Recurrent MC--Testing and beyond--Part 5 continues here

[LAF77]

Here is the list of us on the thread and where we are in our journey through RMC. Nearly 4,000 posts in a year, so mark your place for the next thread.

Part one Part one

Part two Part two

Part three Part three

Part four Part four

STARTING TESTING
LOLA78: mc1 Dec 07 (6wks), DD Oct 08 (problem free pregnancy and natural birth), mmc2 Nov 10 6wks ERPC at 10wks, mc3 Feb 11 at 7wks - suspected ectopic but mc naturally, mc4 mar 11 at 5wks (started 75mg aspirin from a week before bfp) - hospitalised for excessive bleeding and clots. Now referred for testing at local fertility clinic, we have started having blood tests and am on 5mg folic acid.
SCOOTERCHASTER: DS Oct 08 (managed for SVT heart from 35wks), mc1 Sept 10 (7wks), mc2 Dec 10 (9 wks - hb @ 8wks), mc3 April 11 (7.5 wks, hb day b4 mc).
HAIRYLIGHTS, age 42, MC1 (Jun 10, very low HCG, suspected ectopic, methotrexate), MC 2 (Nov 22 2010, MMC,ERPC, no heart beat at ten weeks, fetus 8 week size), MC3 (MMC - Medical Management, Feb 13 2011, MMC at 7 week scan). Waiting to TTC
PANDA 3MMC, no.1 (embryonic loss - empty sac) 7weeks, no.2 at 12 weeks, no.3 at 8 weeks. Awaiting raft of tests for recurrent MC
CLAIREDELOON Age 38 1st mmc, development stopped approx 5 weeks (2007), 2nd mmc development stopped at approx 6 weeks (2009), 3rd mc development stopped at 9 weeks after seeing hb at 8+3 (2010). Bicornate uterus, starting testing Feb 2011.
NOTSOBARRENBROOK Age 35. 1st mmc @ 6 weeks (Jan 2009), 2nd mmc @ 6 weeks (Jan 2010), 3rd mmc @ 11 weeks, development stopped at 6 weeks 3 days (March 2010), 4th mmc @ 5 weeks (August 2010). Possible adenomyosis, awaiting hsg and results of testing from St Mary's.
MILKYWAY2007 Age 28 - DD age 3. 1st MC Oct 2009, 6 weeks. 2nd MMC March 2010, 11 weeks (baby passed away at 7 weeks). 3rd MC July 2010, 6 weeks. 4th MMC 24 Jan 2011, 9 weeks - no amniotic sac, baby measured 7weeks 4 days, no HB, had seen a healthy HB at 7 weeks. Blood clotting, hormone, genetic karyotype and shape and health of uterus checked and all clear. High dose folic acid prescribed.
LUCKYFOR2 Age 32 - DD age 5. DD age 3. 1st MC May 2010 found at 12 week scan passed away at 9 weeks. 2nd MC September 2010 natural at 8 weeks. 3nd MC January 2011 at 16 weeks, saw hb at 13 but no hb at 15.5. All tests have come back clear. Going to take Aspirin and Progesterone in next pregnancy (will be on Promise trial) currently ttc.
IGGI999 - Age 40, 3 year old DS. 3 MC last year, at 6, 8 and 8 weeks. Last two had hb detected. NHS blood tests came back clear, except for presence of antinuclear antibodies. To take aspirin for this. Going to see Shehata in May as think steroids are needed.
CONFU3ED - Age 35 1st MC 1998 14 weeks. DD age 11. 2nd MC July 2009 5.5 weeks. ERPC Twice. No tests. 6 months Clomid 3rd MC January 2010. The foetus sent for testing - came back fine. Been referred to recurrent MC clinic at the hospital for tests, waiting for appointment. Was told I have PCOS through a scan but never diagnosed.

