Molar pregnancy?

8 replies

Emmie412 · 18/03/2012 16:19

I have recently been diagnosed with complete molar pregnancy and just wanted to know if there are any others suffering from the same?

OP posts:

Pocketsocks · 19/03/2012 00:06

Hi there, I had a partial molar back in 2007. Took a few months to get my levels at normal but I managed to avoid chemo. I have since gone on to have a successful pregnancy.

How are you getting along?

Original poster

Emmie412 · 19/03/2012 07:52

I am waiting to hear from the Charing Cross hospital - should be this week. I had ERPC done a week ago at St Thomas' and been spotting since then. In the initial blood tests my HCG was 62 000 and I presume it climbed higher as had a few days between the op and the test.

I have a two year old DD so I am doing ok, just think that hospital staff could have been nicer, my experience wasn't great - can only imagine how upset you'd be if it was your first pregnancy.

OP posts:

alex3333 · 19/03/2012 19:29

Hi there, I too suffered a complete mole back in 2008. I found it a very stressful and anxious time. Luckly I also avoided chemo. My levels were very high and the took a few months to return to normal. I actually felt that I was having a breakdown...probs due to my hormones. I was then tested for 6months after then. I was given the all clear and conceived pretty much straight away. I now have two healthy boys who keep me on my toes.

I know how you feel right now but please try to stay positive and take some time to rest and get yourself well again.

I was supported by the hospital in Sheffield...who were lovely.

Take care and best wishes
Alex

alex3333 · 19/03/2012 19:31

Also there is a support group for molar pregs...google it as not sure of name. I found that really useful

Pocketsocks · 20/03/2012 01:34

My eldest was a little under a year and a half at the time, he was definatly a big help in my keeping it together.

I didn't find out with mine until a few weeks after my ERPC for a "missed miscarrige" I was late for my 12 week scan and had it at 16 weeks insted, to be told the baby had died at 8 weeks.
I was summoned to the hospital in a hurry and informed about molar pregnancies, it took me a while to grasp the Dr was saying that was actually what was happening to me as opposed to an informative chat about possibilities. The rest was all a bit of a blur but I remember how stressful it was waiting for the all clear, constant blood tests and urine tests and lots of waiting.

I wish you the best of luck, I'll keep my eyes peeled for this thread if you need to talk things out or anything in the coming months. Knowing other people going through similar was a godsend for me as no one in real life had ever even heard of it.

AitchTwoOhOneTwo · 20/03/2012 01:43

very sorry to hear your news, Emmie, it's a rotten shame, molar pregnancies are such a cruel thing to deal with.

Original poster

Emmie412 · 22/03/2012 08:36

Thanks for all the well wishes.

Have just received my first test kit in the post, my local GP won't do blood tests so have to go to the local hospital to get them done. Such a faff! How did you all get your results - did they come in the post?

OP posts:

artifarti · 22/03/2012 18:48

Hi Emmie - sorry to hear what you are going through. I had a CMP last January and was also treated by Charing X. I was lucky that my levels went to normal quickly and I am now pg with DC2. It may not feel like it right now but things will get better, I promise.

With Charing X I used to send my tests on the Thursday and phone on the Monday for results (number is on their molar website). They were always lovely to deal with. I also went to a patient day there which was very useful and informative.

I recommend the molarpregnancy.co.uk forum - lots of people on there gone through/going through it. But also come and ask us any questions - or if you need to rant or rave. xx

Flip