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Recurrent MC--Testing and beyond--Part 5 continues here

999 replies

LAF77 · 02/05/2011 09:23

Here is the list of us on the thread and where we are in our journey through RMC. Nearly 4,000 posts in a year, so mark your place for the next thread.

Part one Part one

Part two Part two

Part three Part three

Part four Part four

STARTING TESTING
LOLA78: mc1 Dec 07 (6wks), DD Oct 08 (problem free pregnancy and natural birth), mmc2 Nov 10 6wks ERPC at 10wks, mc3 Feb 11 at 7wks - suspected ectopic but mc naturally, mc4 mar 11 at 5wks (started 75mg aspirin from a week before bfp) - hospitalised for excessive bleeding and clots. Now referred for testing at local fertility clinic, we have started having blood tests and am on 5mg folic acid.
SCOOTERCHASTER: DS Oct 08 (managed for SVT heart from 35wks), mc1 Sept 10 (7wks), mc2 Dec 10 (9 wks - hb @ 8wks), mc3 April 11 (7.5 wks, hb day b4 mc).
HAIRYLIGHTS, age 42, MC1 (Jun 10, very low HCG, suspected ectopic, methotrexate), MC 2 (Nov 22 2010, MMC,ERPC, no heart beat at ten weeks, fetus 8 week size), MC3 (MMC - Medical Management, Feb 13 2011, MMC at 7 week scan). Waiting to TTC
PANDA 3MMC, no.1 (embryonic loss - empty sac) 7weeks, no.2 at 12 weeks, no.3 at 8 weeks. Awaiting raft of tests for recurrent MC
CLAIREDELOON Age 38 1st mmc, development stopped approx 5 weeks (2007), 2nd mmc development stopped at approx 6 weeks (2009), 3rd mc development stopped at 9 weeks after seeing hb at 8+3 (2010). Bicornate uterus, starting testing Feb 2011.
NOTSOBARRENBROOK Age 35. 1st mmc @ 6 weeks (Jan 2009), 2nd mmc @ 6 weeks (Jan 2010), 3rd mmc @ 11 weeks, development stopped at 6 weeks 3 days (March 2010), 4th mmc @ 5 weeks (August 2010). Possible adenomyosis, awaiting hsg and results of testing from St Mary's.
MILKYWAY2007 Age 28 - DD age 3. 1st MC Oct 2009, 6 weeks. 2nd MMC March 2010, 11 weeks (baby passed away at 7 weeks). 3rd MC July 2010, 6 weeks. 4th MMC 24 Jan 2011, 9 weeks - no amniotic sac, baby measured 7weeks 4 days, no HB, had seen a healthy HB at 7 weeks. Blood clotting, hormone, genetic karyotype and shape and health of uterus checked and all clear. High dose folic acid prescribed.
LUCKYFOR2 Age 32 - DD age 5. DD age 3. 1st MC May 2010 found at 12 week scan passed away at 9 weeks. 2nd MC September 2010 natural at 8 weeks. 3nd MC January 2011 at 16 weeks, saw hb at 13 but no hb at 15.5. All tests have come back clear. Going to take Aspirin and Progesterone in next pregnancy (will be on Promise trial) currently ttc.
IGGI999 - Age 40, 3 year old DS. 3 MC last year, at 6, 8 and 8 weeks. Last two had hb detected. NHS blood tests came back clear, except for presence of antinuclear antibodies. To take aspirin for this. Going to see Shehata in May as think steroids are needed.
CONFU3ED - Age 35 1st MC 1998 14 weeks. DD age 11. 2nd MC July 2009 5.5 weeks. ERPC Twice. No tests. 6 months Clomid 3rd MC January 2010. The foetus sent for testing - came back fine. Been referred to recurrent MC clinic at the hospital for tests, waiting for appointment. Was told I have PCOS through a scan but never diagnosed.