UNDERGOING TREATMENT
HAVINGKITTENS Age 41 - MMC1 Nov 07 8wks (discovered due to bleeding at 10.5wks) ERPC, TOP1 for TS21 Aug 08, TOP2 for TS21 Feb 09, TOP incomplete, ERPC performed, Genetic Counselling & tests confirmed no chromosome problems with us, "just bad luck ", MMC2 Feb 10 5.5wks (seen at 8wk scan, no bleeding), MMC3 May 10 (as MMC2), RMC testing at UCH, no cause found - empirical 75mg asprin & vit D + early & regular scans for next pregnancy, MMC4 No fetal pole seen at 6.5 wks, follow up scan 10 days later, told of MMC, then "Something" spotted so instructed to wait another week before they would allow ERPC, ERPC a week later, waiting for NK Cell test results from Mr S on NHS, taking 75mg Asprin, Vit D, Pregnacare Plus (w/Omega 3), 5mg Folic Acid (been taking since 1st TOP to try & prevent TS21 or similar issues), NK Cells levels almost double what they should be. 25mg Prednisone from ovulation - CD1 or if BFP then 'til 12 wks and then weaned off 'til 14wks plus Progesterone pessaries from BFP - 16wks, Folic Acid, Omega3, Vit D - 12wks, Asprin - 20wks.
CRYSTAL5 Age 38 - DS age 4. 6 m/c 1 at 11 weeks, 5 at 5/6 weeks. Ok blood tests, under Endocrinologist for Hypothyroid
LADYBEE 37, MC1 (5wks), DS (2), MC2 blighted ovum discovered @ 8 wk scan, MC3 natural @ 9 wks following hb seen at 7 1/2 wk. PCOS previously diagnosed, Factor V Leiden heterozygote discovered in recent testing. Treatment with aspirin (from BFP) + clexane started at 6 weeks. MC4 MMC @ 8.1 wks (discovered @ 11 wk scan) following hb seen at 6+6 wks. Consultant suggests aspirin + clexane to start at 4 weeks, plus progesterone pessaries. Management of MC tbc.
DIGITALGIRL Age 32 - DS 2.8 - 4MCs since ttc#2. MC1 Nov2009 @5wks. MC2 Apr2010 @6-7wks. MC3 Oct2010 @7-8wks. MC4 Mar2011 @8wks. All natural, except MC4 managed with ERPC for karyotyping. Clotting tests normal. DH & I genetically normal. On Metformin for mild PCOS, plus 75mg aspirin, Pregnacare Plus & 25mcg VitD3. Diagnosed with high NK Cells (1.25) after MC4. Starting TTC in May with prednisolone from ovulation and will add cyclogest once pg. Under care of Mr S.
PUREEQUEEN Age 34, MC1 (7 weeks Jan 08) MC2 (6 weeks March 08), DS born (prem) 2009, MC3 (9 weeks Oct 10). MC4 Jan 2011. First 2 natural mcs latter 2 mmc/ERPCs. Chromosome test MC4 showed she had a genetic abnormality (cri du chat). Karotyping for me and DH fine but with "increase in length on satellite of short arm 13 and 15" (??) . Also have endo &septate uterus. Now TTC and will take aspirin and progesterone.
LAF77 , Age 33, MC1 (7 weeks Apr 10) MC2 (5 weeks Sept 10) MC3 (9 weeks Dec 10). All have been natural mcs and number 1 and 3 were embryonic . No children, First appointment with St. Mary's in April, second round of bloods in May, with results in June.

PREGNANT
MATTSMAMA Aged 41. 1st MMC November 2004. My DS (who I love with all my heart) born 2006. 2nd MMC July 2010. 2 chemical pregnancies September and October 2010. Under Dr Shehata and got BFP on first round of treatment for high thyroid antibodies and high killer cells.
BANANA87 Age 30- 1mmc@7 weeks, DD (2), 1 mmc 6 weeks, 1 mc 7 weeks, Going to try aspirin and progesterone as per consultant. Clotting bloods normal.
MUMMYABROAD Age 36, 1DS (2.9), 1MMC Mar 2010 (@14weeks) Ashermans diagnosis and treatment Nov 2010, Started TTC Jan 2011 BFP on Cycle 2 EDD 4/11/11. Heartbeat seen at 10 weeks.
GLITTERYBITS 1 anembryonic MC (12 weeks), unexplained infertility, 1 round of clomid, currently pg and terrified!
JUSTMEE Age 21, MC1 (7 weeks), MC2 (6weeks), MC3 (5weeks) currently pregnant with 4th pregnancy using clexane injecting 20mg a day
LOVELYBUNCHOFCOCONUTS Age 23, 1 MC (13 weeks), 1 MMC (10 weeks - growth stopped at 7), 1DD born 2008, PCOS diagnosis, bi-cornuate uterus. EDD 03/10/11
LOVEMYSLEEP Age 39, 1 mmc, dd born(now 5), 2nd mc (9wks, 2days), 3rd mc (9wks, 3days) and 4th mc at 5 wks. All tests on NHS came back clear. Currently undergoing treatment with Dr.Shehata for very high natural killer cells - aspirin, progesterone, steroids, omezaprole and one intralipid infusion completed.

