Recurrent Miscarriage Testing, trials and tribulations...Part 7!

[squizita]

Hi all, carrying on from part 6. All kinicker-checkers, blood-testers, clinic-attenders and finger-crossers welcome. Nothing but love and crossed fingers...

Nearly I asked about swimming as I went to a spa in the midst of my last (dragged out) one. They said no bleeding = swimming's fine.

Baking & Polka yes I know what you mean about how confusing it is when different experts clash so much. In a way I'm glad of the NHS as it's a way forward for the first round of tests so almost makes that decision easy - I can only imagine in some places (e.g. America) where everything is very commercial there must be people taking advantage. At least we know for all their differing opinions they are either NHS or attached to a university research programme and trustworthy and ethical, if you get what I mean? Also Polka I think I am seeing him too in August so very glad he sounds a nice doc to have!

Squiz he was nice and was really concerned about explaining anything and answering all my q's no matter how daft! Good luck.

He also said that aspirin is proven to have no effect and to increase mc if you're taking it when you don't need to, so told me to stop taking it until the bloods revealed wether I actually had a problem or not.

I'm amazed this isn't more widely publicised as I know lots of people are advised to take it as a 'just incase it helps' measure but not realising that it could cause harm.

Yet I've been told to take aspirin by a consultant in reproductive medicine specialising in recurrent miscarriage and the RCM clinic at the hospital.
I think it just shows how there's a need for more research. People keep saying in 10 years it will become clear which of these interventions help and which don't, but that is no use to me now in trying to decide what to do.

Thanks for the info Baking.

Polka, glad you are getting some testing. I agree the info is confusing and they all seem to disagree. I was told to take aspirin after I got a BFP.

I wish it could be different. I would have been due baby from my second mc too on 5 July so I know what you mean about the royal baby mania. My SIL just had a baby too (announced preg just as I was miscarrying).

I have had news on my tissue testing - they found an anomoly although won't say what it is. I asked for a copy of it to e sent to me and to be told, so the EPU nurse is checking into this. Honestly...its my bloody test! So now am being sent off for karotyping with DH in two weeks, so they can see if it is a one-off or "translocation".

Then 6 weeks for the result and only then will I have an appointment! I am annoyed as I asked the eejit consultant for karotyping for me and DH before and he wouldn't give it. On the basis of our age and 3 mcs I think he should have given it then. Grrr.

I stopped bleeding mid last week and for the last few days have yellow EWCM type discharge but no positive OPK. Any thoughts on why it would be yellow?

It was aneuploidy. Getting copy of the result tomorrow.

Doesn't that imply it's not a chromosome problem inherited from you or DH? Extra/missing chromosomes happen when the gametes are formed, so it was a dodgy egg or sperm that caused it.

Baking, I've been trying to look into it, and it seems that some people would be more prone to having babies with aneuploidy, so the blood tests are to see if there is anything which predisposes us to having such babies, or whether it was more likely to be a one off. Maybe its the particular type of chromosome anomoly found that is causing concern, I won't know until I get to speak to the consultant months from now *unless Mr Shehata can talk to me about it - but the results won't be back by then).

Makes the thoughts of TTC really scary now.

It's crap that they give you a bit of information(under duress by the sound of it) then there is no help to draw conclusions from it. You need to know if this is a random thing and not likely to happen again before you TTC. I hope when you get the full results you get more clarity. Can you speak to the consultant on the phone about it?

Don'ttry can you refer yourself to a genetic counsellor? I saw one after getting the triploidy diagnosis as I had met her before for something else so I rang her directly. She saw me and just asked me to get my GP to refer me retrospectively. They seemed pretty laid back about referrals and are good people to speak to about these conditions and implications for future pregnancies. Maybe just get the number from the Internet or alternatively ask your GP/consultant for a referral?

It's infuriating when they do that... withold info and give you scraps even when you chase.

I'm off on hols this week. Not TTC because we get tested on the 13th eek! Just relaxing before.

Thanks. I got a copy today - the nurse wasn't withholding as such, just was checking with her superior before releasing it. It is Trisomy 15, and said male sex chromosome complement. Presume that means a boy?

We are getting karotyping done on 31 and then will have appointment with the consultant (the eejit)- but could be weeks and weeks. I might try the GP on Mon to get the bloods done in Guys if that would make it quicker (Sussex send bloods up there and it all takes 6 weeks!).

The test result was dated 12 June so huge delay in getting it to me. Means I won't have the results for my apt with Shehata. V annoying. Nurse said she didn't know what the delay was except "it wasn't the EPUs fault".

Hope everyone is well. Enjoy hols squiz.

The thread has gone a bit quiet. How is everyone?

Only one more day until DS1 breaks up from school and then soon we are off to Camp Bestival, which was brilliant last year and I'm really looking forward to, except that it was round that time that I conceived baby for MC in Sept 12. The last 12 months have been so shit. Everything is tinged with sadness because it's always the anniversary of something to do with failed pregnancies.
Never mind, onwards and upwards, trying to stay positive. I am on wk 5 of C25K and pleased with my progress, it's our 9th wedding anniversary tomorrow, and I have an appointment with Dr Quenby next Monday.

Hi ladies!

Don'tTry that sounds sooo annoying, is there no way with you chasing them up that the results won't be in before your appt with Dr Shetata?

Baking you must be on the count down for Bestival and school hols! Enjoy and hope you don't get caught up in the storms!