UNDERGOING TREATMENT
HAVINGKITTENS Age 41 - MMC1 Nov 07 8wks (discovered due to bleeding at 10.5wks) ERPC, TOP1 for TS21 Aug 08, TOP2 for TS21 Feb 09, TOP incomplete, ERPC performed, Genetic Counselling & tests confirmed no chromosome problems with us, "just bad luck ", MMC2 Feb 10 5.5wks (seen at 8wk scan, no bleeding), MMC3 May 10 (as MMC2), RMC testing at UCH, no cause found - empirical 75mg asprin & vit D + early & regular scans for next pregnancy, MMC4 No fetal pole seen at 6.5 wks, follow up scan 10 days later, told of MMC, then "Something" spotted so instructed to wait another week before they would allow ERPC, ERPC a week later, waiting for NK Cell test results from Mr S on NHS, taking 75mg Asprin, Vit D, Pregnacare Plus (w/Omega 3), 5mg Folic Acid (been taking since 1st TOP to try & prevent TS21 or similar issues), NK Cells levels almost double what they should be. 25mg Prednisone from ovulation - CD1 or if BFP then 'til 12 wks and then weaned off 'til 14wks plus Progesterone pessaries from BFP - 16wks, Folic Acid, Omega3, Vit D - 12wks, Asprin - 20wks.
CRYSTAL5 Age 38 - DS age 4. 6 m/c 1 at 11 weeks, 5 at 5/6 weeks. Ok blood tests, under Endocrinologist for Hypothyroid
LADYBEE 37, MC1 (5wks), DS (2), MC2 blighted ovum discovered @ 8 wk scan, MC3 natural @ 9 wks following hb seen at 7 1/2 wk. PCOS previously diagnosed, Factor V Leiden heterozygote discovered in recent testing. Treatment with aspirin (from BFP) + clexane started at 6 weeks. MC4 MMC @ 8.1 wks (discovered @ 11 wk scan) following hb seen at 6+6 wks. Consultant suggests aspirin + clexane to start at 4 weeks, plus progesterone pessaries. Management of MC tbc.
DIGITALGIRL Age 32 - DS 2.8 - 4MCs since ttc#2. MC1 Nov2009 @5wks. MC2 Apr2010 @6-7wks. MC3 Oct2010 @7-8wks. MC4 Mar2011 @8wks. All natural, except MC4 managed with ERPC for karyotyping. Clotting tests normal. DH & I genetically normal. On Metformin for mild PCOS, plus 75mg aspirin, Pregnacare Plus & 25mcg VitD3. Diagnosed with high NK Cells (1.25) after MC4. Starting TTC in May with prednisolone from ovulation and will add cyclogest once pg. Under care of Mr S.
PUREEQUEEN Age 34, MC1 (7 weeks Jan 08) MC2 (6 weeks March 08), DS born (prem) 2009, MC3 (9 weeks Oct 10). MC4 Jan 2011. First 2 natural mcs latter 2 mmc/ERPCs. Chromosome test MC4 showed she had a genetic abnormality (cri du chat). Karotyping for me and DH fine but with "increase in length on satellite of short arm 13 and 15" (??) . Also have endo &septate uterus. Now TTC and will take aspirin and progesterone.
LAF77 , Age 33, MC1 (7 weeks Apr 10) MC2 (5 weeks Sept 10) MC3 (9 weeks Dec 10). All have been natural mcs and number 1 and 3 were embryonic . No children, First appointment with St. Mary's in April, second round of bloods in May, with results in June.

PREGNANT
MATTSMAMA Aged 41. 1st MMC November 2004. My DS (who I love with all my heart) born 2006. 2nd MMC July 2010. 2 chemical pregnancies September and October 2010. Under Dr Shehata and got BFP on first round of treatment for high thyroid antibodies and high killer cells.
BANANA87 Age 30- 1mmc@7 weeks, DD (2), 1 mmc 6 weeks, 1 mc 7 weeks, Going to try aspirin and progesterone as per consultant. Clotting bloods normal.
MUMMYABROAD Age 36, 1DS (2.9), 1MMC Mar 2010 (@14weeks) Ashermans diagnosis and treatment Nov 2010, Started TTC Jan 2011 BFP on Cycle 2 EDD 4/11/11. Heartbeat seen at 10 weeks.
GLITTERYBITS 1 anembryonic MC (12 weeks), unexplained infertility, 1 round of clomid, currently pg and terrified!
JUSTMEE Age 21, MC1 (7 weeks), MC2 (6weeks), MC3 (5weeks) currently pregnant with 4th pregnancy using clexane injecting 20mg a day
LOVELYBUNCHOFCOCONUTS Age 23, 1 MC (13 weeks), 1 MMC (10 weeks - growth stopped at 7), 1DD born 2008, PCOS diagnosis, bi-cornuate uterus. EDD 03/10/11
LOVEMYSLEEP Age 39, 1 mmc, dd born(now 5), 2nd mc (9wks, 2days), 3rd mc (9wks, 3days) and 4th mc at 5 wks. All tests on NHS came back clear. Currently undergoing treatment with Dr.Shehata for very high natural killer cells - aspirin, progesterone, steroids, omezaprole and one intralipid infusion completed.