GRADUATES WITH BABIES!!
LUNATIC dd1(4) 2 mmc (8 wks) dd2 stillborn (32+5). Seen at St Mary's. clotting problem, pg #5 aspirin 150g daily. Ds1 born 9/2/11 c/s @ 35 wks
STILLFRAZZLED Age 35, DS1 (3.6yo), 1 mc @ 5 weeks Jan 09, 2nd mc @ 9 weeks March 09, DS2 born @ 35+3 on 04/01/11 with Intra Uterine Growth Restriction but currently home and doing well.
MUMATRON Age 28 2 dc then 4mc, 3 @9weeks 1@5weeks, tests showed possible free protein s ishoo. dd2 born 06/01/2011, aspirin, claxane and high dose folic acid through pg.
JULEZBOO Age 29 1 mc @ 14 wks, DS1 (8yo) 4 mc @ 5/6 wks, DS2 (3) 2 mc @7 wks... DS3 (14/01/11 @35 wks) Dx with Factor V Leiden and Septate Uterus. Clexane and Aspirin throughout pregnancy and progesterone with DS3.

Hi iggi congrats and thanks for replying!

Not been diagnosed with any problems but have been referred back to my nhs consultant as I've been having extremely heavy like flooding heavy afs since d nc lots of clots and bad pain that paracetamol doesn't touch!

Ive been told cos im young and I get pregnant pretty easily they can't really do anything on nhs which is frustrating!they just say its bad luck to keep trying but its taking its toll!

Think were gonna give it a last shot on our own then if ends in mc will then go private just so scared! Never in a million years did I think it'd come to this thought it'd be easy seems to be for my friends and family!

The only problem I do have I suppose is being naturally skinny runs in the family eat loads don't put weight on but loose it easily when im stressed! I eat loads a mixture of everything to be healthy though don't wanna eat unhealthily!

Feeling a bit stuck and in a rut so down about it all started to see councellorwhich is helping

Hi jules so sorry to hear of what you've been through, like LAF says you really should have been referred to a recurrent miscarriage specialist to find out what's going on. I am being treated on the NHS and it was very straightforward to get a referral from my GP. Don't let them fob you off with having time on your side and getting pregnant easily (this is the case for me too) the NHS will investigate after three miscarriages and wherever you are in the country you have a right to have those tests.

Hi to iggi from the other thread and Laf, I was lurking here debating whether to whisper about a very early pregnancy. Had my first scan today at 6 weeks and saw a heartbeat. Don't think I'll be graduating myself up the list quite yet but just thought I'd post it out here as a mini mini celebration moment.

Also just read back to see you are having a boy LAF hooray for you, such lovely news!! The weeks seem to be flying for you and I hope it feels like it.
iggi how are you doing?

scooter ! How thrilling and what great news! Are you going to have weekly scans?

jules I second scooter's comments about treatment. I have been seen on the NHS and it was quite fast. There are several RMC specialists in London that you can see on the NHS. However, if you arent in their catchment area, your GP can't refer you, your hospital consultant will have to do this. Don't accept no for an answer.

You can't always have an answer for your losses, but it will give you peace of mind knowing you have left no stone unturned. It is worth getting a copy of Lesley Regan's book, Miscarriage, what every woman should know, to give you some background into possible causes and tests.

There are other specialists around the country beyond London too that other women have seen. Try to know who you want to see when you next see your consultant, so they can't easily fob you off.

This a very supportive place. I don't think I'd be 21 weeks pg, if it wasn't for all of the knowledge and support I got from MN.

scooter huge congrats although I understand the reluctance to graduate just yet!

jules how awful for you, you poor poor thing.

