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Miscarriage/pregnancy loss

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Please help - facing 2nd termination for medical reasons

30 replies

ladystardust123 · 05/10/2012 08:34

I can't quite believe I'm writing this. On January 18th this year, I lost my ds at 24 weeks pregnant. We had had bad news at our scan just after 20 weeks. At first the doctors thought it was a chromosomal disorder like Edwards or Pataus syndrome, but the main problem was that his head was far too small. It measured 16 weeks when the rest of him measured correctly at 24 weeks. This was my first pregnancy.

I got through the delivery and the hard, hard months that followed. My sil and one of my best friends had beautiful babies in the weeks around my due date. I started to feel better about six months later. It's such a cliche but true that time is a healer.

The doctors had told us that they didn't know what was wrong with ds (he had all his genes tested) but that it looked like dh and I were autosomal recessive carriers of a wrong gene and that any future pregnancies carried a 1 in 4 risk of the same thing happening.

On July 9th this year I got my second bfp. Dh and I were pleased but very anxious. In theory we had a 3 in 4 chance of this pregnancy being ok so although we were realistic, (and I guess somehow preparing for the worst), the few close friends and family we told were much more optimistic. Our scan at 10+5 went well and the baby measured correctly and this allowed us to get our hopes up a bit (with ds he had measured a week behind in the very first scan).

We then had a scan at 14 weeks, two weeks ago. This time the baby measured fine apart from the head which was a week behind. It was like a horrible dejavu nightmare - the same scanning room, the same wait to get a consultant, the same ushering into the bad news room. We were told that it wasn't looking good but we had to wait a further two weeks for confirmation.

And that was yesterday. I'm 16 weeks pregnant today. Our scan yesterday showed that this baby has exactly the same problems as ds. His head has only grown 2 days in the 2 weeks. Like ds, this baby has no chance of life - its brain is simply far, far too small. I have to go back to hospital today and take pills and then go in on Sunday for delivery - I'm too far gone for a medical abortion.

I feel numb. I can't believe that within 10 months I will have given birth to two dead babies. It sounds so horrible even writing or thinking that. My babies. My desperately wanted babies. Dh and I have a strong relationship and I love him to pieces. We both are so keen and so ready for children and he would make such a good dad.

I'm sorry for writing such a huge essay. It kind of helps to write it all down. I think I remember reading a similar thread quite a while ago. I guess I'm reaching out and asking if anyone else has been through this too. How do you get through it? I feel so very tired at the thought of having to go through the months of sadness afterwards. I hated feeling angry and sad last time and I'm dreading feeling the same way again. We have lots of friends who are currently pg and I just feel like I can't deal with it all again.

Also, has anyone had a tfmr at 16 weeks? I imagine in some ways it won't be as traumatic as the one at 24 weeks but I'm still scared. Last time we held ds, took photos and spent time with him. He was small but still very much a baby. I'm worried that this baby (the doctors think but aren't sure that it's another boy) will be much more fetus-like and I don't know how I'll feel. At least in my previous pregnancy there was lots of happiness before our terrible scan. With this pregnancy, it's been so different.

Thank you for reading.

OP posts:
xkcdfangirl · 09/10/2012 15:15

So sorry to hear about both your losses. Wishing you the strength and courage to get through this bleak time.

Could you give your baby a gender-neutral name? - giving a name can really help with the grieving so I totally understand how not knowing the gender is making it difficult. Names like Jessie, Leslie, Jackie, Jerrie, Bobbie etc will fit both a boy and a girl so you could give one of these names.

I know it's too early to think about trying again just yet, but when you feel ready talk to your GP about whether they can help you access IVF assistance - it is possible for some of your eggs to be extracted and fertilised, and then only the embryos which are unaffected by this issue would be kept. They wouldn't have offered it immediately as there was as you know a good chance of things being OK second time around, but depending on your local health trust they may be willing to help after two such tragic situations in a row.

SJ47 · 09/10/2012 22:29

I wanted to come back on and see how you are doing. I'm glad things went smoothly - for want of a word - on Sunday and that the physical part is over, although I know it's just the tip of the iceberg as far as grieving, needing answers and mentally dealing with your losses.

Stay strong, and I hope you are able to name your beautiful baby soon. Take care, x

EugenesAxe · 09/10/2012 22:46

I'm very sorry to hear of this bad time you and your DH are going through. Please focus on all the lovely MNers posting with good news baby stories about people that have been where you are now.

Wishing you all the best x

Countmyblessings · 21/10/2012 23:00

So very very sorry words just don't seem to be enough!
Thoughts and prayers with you and yours xxxx

chipmonkey · 21/10/2012 23:46

ladystardust, I am so very sorry for your losses.
I lost my baby girl to SIDS last year so know the pain of losing a baby and I'm so sorry that you had to go through that pain twice and that pregnancy will always be such a worrying time for you.
When dd was born prematurely, a lot of babies in the prem unit had been given "nicknames" by their parents, because they had been born long before their parents were ready to name them. Could you do that temporarily until you know the gender? And then have a boy's name and a girl's name picked out.
Much love to you xx

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