GRADUATES WITH BABIES!!
LUNATIC dd1(4) 2 mmc (8 wks) dd2 stillborn (32+5). Seen at St Mary's. clotting problem, pg #5 aspirin 150g daily. Ds1 born 9/2/11 c/s @ 35 wks
STILLFRAZZLED Age 35, DS1 (3.6yo), 1 mc @ 5 weeks Jan 09, 2nd mc @ 9 weeks March 09, DS2 born @ 35+3 on 04/01/11 with Intra Uterine Growth Restriction but currently home and doing well.
MUMATRON Age 28 2 dc then 4mc, 3 @9weeks 1@5weeks, tests showed possible free protein s ishoo. dd2 born 06/01/2011, aspirin, claxane and high dose folic acid through pg.
JULEZBOO Age 29 1 mc @ 14 wks, DS1 (8yo) 4 mc @ 5/6 wks, DS2 (3) 2 mc @7 wks... DS3 (14/01/11 @35 wks) Dx with Factor V Leiden and Septate Uterus. Clexane and Aspirin throughout pregnancy and progesterone with DS3.

OP posts:
freelancegirl · 17/05/2011 14:25

Hi everyone,

I?ve been off this thread radar for a while ? lurking but nothing to say.

Igg I can?t advise about faint lines on sticks but I have heard some people say ?a line is a line? and also that lines are not always to be trusted. I know that doesn?t help. I would email Dr S?s midwife and see what she says if you WERE to get pregnant. Would you need to start steroids straight away? Does your body start to attack anything straight away or is there something of a breathing space before hand?

Kittens how is the Dr S experience going for you?

Sorry for the newbies in terms of having gone through mc, there is wealth of information and support here to fall back on.

I have a question about Dr S that I am wondering if any of you can help me with.

I am in limbo at the moment, waiting for an appointment to be made. I have just spoken to his office and apparently there are a few of us waiting for NHS appointments but they haven?t been processed yet. When they are processed there is then usually an average of 8 weeks to get the appointment.

I was wondering if anyone had been privately first and then had the NHS kick in? A private appointment would only take a few weeks.

They told me to keep calling every week to see if an appontment has been made but I am not sure whether I should bite the bullet and just arrange a private one. I would do this if I knew the NHS payment would definitely kick in afterwards, but what if it doesn?t?

Havingkittens · 17/05/2011 15:10

Iggi, don't panic yet. I got a feint line after 10 mins just before I got my test results back and panicked and then the next few were blank. If you're only 10dpo I'd say get a First Response test as they were the ones Mr S's midwife recommended I used at 10dpo if I wanted to come of the steroids a bit earlier. If it is +ve then give her a call and see what she says. I reckon, if you are pregnant then it's better to get a prescription as early as possible rather than just leaving it. I know you're supposed to be on them from the day of conception but if that's been an gone you probably need to do the next best thing.

Freelance I was going to try it the other way around. I had the NHS appointment but was considering going private to get the results back quickly before they decided it would be more efficient to do phone consultations, and then go back to NHS for the treatment. Mr S said that would be fine as I was already in the system. He told me to call his private midwife and have a chat with her. Maybe it would be worth you doing the same. Tell her you are waiting for your appointment to be processed but that you are concerned it will take a while to get an appointment and want to set the ball rolling. She can only say no, that won't work. If you don't ask you won't know though!

Well, I am just approaching my surge judging by the feint line on my OPK today so OH is under strict instructions to come home and "see to me" before I go out this evening. Might even try and get another one in when I get back if that's not too much to ask from a 46yr old man! Last cycle was the first time on the steroids and unfortunately they made me feel like crap so I told him we need to make a more concerted effort this month so I can get the steroids experience over with asap. This is also why the midwife suggested doing an early First Response test so I can stop them before the 14 day cycle is finished. I'm hoping my body gets used to them though and my side effects calm down. So many people seem to be fine on them and I've been fine on them in the past for another problem.

freelancegirl · 17/05/2011 15:31

Oh yes, Kittens, I remember when you cancelled your NHS one.

I have been on to them quite a bit today - they are so helpful. Basically if I want for an NHS appointment I won't get to start ttc (my calculations) until almost Sept! Even private appointments are now coming it at 20th June, and then of course there's the wait for test results etc.

I spoke to DH and he agreed we should splash out and go private for the first appt and then that (Dr S office agree this would happen) NHS can kick in when treatment is required. It means it will be £250 for initial consultation and whatever tests are done. Luckily I have a few done on the NHS which will hopefully save money. I think NK cells is around £200. But I know I definitely have high thyroid antibodies.