I would like to second everyone else and say you must insist on being referred to a RMC. Where in the country are you? When you say the tests were clear do you mean there was nothing wrong with the baby? If so it is even more likely that there is an underlying 'cause' .

I went to see someone privately and have had a diagnosis and now have a plan in place for the pregnancy.

In the meantime, my NHS appointment came though. I went to St George's in Tooting yesterday and I must say I was really really impressed. I have been honest about the tests I have had done privately and they are doing some more tests (rubella, STDs(!!!!) as well the immune tests for NK cells. This is quite a controversial test which not all docs agree with. I think St George's is one of the only NHS places to do it, along with Epsom and Liverpool?

Here is a full list of tests I found on the web in case its helpful, I certainly have not had all of these but quite a lot!!

Uterine
Hysteroscopy, HSG etc. to check for scarring, fibroids, polyps etc
Thin lining, no triple stripe etc.
Ultrasound -

Insulin resistance (fasting glucose test)
Thyroid levels (TSH, T3, T4)
Anti Nuclear Antibodies
Anti thyroglobulin
Anti-thyroid antibodies
Full Blood count
ESR (Erythrocyte Sedimentation rate)
RA (Rheumatoid Arthritis)

BLOOD CLOTTING PANEL (Thrombophilia panel)

Serum Immunoglobulins (IgG, IgM and IgA)
Activated Protein C Resistance
Factor V Leiden genotype
Anti Phospholipid Antibodies
Lupus Anticoagulant
Anti Cardiolipin Antibodies
Plasma Free Protein S level
Factor II G20210A
Prothrombin Gene Mutation
Antithrombin III M
Fibrinogen level
APTT (Activited Partial Thromboplastin Time)
APTR

MTHFR (methylenetetrahydrofolate reductase) and connected with this is measurement of your homocysteine levels

BACTERIAL

Mycoplasma,
Ureaplasma
Bacterial vaginosis
Chlamydia and any other bacterial infections
Varicella Zoster antibodies

Hormonal

Day 3 tests - LH/FSH
Progesterone
Prolactin
Testosterone

Immune testing (so called Chicago or Level 2 tests) - to be done by specialist consultant:-

Natural Killer Cells
Cytokines, (TH1, TH2)
Tnf-alpha
DQ Alpha
LAD

Sorry also Karotyping for you and your DH

Hi Everyone thanks for your helpful responses

Sorry Laf didn't see your coment last night, i'm based in the West Midlands and have been seen by Dr Sizer head of gynae at Shrewsbury hospital, who ran 8 lots of bloods on me karotyping, clotting, thyriod can't remember the rest which came back fine I was advised Dec 10 (plus tissue from d n c Sept 10)

Nobody's mentioned being referred to RMC specialist been told cos of my age and i've got all the time in the world apparently it's not needed:(

I've met Mr Sizer just the once back in Dec 10, he passed a message through epau to take 5 mg folic acid in Sep this year after mc. But this week I demaded to see him again before if needed (we're starting to try again this month) we then go to RMC specialist privatley even if it means travelling to London! Just got to wait for my appointment now.

I can't keep going through this 5 mc in 3 years is too much, I think I just want to know 100% once and for all that there's nothing wrong i'd be happy knowing I'd done everything I can to stop having another loss unecessarily!

Thanks ladies and congrats to you all preggers fab to know there's hope

Oh jules you poor thing. You should absolutely push for a referral, being young does not mean that is nothing wrong, in fact quite the opposite. In fact, my consultant uses the example of someone at 25 having multiple MCs (And usually there is reason) and someone at 45 (where its more likely to be duffer eggs) and everyone in between.

Also if the MCs are caused my an immune problem then having multiple pregnancies and MCs can actually make the situation worse as your body is more and more geared up for a fight.

Do you know why he advised taking 5mg folic acid? Did something come up in your bloods? It is sometimes treatment given for a MTHFR gene mutation which means you don't absorb folic acid properly. However, some consultants also give heparin with this as well.

Sorry to bombard you with all this information, you are probably still extremely raw and I don't want to overwhelm you.

This is a very helpful website it lists the main causes and treatments in a very clear but detailed way.

ttp://www.obstetrics-gynaecology.co.uk

Thanks ladies my hubbies cross with me at the moment feels im thinking about it all too much!

