Pissed off with recurrent miscarriage clinic

[keeponrunning85]

Apologies, just need to rant and get things off my chest.

I had my 4th MC nearly 7 weeks ago. Went in for the day for medical management so that the pregnancy could be sent for cytogenetics. The nurse discharged me saying you'll be seen in the clinic again in about 6 weeks. We were seen after the third one, told it was due to a chromosomal abnormality that was just bad luck and fingers crossed next time.

I have had a very emotionless letter today saying that the 4th pregnancy was genetically normal and that they cannot explain why I has another miscarriage and to contact the EPU for an early scan when I am pregnant again.

That is fucking it. No follow up appointment. So I rang the secretary and asked for one to be told to begin with that I could have an appointment in September. Over 4 months after my miscarriage. After throwing a strop she has squeezed me in at the end of July.

I know that it is not their fault I keep having bloody miscarriages but you think they might show some kind of compassion and at least routinely give me another appointment to discuss things again.

I am fucking fuming and upset. Feel like this has just set me back.

I just wanted to say that this I'm sorry for your losses and that I completely agree that this is unacceptable. I completely see why you're fuming. I'm glad you've got an appointment now, but of course you should have been offered one in the first place - things have changed, and that surely requires revisiting your case.

Thank you for your reply. I have seen your thread and I really hope you have a more positive experience than I have had and I'm so sorry for your losses too.

Thank you - I'm sorry that I had no useful advice, I just know it feels horrible to rant and then get no reply!

Keepon
I got one of those letters after my rmc tests and it made me so so angry. DH couldn't understand why I was so upset, but I just felt like they were ignoring my pain. It felt like such a pathetic cop out. Channel the anger is my only advice, don't let them off the hook. I am thinking of writing to mine as I really don't think that letter is appropriate for people who have been through recurrent miscarriages.
I really hope that you get seen soon and that they come up with a care plan/ strategy for you. All the best.

Thanks for your reply Miami. I hope things are going ok with you.

It is just so frustrating/upsetting when they're the only ones who have the potential to help you and they seem so disinterested. DH and I are going to go to the appointment, mainly to have a moan, and then I plan to put something in writing to them. Otherwise I have been referred to another consultant outside of our immediate area for a second opinion. He was recommended by a friend who works with him so I'm hoping he might be able to offer us something.

Keepon
I'm doing ok thanks. Further then I have ever been, doesn't make me any more relaxed though. I definitely have bicornuate uterus, they are not sure by how much/ whether it's a full septum or not. Left horn has been bleeding since week 5. Been referred to high risk/ consultant care in a few weeks so we shall see what they say. Makes me more convinced then ever that implantation site is the reason for my mc's.
It sounds like you have a definite strategy in place, the waiting for appointments and hoping they have answers is awful though and my heart goes out to you and your DH. Hoping for a brighter second half of the year for you.

I was on the phone to a consultant I needed to see privately about half an hour after leaving a very unsatisfactory appointment at my RMC. It doesn't sound like you have even had any tests yet, or am I reading this wrongly?

Hi Ladies,

I had my fourth pregnancy loss in January and had some tests done for the RMC in March and was told it would be 12 weeks for all my results and an appointment on the clinic. 15 and a half weeks later I've received a phone call asking me to come in on Thursday. Hoping it's nothing bad as they normally send a letter for appointments but at least I'll finally get some answers. X

Hi all, hope it's ok to join in on this thread- have been for an inital appointment at st Mary's RMC in may- have just had an email to say my follow up has been cancelled and moved to September! 4 months after the initial tests! Can't believe they're expecting me to wait that long and supposedly not try to get pregnant for all that time! I had already decided to go private as well and am just relieved I have- I can't believe what they expect you to wait for (whilst including in their information a well being questionnaire for you to complete!).

Nicola- hope the news is ok for you.

That's terrible keepon with what you have been through- I would definitely complain. I hope you have some answers soon

Hi ladies. Sorry to hear so many of you are having frustrating times with your RMCs too.

Iggi I have had tests done already. I know I have a partial bicornate uterus with a septum. This was assessed on a 3D ultrasound in between MCs 2 and 3. At that point the consultant told me that if 9 had another MC she'd consider doing surgery on it. MC number 3 was due to a chromosomal problem so because that pregnancy would have miscarried regardless of the septum she didn't want to do the surgery. MC 4 was a perfectly normal embryo and yet she still doesn't seem to want to consider the surgery, and apparently can't even be bothered to tell me in person.

Hence my anger, frustration and upset.