ANYWAY - the thing is, I called up to say sod it let's book that first private appt on 20th June and it turns out they have had a cancellation and can fit me in THIS THURSDAY at Ashtead. Gulp. So it looks like I will soon be out of limbo!! Am a bit shocked!

Havingkittens · 17/05/2011 16:02

Wow! Good for you!

If you can get the meds on NHS that would save a bit. Regarding the scans, I don't know how it works privately but on the NHS they said I can just have the 6,8,10,12, 14 weeks scans at my own EPU (or in my case Fetal Medicine Unit) and they will keep in touch which is great as it means I don't have to schlep all the way to Carshalton every couple of weeks. I'm guessing (may be wrong) that privately you have the scans at his clinic which I'd imagine would be expensive.

Best of luck for Thursday then.

freelancegirl · 17/05/2011 16:41

Thanks! It's madness isn't it - I have gone from waiting until probably July for a first visit to seeing him in 2 days! Am 37 in July so I wanted to get it done as soon as pos. I feel I have made the right decision, sod the money.

They said a lot of people do that whilst waiting for the NHS - go along initially as private and then after that initial consultation and tests hopefully the NHS will kick in. Like you I might suggest phone consultations (can really only stretch to this initial outlay) and hopefully I too can have the scans at EPU (if or when I get to that stage!). One thing I did ask though, which might be worth you mentioning, is that once I had started to see him could I change WHERE I see him - they said yes. So maybe you don't have to go to Surrey every time? Or was that about scans rather than seeing him.

Roll on thurs :) am making a big list of past ailments just in case and going to see my GP tomorrow to get all the exact results of what I asked them to test for post-mc a few weeks ago. I have had quite a few done which is good. What sort of thing do they ask you?

Havingkittens · 17/05/2011 17:46

I don't think I need to see him as well as having scans. I don't know yet. I guess I'll cross that bridge when I come to it but I think on the NHS I probably can only see him where he practices on the NHS which is the one hospital whereas privately he is in a few different clinics.

He got most of the notes from my GP and hospital records so didn't really ask that much as he knew most of it. It was pretty much verifying what information he already had. He doesn't ask about any past illnesses but I think he asked if I suffered from IBS and a few other things. I have to admit I don't really remember!

igggi · 17/05/2011 18:14

Freelancegirl try to get the results that look like lab records (the numbers, not just "normal" or whatever), he seemed pleased with the ones I had to give him. Saved me money too, only needed 3 tests done.
Well I've tried another first response and is def a line there. I might allow myself a few minutes of being pleased before I find a way to play this (eg pretending it's not happening!)

igggi · 17/05/2011 18:14

Freelancegirl try to get the results that look like lab records (the numbers, not just "normal" or whatever), he seemed pleased with the ones I had to give him. Saved me money too, only needed 3 tests done.
Well I've tried another first response and is def a line there. I might allow myself a few minutes of being pleased before I find a way to play this (eg pretending it's not happening!)

luckyfor2 · 17/05/2011 20:42

freelance great you've got in to see him so quickly.
iggi I'd like to say congratulations but I know you must be feeling abit stuck now. I'm sure Mr S will have a plan when this happens.

freelancegirl · 18/05/2011 00:19

Oh gosh Igg, it sounds like a line is a line!! Have you spoken to the midwife? Do you have the steroids to take now??? I would say congratulations too but I know if I am ever in that position I wouldn't want congratulations. But we are 'travelling hopefully' with you (it's a long story, born of another thread, but I think it describes how some of us have been feeling). Fingers crossed for a sticky one.

Yes that is good advice about the tests, am hoping I will only need NK cells done. I have a good list of them and I will be going to the docs tomorrow to get the actual numbers (where available) too. I am sure too, as Lucky says, that Mr S will have a plan when this happens. Do let us know how it goes!

And yes LuckY I can't quite believe I have got in to see him so quickly too! I mean it's taken a bit, my referral was sent on the 5th April and went missing, but I was fully prepared for it to take another few months for the NHS and even privately to wait. So it's all happened very quickly.

Havingkittens · 18/05/2011 10:30

Gosh Igggi, your heart must be in your mouth! Have you spoken to Mr S's midwife/secretary yet?

...whispers congratulations...

gracebf · 18/05/2011 11:07

Just wanted to say thanks as went to GP this morning armed with information and names of specialists thanks to your replies.