Consultant didn't explain why im on 5mg fo.ic acid just passed on a message to say try it!

Thanks again ladies will update you when I get my appointment and hopefully with some happy successful news soon

jules sorry to hear about your DH.

We struggled a bit with it all, and still continue to. Although initially very supportive, my DH can't understand quite how much headspace all this TTC/mc stuff is taking up in my head. Partly its also a bit of a defense mechanism for them as well. My DH can't stand the fact that this is not something he can fix for me. He was cracking jokes in the waiting room to see the consultant which he later admitted was because he was finding it all too much to cope with.

So just to let you know, its really normal. Look after yourself and post on here, we all know what you are going through.

farfalla is right jules men can't relate to how it is for us. That's why there is MN to vent away, not about DP as such, but more about the feelings of grief, loss, and sadness. If you haven't been through it, you can't understand.

I think at first DH was philosophical about the losses, that they weren't meant to be, then when the third one happened, it wasn't just one of those things. He was very much stiff upper lip. I was all over the place. I was so angry with him when he told me I needed to move on when I was still bleeding from the MC. He didn't want me to be upset, but didn't know what to do.

Keep talking to him about your feelings and use us here to listen. X

I everyone I hope I'm on the right board, I am 41 and have had 4 mc in the last 2 years. I also have an under active thyroid and just recently I went to dr sheeta and have extremely high nk cells around 3 I believe. So after my first month of steroids I am now going into my second month.. Finding it all a bit hard not conceiving again my last mc was July this year. So it's ok to join on here..

Hi Cornflakes, hope the treatment brings you some success.
I had my 12 week scan today, all well they said (obv haven't had results of the blood test they do at the same time). It has been a long 8 weeks since the bfp and (hopefully) a much longer time of being pg to come! Still very, very anxious, I don't think that will ever go away.

iggi ! wonderful news, 12 weeks! well done!

cornflakes welcome, there are women who frequent the board who are dealing with NK cells. you may want to check out this thread too as there are a whole host of ladies dealing with pregnancies with NK cells.

Great news iggi!!!

cornflakes so sorry to hear about all your MCs, you poor thing, I really hope the next one is a sticky bean.

I have had another 16 vials of blood taken this morning at St George's!! Some are a repeat of the tests I have already had done privately but they wanted to repeat them anyway. They are also testing for immune issues which raj rai does not believe in so will be interesting to see the results. They have said we can go ahead and start trying again as well and they don;t seem to mind that I have had some tests done already, perhaps they are used to people getting a 2nd opinion?

So the SWI will start in earnest this month, its a bit nerve wracking and I think the magic of TTC has definitely gone for me to be honest!

How is everyone else getting on?

Can I join Ladies?

I am 35 TTC number 1. Have had mmc at 8 week, mmc at 20 weeks, and just had mc at 6 weeks.

Because after my 20 week loss we had a lot of tests that came back normal and have been told a rmc would not do anything extra to our previous tests we are going to see Mr Shehata privately in 3 weeks. Just feeling a bit low today, still testing positive on HPT from last miscarriage. GP telling me it is just bad luck. Just feeling I will never have a living baby. Sorry just wanting someone to tell me there is hope.

lemon I'm so sorry to hear of your losses. How totally devastating to have 3 losses and one so late.

Have you been seen by an RMC specialist at all or just an OB/GYN?

This thread is full of hope. There are so many causes for RMC and if you are seeing Dr. S, that is a great start to hopefully getting answers. You can find that normal OB/GYN's don't run the blood clotting tests properly, so they may not pick up problems. I hope that you do get the answers that you are looking for.

Hi Lemon, very sorry for your losses. This is a hard time for you but it's great you already have a plan in place. You are entitled to go to the RMC, how do they know you have had every test? I too have seen Dr Shehata, after 3 mc. Unfortunately I was pg at the time I saw him and that turned into mc4. Two months on his treatment I got pg again and for the first time since my ds, I have made it to 12 weeks. No guarantees, but hoping this one works out. You are only 35 (I'm 41!) so I really do feel optimistic for you.

