Two missed miscarriages in a row - what next?

[Ches90]

Hi everyone,

i was wondering if any who's been through this can help me - i feel heartbroken and i don't know where to turn.

Last year i got pregnant with my first baby. everything seemed fine - all the usual pregnancy symptoms etc. i went to my first scan at 12+3 & they don't me they were really sorry but there was no heartbeat & my baby had died at 9 weeks. They explained i'd had a 'missed miscarriage' which i'd never even heard of at the time. i was devastated.

I waited two weeks for something to happen - nothing did. I went in for 'medical management/pessary induction.' Unfortunately this went very badly for me & became life threatening due to a haemorrhage. I lost so much blood i had to be prepped for blood transfusion. My partner was sent out of the room whilst doctors & nurses rushed around me. My baby, despite being tiny, had to be removed via forceps as did my placenta because my cervix didn't dilate at all. It was the most traumatic and painful experience and the blood looked like something from a horror film. I was told in no uncertain terms i could never have this again.

2 weeks later i began contracting, bleeding profusely and passing large clots & was admitted back into hospital - they said everything mustn't have come out before. 1 week later the same thing happened again. 1 week alter i collapsed in pain & was taken to hospital - they told me my womb had turned sceptic & so had my bladder & that there must still be "pregnancy tissue" inside & if something wasn't done the sceptisimia would spread through my organs. I had emergency surgery & then stayed in hospital for a few days on IV antibiotics. By this point i should have been 19 weeks pregnant :(.

I had counselling afterwards & 8 months later me & my husband decided to try again. The doctors were very encouraging saying it was likely a one off & that it's particularly rare to have two missed miscarriages in a row.

I got pregnant with my second baby in April this year. We went for an early scan at 7 weeks & saw our babies heartbeat. We went for another scan at 9 weeks - the heartbeat had vanished. They said the baby died at 7+3 weeks - just 3 days after my previous healthy scan. This time when they told me i screamed. I just couldn't believe it had happened again.

I waited for 2 weeks to see if it would happen naturally - i had some bleeding but it never developed into anything more. The hospital said my womb appears to be 'iron clad' & just won't let go & advised i have the surgical management again and re-iterated that 'medical management' was not an option for me after last time. I was absolutely terrified - even though i'd had the surgery before it didn't make it any easier. I had the surgery last week and am currently still bleeding from it. I'm waiting to take a pregnancy test to make sure everything's gone this time.

My doctor referred me to a specialist a few weeks ago when i first found out about my second loss & said that because i'd had two missed miscarriages in a row, & the first one in particular was so traumatic, that the NHS shouldn't wait until i've had 3 in a row to see me. The appointment was yesterday - i turned up but the consultant didn't. i rang the hospital to be told the consultant had cancelled the appointment & not told me. instead he'd wrote a post-it note on my file that said 'patient has only miscarried twice - need 3 for referral.' His secretary read this out to be over the phone. About how i'd "only" lost two babies.

I now have no idea what to do. My dr is still pushing for referral but she says they may refuse to see me again. I have no money but i'm considering borrowing money to go private. Has anyone else been for private tests? What happened?

I can't imagine trying again & not knowing if something's wrong - i feel like it will happen again and i can't bear it. Has anyone on here had two missed then gone on to have healthy children after?

I feel so alone. No one i know has had two miscarriages and no one i know has had a missed miscarriage. I feel like no one understands at all.

sorry for long post - it's a lot to sum up x

Ches90
I am so so sorry for your losses. It is heartbreaking and I can only imagine that the physical trauma that you went through only increases your anxiety. There are miscarriage threads in body and soul full of lovely ladies with heaps of experience, if you feel up to going on there, lots of people with recurrent miscarriage experience who may have more to say to help you.
I had two mc's last year, two in a row. First was a mmc and then second probably would have been but I just happened to get scanned at 7+3 and it picked up on slow hb and small size for dates, by the time of rescan a few days later the hb was gone.
I pushed for tests, my GP totally supported me and because of a physical factor (funny uterus shape) and detailed family history which showed that the women in my family are very prone to mc they agreed to check me after the two. Turns out that they couldn't find anything, but I was glad that they investigated, it made me more confident going forward.
In your case it was particularly heartless of the consultant to just write a post it on your notes, if they weren't going to see you they should have rang you to explain. There is a complaints procedure within the NHS (PALS??) and I think with your GP backing you should definitely pursue this. There are always exceptions to the rules and honestly I can completely understand why you want to be checked now.
Best of luck with it all.