My GP was very responsive and is going to do everything she can to get me to see either Dr S or Lesley Regan. She thinks the best way to do it is to get seen by consultant at local hospital first and then when tests come back negative to push for referral to get other tests like nk tests done. She will help me get list together of additional tests I would want nearer the time.

She also thinks i might have a clotting disorder due to the nature of the miscarriages. I forgot to ask her whether the tests done by consultant at local hospital include testing for this. Does anyone know? I read that its called antiphospholipid antibodies.

This is the one I really want testing asap and dont want to hang around for local referral if they dont even test for this. Would rather start off privately too to get this tested first. Any ideas?

Have ERPC but feeling better now i have a bit more info about where to go next. Of course it does not mean it will work out, but i feel more in control.

Thanks again.

gracebf · 18/05/2011 11:07

Sorry meant to say, have ERPC next week.

freelancegirl · 18/05/2011 11:16

HI Grace

I managed to get my GP to test for antiphospholipid antibodies on the NHS. You might have heard this already but you can also ask for thyroid antibodies, anti-nuclear antibodies and a few other bits and pieces. I had a list somewhere that I can't find but I am going to my GP later and can ask what tests I have had. Vitamin D is also very important.

gracebf · 18/05/2011 11:26

Thanks 8freelancegirl*. I did not know that as only just starting all this research. She did not mention that she could order tests this morning. IS it worth me going back and asking for her to do that seperately to the referral?

I have had v low Vit D in past but think its up to 70 now. Was at 40 so should have been ok this time round. Any information would be great as helps to have starting point. A list of test that I should get would be great. I know then what to ask for as I think unless you have some knowledge of this and a a bit pushy ( in a nice way), nothiing gets done quickly.

Havingkittens · 18/05/2011 11:39

Grace the local hospital should test for all the blood clotting things including antiphospholipid antibodies, MTHFR, Antithrombin, Lupus etc. I had about 13 vials taken! If you have a read of Leslie Regan's book it explains all these tests so it's a good one to read before you go for your initial appointment so you can be armed with the right info. Alan Beer's book is much more involved and can be a little overwhelming I found, although it does go into the NK Cell and other immunity theories and covers the blood clotting stuff too. Leslie Regan's book is much easier to take in at this stage I would say.

The one thing I would say is that you will need to wait a while after your ERPC for all your hormones to settle down. Probably about 6 weeks, but not entirely sure. I had already had my referral to the RMC before I became pregnant for the 4th time so when I had my 4th MC my appointment was only a couple of weeks away (the midwife told me to keep the appointment and hoped I would be able to cancel it once I'd seen a hearbeat on my 8wk scan but sadly it didn't work out that way). I ended up having to have some of the tests again because the remaining pregnancy hormones were interfering with the results.

digitalgirl · 18/05/2011 16:30

igggi congratulations! Am sure if you call the clinic they will send you a prescription asap. Unless you have a history of chemical pregnancies you'll probably be fine if you start taking the steroids and progesterone now.

grace Lesley Regan doesn't test for nk cells, but she does do an extra sensitive test for a thrombophilia which I don't think any other hospitals do. So if you want to rule out both nk cells and all clotting disorders I'd suggest getting your gp to refer you to Mr S and getting the hospital consultant to refer you to St Mary's.

Another pregnancy announcement today Sad. One of my best friends who's 14 weeks. Figured that she must have just found out she was pregnant when I was having my erpc. She's been trying to tell me for a few weeks but I've been too busy. She's so excited and I'm very happy for her but so so sad for myself. I hate that miscarriage has stopped me from enjoying getting excited with friends for their pregnancies. It's so unfair that everyone else can be so happy and excited when they're pregnant while for me it's just so much worry and anxiety. I even hate it when peole announce their pregnancies when I'm pregnant as the last four times they've all gone on to have their babies while I've miscarried.

igggi · 18/05/2011 18:06

Digital it's awful isn't it. I hope one day in the future I'll be able to (genuinely) share in someone else's good news, but I doubt it. I am home with steroids and progesterone. It was very expensive! I am trying hard to suppress any shadow of hope. There was talk from midwife today of booking a scan, and an appt for "when you're nine weeks". I just feel this jinxes me.

LAF77 · 18/05/2011 21:33

Digital I'm right there with you. I think a friend of mine if pregnant. She has avoided alcohol on the last 2 occasions I've seen her and wouldn't have a cup of tea. I'm immediately suspicious. I should be happy for her as she has had one miscarriage and hasn't conceived easily. There are so many feelings that I have. I'm ashamed that I can't be happy for her (even though she hasn't said anything!) I just had my 34th birthday and I'm happy to close the chapter of the worst year of my life. I wasn't expecting not to have a baby or be advanced in pregnancy by this time in my life. But that's the way it goes.