Hello all!
I have found the courage to finally write here - the stories make me hopeful and mummyabroad suggested that I join you guys here. I am really struggling at the moment and completely not sure about what I feel at this stage...

Brief history: I have had two missed miscarriages, one at 11, one at 7 weeks. I live in Greece at the moment (which is stressful enough as it is...) and have had to go private (state insurance is a joke, although very expensive). After my first mc, given that it was after a detected heartbeat etc and after looking at the pathology report I went against my doctor's wishes (who said I should have 3 mc before testing) and privately paid for a thrombophilia screen (runs in the family, so had some idea it might be that). Unfortunately the results took ages to come back (it was August in Greece, which means nothing worked) and in the meantime lost a second pregnancy as well. Results showed 3 thrombophilic mutations, which I later found out warrant heparin treatment.

After a D&C that went wrong, followed by a repeat one, I never got my period back, unlike the first D&C that I had when it came back 29 days later. I did get a lot of pain at the time my period was due. With the help of mummyabroad and the Asherman's community (and a lot of personal research and financial help from friends and family) I was treated in London for AS by Mr Lower last week.

Currently recuperating and have been given the green light to TTC after I finish my course of hormone treatment. In the meantime I am freaking out about possibly getting pregnant again, failing, worrying about things like incompetent cervix (if I ever manage to get pregnant ever again) and generally panicking. I really want a baby, but so terrified of the idea of pregnancy.

I realise that others have been through a lot more - but how do you come to terms with it all and how do you get the courage to try again? What gives you hope?

(Maybe it is the hormones speaking... but I just feel like I can't go forward from here...)

Thanks for reading (the massively long message!)

Hi escape Glad you have found the courage to post here on this thread. It is an amazing source of information and support and it was this thread alone that gave me hope to keep going.

For me I didn't need courage to try again, it was just an incessant need not to stop trying. I felt I had to keep going. I found MN, I too found mummyabroad and together she helped me get a PCOS diagnosis. I finally conceived my DS, after 2 mc, and he is now 2 months old.

There is hope. For everyone.

The list of people on this thread is not up to date, but many more have 'graduated' and gone on to give birth successfully and many more are pregnant and doing very well.

It is a long old road and you will get there. From what I understand from mummy's posts is that Dr Lower is very good, you have gone to the right place for help. I can't help regarding the AS or the hormone treatment but I can tell you that good things do happen, and you only stop when you feel you need to. Something inside you makes you keep going.

Keep posting here. Many have had to use heparin during pregnancy also and will be able to offer you advice for when you get your BFP.

:) xxx

Hi escape I'm sorry to hear of your miscarriages. It sounds like it has been a real struggle for you to get the diagnosis and care that you need. There are some very black days in RMC. I didn't think that it would ever happen for me about a year ago. I wasn't sure about putting myself through another pregnancy again. However, I was seen by specialists and given a treatment plan and am at 23 weeks. There may be more bad days than good days, but you have been through a traumatic time. It is normal. I'll never be over the losses, they are always with me. It might be worth exploring counselling, to talk to someone who can help you through your fears. I'm still afraid, every day, but the fear doesn't consume me like it used to. I liked to have dates in the diary, so I knew when my appointments were and when I could TTC again. It helped me cope.

To give you some hope, escape I will take the liberty of updating our list as it hasn't been done for awhile. and moving some of the ladies that I know who have changed. I haven't updated Scooter and confu3ed as sometimes I know people don't want to move pre-12 weeks, but they are in the pg camp. Anyone know if Mattsmama or Lovemysleep had their babies? I don't know when they are/were due?

We haven't heard from several ladies for a long time, so I created an MIA section and hope that they return to tell us how they are getting on.

STARTING TESTING
ILOVEBLUE - Age 33. MC1 Oct 2010 @ 20 wks (MMC at 17 wks), MC2 Feb 2011 @ 7 wks (natural + complete), MC3 July 2011 @ 9 wks (natural + complete). Appointment with RCMC consultant (Shrewsbury) Sept 1st 2011.

