Professor Quenby at Coventry

[doobeedee]

Hi all,

I was just wondering if any of you with experience of seeing Professor Quenby at Coventry can tell me how long they took to get back to you after your initial email to the secretary? Also, did anyone still have success there despite finding out their NK cell level was fine? I would like the testing done anyway, but think my main issue is down to low Progesterone and a very short luteal phase meaning poor implantation. Anyone else got any experience of this?

Hi doobeedee

I was referred to professor Quenby after my 4th miscarriage. I specifically asked my GP to send me there. I think I waited about 2 weeks for an appointment letter to come through which was for about 3/4 weeks later. If you call her secretary she is really helpful.

I didn't have the NK cells testing but i had every other test done including testing on the baby I had during my 5th miscarriage. She really is very throughough and a lovely lady. Let me know if you need any more info.

Thanks Beyondhope. I'm seeing a specialist in my home town first, but if no luck with them, I'm going to ask to see Prof Q. What treatment did she suggest for you in the end?

I went specifically for the NK cells testing (and paid for this - it cost £540); turns out I have normal NK cells levels. They've put me on progesterone anyway, which apparently is their normal protocol for all recurrent miscarriers. I've only had one cycle trying since then so can't yet report on success! I did find it a positive experience, though; compared to my local hospital it was like light and day in terms of both knowledge and empathy.

Doobeedoo all of my tests came back clear. My baby had a chromosome issue which is why I miscarried last time. My other 4 babies were never tested so I don't know about those.

LisaSimpson that's interesting. I am pregnant at the moment (literally conceived the day I got the results back!) and I asked Professor Quenby about progesterone and she said I don't need it.

Congratulations on your pregnancy! That is interesting - how far long were you when you miscarried? Mine were all early, and maybe that's why they thought progesterone would help? My understanding is that progesterone issues can mean a pregnancy basically fails to get off the ground.

Thanks Lisa. My anxiety is through the roof as I wasn't sure I wanted to face it all again. Mine have ranged from 6 weeks to 14 weeks. 4 we have seen a heartbeat only to go on and miscarry later. I hope you get your positive test soon Lisa.

I've had 6 miscarriages. Most end between 4-6 weeks. The last on (2 weeks ago) ended at 9 weeks (saw a heartbeat at 7) I always bleed like a period at about 7-9 dpo which is why I think I need progesterone. The only time I didn't was my 1 successful pregnancy in 2013. Seeing consultant at home in December and if no joy, going to ask for a referral to Coventry.

Saw her today. Both she and her team were absolutely amazing. So knowledgable, caring and on the ball. I was amazed.

Went to Coventry after my 4th miscarriage. The team were fabulous and I spoke to Prof Quenby on the phone about my results a while after. She was lovely, answered my many, many questions and helped me devise my treatment plan for if I was going to try again. Didn’t have high NK cells but they did do the scratch. Along with advice from 2 other hospitals(!) was prescribed low dose aspirin, progesterone and tinzaparin etc etc. Don’t know if it was Coventry’s help or a combination of everything but we got our much longed-for rainbow. I wish you all the best.

Hi Ladies

Just wondering if anyone from Coventry RMC attend a support group? Or other midlands recurrent miscarriage clinics?
We had confirmation today that we're going through our 5th miscarriage and feel like I could do with some support.
None of my friends/family have experienced a miscarriage, let alone recurrent ones.

Thanks xx

I haven’t but I know there’s a new one in Stoke and I was considering going. We’ve had 3 miscarriages. Recurrent. Have you see Prof Quenby? She’s amazing.

Ah that's a shame, bit too far from us unless it's on a weekend. We live in northamptonshire.
So sorry to hear you've had 3 miscarriages.
Yeah we've met her a couple of times xx

She’s great but issue for us is my test results all cane back completely normal so there’s nothing that can be done for us now. She gave us progesterone to use if I get pregnant again but that’s all she could really recommend. How about you? X

Mines similar but the opposite way if that makes sense lol. I carry a downs syndrome gene so 2 of the 5 miscarriages were tested and had downs so she believes that's the cause of the miscarriages. She said it's a 50:50 for each pregnancy but looks like we've been unlucky so far so going to go down the IVF route now.
I was also prescribed progesterone for a short luteal phase but I'm not sure if it's of any use in my position with the gene. How far along did you get with your pregnancies?x

Yeah there’s not much to suggest progesterone works so I’m not sure.
First was MMC at 12 weeks, then 7 weeks and 6 weeks. IVF is good for anything gene related. X

Hi everyone. This thread is a bit old but hoping someone might respond! When you were referred to the coventry clinic, were you referred to the implementation clinic, or the Tommy's research clinic, or both? I want to get the nk cells testing but wondering if I should get referred to the Tommy's clinic too as then they might take a more rounded look at everything? I've already had standard tests done at my local hospital but they don't seem to know what to do with me now!