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Miscarriage/pregnancy loss

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3 Failed Pregancies and Not Yet a Mother (Age 41)

34 replies

Getintogear963 · 19/01/2016 12:56

I am looking to see if anyone has had or is having a similar experience to me. I am 41 years of age and still not yet a mother but very much trying to be.

Pregnancy No. 1 - Failed: At age 39, I started trying for a baby with my husband in June 2014 on our honeymoon. Only a month later I conceived. By October 2014 (at around 14 weeks) I had to terminate the pregnancy as the baby was diagnosed with straight forward Trisonomy 21 (Down Syndrome) and was extremely sick ie. leaky heart valve and did not look like a bright future for it at all. It was truly a traumatic experience and still today I get upset about that loss as I had many scans on this one and saw my baby's beatiful little fingers, toes and all.

Pregnancy No. 2 - Failed: After some healing time, my husband I tried again in July 2015 (Age 40) and in yet again just one month I was pregnant again! But unfortunatley, the pregnancy failed - at my 7 week scan they detected an empty sac (known as blighted ovum) so at around 9 weeks I went in to have an ERPC.

Pregnancy No. 3 - Failed: In November 2015 at age 41 (after just having one period following the last ERPC), we tried again and yet again, in a month I fell pregnant again. This time at 7 weeks the scan went well and a heartbeat was detected and I was told everything looks normal. And now, just 2 weeks later (9 weeks pg), I am miscarrying. The sonographer scanned me at 9 weeks advising that the baby had only grown by 1mm since the 7 week scan so it passed away pretty much following the scan that I had.

To add to the above, in July 2015, I was diagnosed with an over-active thyroid (mild case and due Graves disease.. likely to have been bought on by stress from loss of baby number 1). When I was diagnosed with the over active thyroid, I had already conceived with my second pregnancy so my second loss (blighted ovum) could have been to do with the thyroid problem. However, since then, I have been under brilliant care by a thyroid specialist who has put me on a medication that is safe for pregnancy called PTU and prior to my 3rd pregnancy, I was given the green light to proceed with conceiving as my thyroid was (and still is) in normal range. I still have to continue taking PTU for at least the next year but my specialist said women on this medication are fine to proceed with pregnancy and will go onto have healthy babies.

Although I see the above as 3 losses, the doctors etc. are telling me it's only two ie. 2 miscarriages and the down-syndrome was a seperate issue / reason. They tell me 2 miscarriages is the norm at my age and if I am conceiving ok (which I am) then to just keep trying. I do feel lucky that I am conceiving so quickly as that seems to be a major issue for many women, and it's very good that I do, but I just can't seem to actually hold a baby for it to make a healthy one. :-(

I am just so worried that I am never going to be able to actually have a baby. Any feedback or similar experiences would be appreciated. Thanks.

OP posts:
Getintogear963 · 08/02/2016 20:07

Hi All, thought to give update after seeing Gyno today via NHS...
He examined me and said all looked ok apart from a swollen uterus (which he suspects is because I've recenty been pg - only MC'd 3 wks ago). He's sending me for a scan & blood test in next few days. Blood test will check for APS (Antiphospholipid syndrome). I see him again in 6 wks. He didn't seem phased about my situation & said to try again now if we want to.
I'm thinking I'll at least wait for scan and blood test results. He further advised I take baby aspirin (2 per day) upon discovery of next pg'nancy, which is same as I did for my last pg'nancy.
Does anyone know anything about APS? It is strange that he is giving me go ahead to try again before even waiting for my blood results which kind of tells me if it I do have APS (hopefully not PG!) and fall pregnant, that it is treatable whilst pgt?

By the by, I am going to wait for my tests and when I see him again in 6 weeks for all results I'll go from there. What's six weeks in the scheme of things?....

OP posts:
Historyhelen · 10/02/2016 10:48

Hi Lou2016

I haven't heard of APS before but sounds OK if he's saying you can try. When I tried to suggest that we could try again before getting the results back from our embryo it was a very adamant no!! I completely agree - - 6 weeks is nothing. In fact I've found that my mood has actually lifted since the miscarriage a couple of weeks ago (I did end up having an MVA) as there's no worry or stress on the near horizon about bloody ovulation etc. etc. And I'm off the steroids which means I'm sleeping much better. And I can drink - every cloud! We're off for a luxurious break in Scotland next week - can't bloody wait.

After the procedure I had last week, the embryo is getting tested for chromosomal abnormalities. Mr Shehata said that 90% of the time it comes back at chromosomal abnormalities - just sod's law that it seems the treatment for my immune system worked but it was a dodgy egg/sperm. Just one of those things.

Wouldn't it be weird if we end up being pregnant at the same time?! Keep in touch with how things are going and I will too. It's nice being able to share this journey with someone else.

Helen x

Getintogear963 · 10/02/2016 22:34

Hi Helen

Thanks for your reply. I have to say I was quite surprised when he said try again... but I am definitely going to wait for my scan and blood test results first. I am due to see him again for the results on 21 March so counting down!

Ah, that's such a lovely thing to get away for a luxurious break - just what the doctor ordered for you, I am glad you are doing that and are feeling quite positive - that's the spirit!

After some counselling sessions I too am feeling better and me, husband and the step children are going away this weekend to my parents in laws cottage on the South coast, just to get away for a break and some fun!

Good luck with the results for the chromosomal testing and 90% is quite a high chance, so hopefully it is that (in a nice way), as it's better to have just bad luck with the egg/sperm rather than anything else. Great you came off the steroids so you are sleeping better and can have a little drink - lovely! It does help! Were the steroids part of the NK / immune treatment you were on?