UNDERGOING TREATMENT

HAVINGKITTENS Age 41 - MMC1 Nov 07 8wks (discovered due to bleeding at 10.5wks) ERPC, TOP1 for TS21 Aug 08, TOP2 for TS21 Feb 09, TOP incomplete, ERPC performed, Genetic Counselling & tests confirmed no chromosome problems with us, "just bad luck ", MMC2 Feb 10 5.5wks (seen at 8wk scan, no bleeding), MMC3 May 10 (as MMC2), RMC testing at UCH, no cause found - empirical 75mg asprin & vit D + early & regular scans for next pregnancy, MMC4 No fetal pole seen at 6.5 wks, follow up scan 10 days later, told of MMC, then "Something" spotted so instructed to wait another week before they would allow ERPC, ERPC a week later, waiting for NK Cell test results from Mr S on NHS, taking 75mg Asprin, Vit D, Pregnacare Plus (w/Omega 3), 5mg Folic Acid (been taking since 1st TOP to try & prevent TS21 or similar issues), NK Cells levels almost double what they should be. 25mg Prednisone from ovulation - CD1 or if BFP then 'til 12 wks and then weaned off 'til 14wks plus Progesterone pessaries from BFP - 16wks, Folic Acid, Omega3, Vit D - 12wks, Asprin - 20wks.
PUREEQUEEN Age 34, MC1 (7 weeks Jan 08) MC2 (6 weeks March 08), DS born (prem) 2009, MC3 (9 weeks Oct 10). MC4 Jan 2011. First 2 natural mcs latter 2 mmc/ERPCs. Chromosome test MC4 showed she had a genetic abnormality (cri du chat). Karotyping for me and DH fine but with "increase in length on satellite of short arm 13 and 15" (??) . Also have endo &septate uterus. Now TTC and will take aspirin and progesterone.
CONFU3ED - Age 35 1st MC 1998 14 weeks. DD age 11. 2nd MC July 2009 5.5 weeks. ERPC Twice. No tests. 6 months Clomid 3rd MC January 2010. The foetus sent for testing - came back fine. Been referred to recurrent MC clinic at the hospital for tests, waiting for appointment. Was told I have PCOS through a scan but never diagnosed.
SCOOTERCHASER: Age 32. 3yr old DS Oct 2008 (managed for SVT heart from 35wks), mc1 Sept 2010 (7wks), mc2 Dec 2010 (9 wks - hb at 8wks), mc3 April 2011 (7.5 wks, hb day b4 mc). Mr S diagnosed high activity NK cells and advised to start prednisolone & cyclogest when next TTC.
PEBSPOP - Age 31. MC1 Nov 10 @ 11 weeks ERPC, MC2 July 11 @ 20 weeks medically managed labour (was MMC at 16/17 weeks). Found blood clots in placenta and have been prescribed 5mg folic acid, 75mg asprin and herapin. will ttc at xmas.

MIA
LOLA78: mc1 Dec 07 (6wks), DD Oct 08 (problem free pregnancy and natural birth), mmc2 Nov 10 6wks ERPC at 10wks, mc3 Feb 11 at 7wks - suspected ectopic but mc naturally, mc4 mar 11 at 5wks (started 75mg aspirin from a week before bfp) - hospitalised for excessive bleeding and clots. Now referred for testing at local fertility clinic, we have started having blood tests and am on 5mg folic acid.
PANDA 3MMC, no.1 (embryonic loss - empty sac) 7weeks, no.2 at 12 weeks, no.3 at 8 weeks. Awaiting raft of tests for recurrent MC
CLAIREDELOON Age 38 1st mmc, development stopped approx 5 weeks (2007), 2nd mmc development stopped at approx 6 weeks (2009), 3rd mc development stopped at 9 weeks after seeing hb at 8+3 (2010). Bicornate uterus, starting testing Feb 2011.
NOTSOBARRENBROOK Age 35. 1st mmc @ 6 weeks (Jan 2009), 2nd mmc @ 6 weeks (Jan 2010), 3rd mmc @ 11 weeks, development stopped at 6 weeks 3 days (March 2010), 4th mmc @ 5 weeks (August 2010). Possible adenomyosis, awaiting hsg and results of testing from St Mary's.
CRYSTAL5 Age 38 - DS age 4. 6 m/c 1 at 11 weeks, 5 at 5/6 weeks. Ok blood tests, under Endocrinologist for Hypothyroid

