Hello ladies
I lost my beautiful son Freddie at 22 weeks gestation in January; woke up with terrible crampy pains but no bleeding and foolishly initially assumed it was gastroenteritis as I was vomiting. My waters then broke and I delivered him myself over 20minutes with the 999 operator telling me what to do. The paramedics got in and cut the cord and rushed us to the nearest hospital but sadly he was too premature and passed away in my arms an hour after birth. I miss my little boy more that words can say.
I’d been previously warned by two different GP’s during cervical smear tests that they thought they could see two cervical oses and that I may have a bicornuate uterus and hence risked mid-trimester loss. I saw an obstetrician privately the first time it was mentioned who reassured me that all looked normal and that investigations were not required. We were fortunate to conceive swiftly after stopping OCP and I mentioned my concerns repeatedly throughout during our antenatal visits however again were reassured by staff caring for us. At 17 weeks my abdomen was noticeably sloped and Freddie was completely to the right of the midline however again when I mentioned it to the obstetrics SHO and eventually consultant they told me not to worry as the 12 week scan didn’t show any obvious uterine anomalie. Neither of them would examine me however which I regret not pursuing to this day.
I have since undergone all the usual blood tests (antiphospholipid, lupus, toxo etc) which were normal, a hysterosalpingogram, the report of which wasn’t very helpful and simply said the uterine cavity was abnormal but didn’t elaborate and most recently an MRI and hysteroscopy. I am anxiously awaiting the results of the MRI. I was told after the hysteroscopy that the cervix was incompetent. The gynaecologist who I am seeing is very kind and has taken note of everything however has not dealt with this situation before and prior to me undergoing all these investigations half-heartedly suggested we try for another pregnancy to see if the uterus could stretch however I could not countenance going through that harrowing experience again without at least trying to prevent it.
My husband and I both think I have a bifid/didephyus uterus based on how the pregnancy was in association with an incompetent cervix. I am absolutely petrified of having either another 2nd trimester loss or worse again losing a baby in 3rd trimester from placental insufficiency, which is also associated with uterine abnormalities. (Also my PAP A protein was very low) Has anyone out there got any recommendations of obstetricians with an interest in this area? I’ve been researching Dr Farquharson in Liverpool and Prof Regan in London. Any advice would be greatly appreciated.