly high to start with and so because they took a long time to drop to zero it was a full year before we were advised that we could go ahead with TTC again, which was a difficult wait. We were also lucky in that we had already had my DS so also knew that I could have a healthy pregnancy. Still a difficult time though, waiting to see if further treatment is needed etc.

We were also lucky in that as soon as got the go ahead to try again I fell pregnant almost immediately. Was a hugely emotional time waiting for our early scan to check that all was ok and it wasn't another molar pregnancy but my beautiful DS2 was born in August 2016.

I'm sorry you are going through this. As you say, it is a rare thing and many people have never heard of it. I certainly hadn't before my own experience. Take care of yourself.

I had a partial molar pregnancy 5 years ago. Unfortunately my hcg levels didn’t go down on their own so I ended up having chemo for a few months.

It is very rare, and only a small % do go on to need chemo. I was lucky that I already had 2 children. In my case, the chemo brought on an early menopause but I was in my early 40s.

More than to answer any questions here or by PM.

My only regret from the experience was that I didn’t take up the hospital’s offer of counselling. I genuinely didn’t feel I needed it, but I’ve found that I struggle with the finality of it all now and didn’t really deal with the emotional side of things, but got caught up in the practicalities.