Yes, let's both stay in touch with our updates, it is good to share the journey and hopefully we will have a happy ending, both of us.

Bye for now and enjoy your lovely break in Scotland along with a nice drink... or two! Smile.

Lou x

OP posts:
Getintogear963 · 26/04/2016 21:06

Hi Historyhelen - it's been a while and I am wondering how you are getting on? I hope everything is ok.
I went to all my NHS appointments and so far they carried out a pelvic scan (which came back satisfactory) and some blood tests (APPT, antiphilosid etc) which they seem to be ok with too. NHS said keep trying.

Some weeks back I decided to also book an appointment with Dr Shehata because I know the NHS are not very thorough with recurrent miscarriage plus I do not want to waste any more precious time. My appointment with Dr Shehata is tomorrow and I have all my medical notes regarding my 3 prior failed pregancies along with my overactive thyroid records (today showing as normal although I am still taking the thyroid medication, PTU).
Anyway, it turns out that I will be seeing Dr Shehata tomorrow pg(!) - I believe this is a similar boat you were in ! I am 6wks/5days tomorrow so very early still. This time round for my pregnancy as guided by NHS, I am taking Cyclogest (progrestrone) pessaries (one 200mg per evening). I am also taking 2 x baby aspirin (1 morn, 1 night) although I already took aspirin in my prior pregnancy. I am also taking Pregnacare this time (as opposed to previously just taking folic acid on its own).
The only positive sign of this pregnancy so far is my breasts are sore, plus I am feeling bit more tired than usual and sometimes get up in the night to go to the toilet. I can only pray it's 4th time lucky. If it's not, I feel a litter better I think knowing that I at least have Mr Shehata with me on the journey from tomorrow....
Anyway, hopefully you are ok and it would be good to hear from you.
:-)

OP posts:
Historyhelen · 27/04/2016 14:20

That's brilliant news - congratulations! Really pleased for you. Great that you're seeing Mr Shehata tomorrow too. He really is great. I had a query yesterday about the steroids I'm on and I emailed Louise, the midwife, and almost immediately got a reply. It's just great knowing there's someone you can talk to easily and quickly.

This is our first month of trying and I'm pretty certain we're not successful. I've done two pregnancy tests that were negative although I took them yesterday and on Monday and my period is not due until tomorrow. Doubt I'm pregnant though as before I did feel 'the signs' . Having said that I'm although absolutely fine with it. As we've found it so easy to get pregnant in the past we are due a month where it doesn't happen! Anyway, we'll wait and see. What will be will be.

All fingers and toes crossed it will be fourth time lucky for you- it's just that awful waiting game at the moment isn't it? Really horrible. Are you going to have a scan tomorrow? I think you should be able to see a heartbeat and that'll massively put your mind at rest.

Let me know how you get on - it's very exciting!
Helen

Getintogear963 · 27/04/2016 18:32

Hi Helen
Thanks for coming back to me. Bad news.... Had scan measured 6 wks 2 days and an empty sac Sad. So this is 4th failure, 1 Downs that I had to terminate now followed by 3 m/cs. Nightmare.
Shehata was great though. He just took 16 bottles of blood from me and testing me for antibodies. He says it could be Graves disease antibodies (Graves caused my over active thyroid) that's attacking my pregnancies. He says if tests come back to confirm it then I'll go on steroids, like you. I go back in 2 weeks to discuss findings.
Now I need to get scanned by nhs who once confirm the loss I'll get tablets to bring on the bleed process. I'd rather that than a 4th surgical termination. Lucky it's happening now as me and hubby go on holiday (just two of us to Greece) at end May! Obviously I feel gutted but knew it wasn't right as my tummy hadn't bloated at all this time. Plus I'm happy that I have Shehata on the journey with me and he said i shouldn't be worried and its common. That is keeping me believing that I'll be able to have a baby as he assured me.
As for you, you must be so pleased to start trying again this time with treatment that's helping. I wish you all the luck in getting pg quickly and you will by next month if not this one, just keep at it! Enjoy while you can! Smile
Shehata needs me to be on vits that he's prescribed for at least 8 weeks before getting preg again so we'll try in July unless he says otherwise as I guess it depends on test results.
What a journey for us both!! I know we'll get there tho.
Take care and stay in touch.
Lou x

OP posts:
Historyhelen · 27/04/2016 19:29

I am soooooo sorry. I am genuinely gutted for you. It's all so grim - at least there's beautiful Greek sunshine to look forward to.

I'm glad you're with Mr Shehata too. Did you go to Harley street or Epsom? If it's any consolation (not much today, I'm sure) the steroids did work on our last pregnancy. The baby had a heartbeat before it died and when we had the embryo tested it did have a chromosomal abnormality - just absolutely pure bad luck. That's what I hold on to.

This is a bloody crazy journey - such a roller coaster of emotions. Hang in there. Let me know how it goes. I have no idea how to do dm on here (not even sure if that's the right term!!) but do if you'd like to. Helen x

Getintogear963 · 02/05/2016 11:14

Thanks Helen. I'll private message you now (I know, i'm not sure the right term for it either! Lol Smile.
Lou x

OP posts:
LAURAPAX · 29/12/2022 01:35

Hi OP and PP, realise this is an old thread but wanted to see how you got on. In a similar position with RMC and looking at next steps. Hope you are all well and everything worked out xx

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