AFM Seeing as my last period was 18th May and I mc on 25th June (which was only a teeny tiny bit of bleeding, not even 40% of a normal period) I STILL haven't had a period - I've had a gizillion reflexology sessions to try and push it along and I feel ready to explode I'm so bloated not to mention how evil and hormonal I feel (or is it just my DH is extra annoying at the mo?!). Previously in the WTF cycle my period adjusted back to norm really quickly with a reflexology session but this time its totally squiffy, I think it must be to do with cyclogest I was taking when pg as I seem to react ridiculously to any drugs - gggggrrr!

hi baking nothing much to report here. just lurking about counting down the days until we can begin the tests. hope you are doing ok? have you got the Dr Q appointment yet?

Hi everyone, hope everyone is ok, I'm still waiting to have tests done after my 3rd mc, I thought while I wait I would try and be a bit healthier, I've cut out caffeine and I was thinking of talking vitamins, have already been taking folic acid and high dose vit D3, vit D3 on the advise of my orthopaedic surgeon, he assures me this will also be fine if I got pregnant?? Can anyone advise? Xx

Hi everyone
Polka, I got my period after DTD with DH, so maybe worth a try if you're up to it?! Yes perhaps I could chase results - I'm could definitely be more proactive. I'm usually very on the ball - this all seems to have thrown me. I can't bear reading all about it. It feels boring, but it must just be a defence mechanism as boring it ain't!

Purple - no advice on the D3, but I had tests at GP for vit D, folic acid levels and also vit B12. I take high does folic acid (but only because other medication I take may interfere with my levels), algae oil (like fish oils, but vegetarian) and Solgar prenatal vits. Although turns out there was a chromosome problem with last mc anyway so none of this may have made a difference. Although I did read there may be a link between low folic acid/B12 and chromosome difficulties.

Baking, enjoy the festival. Hope it takes your mind off things.

I had a positive OPK last night, just after a major vomiting fit had hit me and DH! So not in the mood to DTD, but we did anyway. Prior to that I had got sick into a bin in a crowded commuter train on my way home from work. I had to ask people to move out of the way of the bin, it was that packed. The lovely train conductor put me sitting in the train driver's second mate's carriage, which had the window open with a lovely breeze. V kind!

Hello ladies, hope you've fared the last 24 hours' news without too much distress? Got AF on Sat, only lasted 3 days, but they were always v short (part of the problem?). Oh, to be 'normal'! Best wishes for tests, normality and holidays to all! X

Donttry hope you are feeling better.

Hi everyone.
Hope you don't mind me still hanging around. I was going to pop on and say I hope you're all doing ok despite the 24 hour baby news coverage. Its so tough for those suffering with infertility and mc

Donttry I hope you feel better soon you poor thing! Nothing more unromantic than DTD when poorly because you've got a positive opk!

Baking sounds like you've got a fun summer planned. I hope it means you have some lovely memories to look back on rather than all the horrible ones of the past couple of years.

Purple I took high dose vitamin D as I'd read it could help (wasnt advised by a medical professional). Anyway seems to have been ok as I'm now 13 weeks pregnant. I was told that high dose vit C and omega 3 (which I was also taking) shouldn't be taken with aspirin (which I took) as they can also thin the blood. I didn't stop taking them but did reduce the dose and took them at different times to the aspirin. No idea if that's the right thing to do!!

I had a lovely weekend as it was DDs bday (same day as royal baby) and it was such a nice contrast to last year when I spent the day miscarrying while entertaining a house full of people! I am feeling quite content at the moment although the 20 week scan seems so long away and until I feel movement I can't help but feel anxious. Debating whether to have another scan but maybe these feelings never go after rmc? Also been thinking about vbac vs csection. I really think that because of the mc I genuinely don't care how a baby arrives as long as it is ok. I have no desire to experience a natural birth, I would just feel so grateful to get a baby! Maybe a small positive to come out of this.

Anyway even if I'm not on here as much as before I check on you all the time and you're all in my thoughts. I'm definitely not out of the woods yet so if you don't mind I'm not moving off this board yet!!

DontTry I have DTD since mc but nothing and I'm now sooo bloated I feel like a whale and completely unsexy I hope you're feeling better though, how horrid to be feeling/being pukey on a packed train in this heat - blaggghhh!

Tea great to have you here still offering us non-grads support, so glad you enjoyed your DD's bday weekend. It always surprises me now having had 3 mc that there are so many things that remind me of one or another of them - anniversary of the day, due date, date it all went wrong etc etc it's certainly a cruel old world.

Please stay around Tea we need some success stories to remind us it's possible.

Yes Tea please stay here! You still need support and we need the happy story! If I get preg again I will definitely be staying on here. In fact I'm not sure if I will go onto an antenatal thread at all this time - maybe in the second trimester. There were a lot of mcs in my last antenatal thread though (Jan 2013). In my first (March 2010) I can only remember the one, and it really stuck out. She had had a dream about a beautiful girl called Genevieve I think, sitting by a lake. She woke up and she was bleeding and miscarried. Happily a few months later she conceived again and gave birth not too long after the first baby had been due. I'll always remember that.

Polka - oh the bloating. Arghh!
I've bought The Shred. I have never done an exercise video but really feel bleurgh and would love to feel better. Anyone tried it?

Jan 2014 I meant.

I haven't done the Shred, donttry but am finding doing C25K is very beneficial. I think anything that makes me feel physically fitter and better about my useless, repeatedly letting me down body is a good thing. Let us know how you get on!