So sorry to read what you have gone through Ches. your story is quite similar to mine. My first miscarriage last year was utterly horrendous and I ended up needing a transfusion. I was 13 weeks. Had seen a lovely healthy baby at my 12 week scan then a week later I started bleeding and my baby was gone. It's very traumatic and I hope that the counselling helped you.

I have recently had my fifth miscarriage. I saw my GP who referred me after 3 miscarriages. But the wait was so long I had a further 2 miscarriage whilst waiting for my appointment. I am awaiting the results of the tests they are currently carrying out on my baby before they start testing me.

I am not sure what part of the country you are but I am under Professor Quenby at Coventry and Warwickshire. I know she takes self referrals so may be worth giving her secretary a call to find out.

I know what a tough time it is and hope you get the answers you need.

Hi Ches so sorry to hear what has happened to you. As far as we know, all but one of my miscarriages has been a so-called missed miscarriage. They are so common, from what I can read/see, more common than an immediate miscarriage, as your hormone levels naturally take a while to fall after the fetus make heartbeat stops. I know that most NHS trusts will only test after three miscarriages in a row, as they are so common. I wish you lots of luck in your next pregnancy.

Sorry that should say after the fetal heartbeat stops.

Sorry Ches for your losses.
It sounds as though you were treated awfully by your consultant.

I have also had two MCs in a row, the first a MMC at 11 weeks when foetus had stopped growing at about 5 weeks and this was dealt with by ERPC under general.
Long winded to sort but nice and 'easy'

After one AF I got pg again and lost this too at 5 weeks. Took ages to resolve due to weird hormone level and ended up having MVA which I hated.

Had my first AF today since that and I am feeling a little glimmer of hope mixed with a large dose of dread at going through it all again.

Fingers crossed for you.

Thank you all for your replies ladies. Talking to people who have shared similar experiences is really helpful - makes me feel less alone. I'm really sorry for everything you've all been through & for all of your losses - I wouldn't wish this type of thing on my worst enemy.

I'm late replying to you all because I started getting strong cramps & heavy bleeding yesterday afternoon before passing some pretty sizeable clots last night & being admitted back into hospital. I've been discharged again now following an internal scan - they said my womb looks clear now & seems to be returning to normal. The hospital thinks that there must have been some "pregnancy tissue" left over from the ERPC which has now "expelled" itself.

I'm feeling relieved now having had the scan because I feel like this miscarriage is finally over & I can start moving on with my life again and searching for the answers I need.

And I'm glad you mentioned that about your uterus shape Miami - I found out in a private scan a while back that my uterus tilts forward. I didn't think much of it at the time & maybe it's nothing but I'm gonna mention it to my gp & see if there's anyway that could be affecting anything.

I've also decided if the NHS won't run any tests then I'll borrow or save up the money & pay privately for a consultation with a specialist & at least some basic tests. Having looked into it a bit the basic ones aren't too expensive & I think they'll be worth it to put my mind at ease. If they're clear then hopefully, after some time, I can build up the courage to try again x

Hi Ches, glad the scan showed that all the tissue now seems to have gone. Hope you're feeling better after the trip to A&E and what sounds like a really difficult time. Sending you good thoughts

Hi all im new to all of this and im so sorry for all of your losses,i have just had my 8th miscarriage with no cause iv had a all the relevent tests and many times at that in case something was missed genetic testing all came back normal,consultation under professor quenby where i entred a trial the edometrial scratch,i been trialled on many medications progestrone,asprin,steriods and clexain.None of these worked.Now after this 8th miscarriage 6 were D&C's we have now decided to stop .Deep down inside i want to carry on but i think its too much of a risk after this last procedure caused me to be re-admitted ,.I really dont no what to do when you want something so desperatly and your body just wont allow it but feel now my time is up.
Sorry for ramberling on and again im so sorry for all of your lossess .xx

Oh no angel so sorry to hear that. It sounds like you've had a terrible time. Thinking of you