OP posts:
igggi · 19/05/2011 21:58

Laf happy belated birthday and I do hope your next year brings you some joy.

I'm trying to think that within a year I will have either had some joy myself, or at least the peace of giving up after trying all I could.

(Not suggesting you should be giving up Laf, I have at least 6 years on you Smile )

Havingkittens · 20/05/2011 09:48

Igggi is your first scan at 9 weeks then? I'm surprised by that. I was told to have them at 6,8,10,12 and, I think, 14 weeks (but not sure). I might have to set up camp at the hospital! I may even end up going in for a CVS at 11 weeks too because of my past history but I'm not sure yet. It's hard to know what to do. I don't know whether to talk about that on this thread though as I don't know what people's general feelings are. There was a very inflammatory thread a few weeks back in Chat about terminating for chromosome abnormalities so I don't want to get flamed or upset anyone.

So, just starting 2ww now. Day 2 of Prednisolone. Hoping this cycle will be a bit calmer!

freelancegirl · 20/05/2011 10:41

Hi all, Igggi was your test a definite positive then? Wow! Tentative congratulations. Have you spoken to the clinic yet to see what they recommend?

I had my first appt with Mr S yesterday. I can't believe it happened so quickly, having thought I wouldn't see him for ages. Went to Ashtead for it. It's really funny as it is the first time I have been private and in retrospect I was chattering away trying to get the appt over quickly so as not to take too much of his time up - too used to the NHS I guess. He was great though, we had a really good chat about thyroid antibodies and NK cells Grin. Luckily I had had most of the tests he would have done except of course for NK cells and also one other clotting one that I am going to my GP to ask for today. But it's pretty likely that I will be put on a course of steroids for the high thyroid antibodies. How long did everyone's results take to get back? How is Prednisolone Kittens? Any side effects? Hope all is well xx

Havingkittens · 20/05/2011 11:00

Hi Freelance, well, I've only just taken the second one so far this cycle so not sure. The last cycle wasn't too good for me but don't want to put you off as lots of people don't seem to suffer many side effects. The first 4-5 days were fine for me but then I started feeling a bit manic and found it really hard to concentrate. I was quite spaced out and shakey towards the end of the 2 weeks too. My waistline seems to have increased but I rather suspect that's got more to do with the last cycle being sandwiched between Easter and 4 days with my rather indulgent mum (Afternoon tea and cake and pudding every day!). Other symptoms were very similar to early pregnancy so at least it distracted me from trying to symptoms spot for pregnancy! V hungry & weeing a lot!

freelancegirl · 20/05/2011 11:23

Shame you are having side effects, maybe your body will be a bit more used to it this time? I asked Mr S about these (the 'moon face' thing in particular worried me Confused but he said the dosages are usually too low for that.

Also I have heard through Dr Google that sometimes when you get pg it can actually mask some of the symptoms too and make you actually feel better. Which isn't bad, but for anyone worried about lack of symptoms must be odd too.

Don't talk to me about waistlines. I have put on at least 10lbs since mc, all around the tummy! I think it is an excess of oestrogen. I am doing plenty of other ladies heads in by going on about this incessantly on another thread :) But I too am having far too many 'cheer myself up' afternoon teas, meals out and wine so it's probably my own fault too.

Keep me updated with how you are feeling! It's fascinating. Did you have High NK cells or just yer average normal killer ones? I visualise the little blighters like cartoon characters. There should be a NK cells emoticon. And a moon face one too just in case. Visualise them being wiped out by the steroids for some positive vibes!

Havingkittens · 20/05/2011 11:59

My levels were 1.45, I think that's quite high but I've seen other people have much higher. I rarely get bugs, colds etc. Even when my OH has a cold or throat infection and breaths it into my face all night long I seem to manage to evade them. The main "bug" that I used to get every year without fail was some kind of ear thing which made me really dizzy and spaced out so I'm hoping that maybe the steroids suppressing my immune system meant I got that bug and it's out of the way now. I did feel very dizzy and my ears were really popping and sore so fingers crossed that may have been a reason for me feeling so rough.

I visualise NK Cells like something from the old arcade games like asteroids or space invaders!

No moon face as yet, I'm very pleased to report! Can't say much about spots or excess facial hair as I'm fairly well equipped with both of those lovely features already.