PREGNANT
MATTSMAMA Aged 41. 1st MMC November 2004. My DS (who I love with all my heart) born 2006. 2nd MMC July 2010. 2 chemical pregnancies September and October 2010. Under Dr Shehata and got BFP on first round of treatment for high thyroid antibodies and high killer cells.
LOVEMYSLEEP Age 39, 1 mmc, dd born(now 5), 2nd mc (9wks, 2days), 3rd mc (9wks, 3days) and 4th mc at 5 wks. All tests on NHS came back clear. Currently undergoing treatment with Dr.Shehata for very high natural killer cells - aspirin, progesterone, steroids, omezaprole and one intralipid infusion completed.
HAIRYLIGHTS, age 42, MC1 (Jun 10, very low HCG, suspected ectopic, methotrexate), MC 2 (Nov 22 2010, MMC,ERPC, no heart beat at ten weeks, fetus 8 week size), MC3 (MMC - Medical Management, Feb 13 2011, MMC at 7 week scan). Waiting to TTC.
MILKYWAY2007 Age 28 - DD age 3. 1st MC Oct 2009, 6 weeks. 2nd MMC March 2010, 11 weeks (baby passed away at 7 weeks). 3rd MC July 2010, 6 weeks. 4th MMC 24 Jan 2011, 9 weeks - no amniotic sac, baby measured 7weeks 4 days, no HB, had seen a healthy HB at 7 weeks. Blood clotting, hormone, genetic karyotype and shape and health of uterus checked and all clear. High dose folic acid prescribed.
LUCKYFOR2 Age 32 - DD age 5. DD age 3. 1st MC May 2010 found at 12 week scan passed away at 9 weeks. 2nd MC September 2010 natural at 8 weeks. 3nd MC January 2011 at 16 weeks, saw hb at 13 but no hb at 15.5. All tests have come back clear. Going to take Aspirin and Progesterone in next pregnancy (will be on Promise trial) currently ttc.
LAF77 , Age 34, MC1 (7 weeks Apr 10) MC2 (5 weeks Sept 10) MC3 (9 weeks Dec 10). All have been natural mcs and number 1 and 3 were embryonic . No children, Confirmed high MA levels in TEG, on 150mg daily, also was on PROMISE trial. EDD 21st March 2011
DIGITALGIRL Age 32 - DS 2.8 - 4MCs since ttc#2. MC1 Nov2009 @5wks. MC2 Apr2010 @6-7wks. MC3 Oct2010 @7-8wks. MC4 Mar2011 @8wks. All natural, except MC4 managed with ERPC for karyotyping. Clotting tests normal. DH & I genetically normal. On Metformin for mild PCOS, plus 75mg aspirin, Pregnacare Plus & 25mcg VitD3. Diagnosed with high NK Cells (1.25) after MC4. Starting TTC in May with prednisolone from ovulation and will add cyclogest once pg. Under care of Mr S.
LADYBEE 37, MC1 (5wks), DS (2), MC2 blighted ovum discovered @ 8 wk scan, MC3 natural @ 9 wks following hb seen at 7 1/2 wk. PCOS previously diagnosed, Factor V Leiden heterozygote discovered in recent testing. Treatment with aspirin (from BFP) + clexane started at 6 weeks. MC4 MMC @ 8.1 wks (discovered @ 11 wk scan) following hb seen at 6+6 wks. Consultant suggests aspirin + clexane to start at 4 weeks, plus progesterone pessaries. Management of MC tbc.
KNITTERNOTTWITTER - Age 34 (DH age 41) DS1 born Aug 2008 (natural conception, easy, happy pregnancy, natural birth 10lb 6oz!) Loss 1: MC1 19 March 2010 - ruptured ectopic and left tube removed. Loss 2: MC2 22 July 2010 - Foetus seen at 5 weeks and HB at 7 weeks, no HB on spotting at 12 weeks, 8 weeks sized foetus found... ERPC 26 July 2010. Loss 3: April 2011 TOP - HB seen at 6 weeks and 9 weeks, large Nuchal measurement and bad bloods at 12 week scan - CVS - confirmed T21 and hydrops, no chromozonal translocation - removed by ERPC 15 April 2011 . Currently TTC and because of the three losses have been referred to St Georges, Tooting, Repeat Miscarriage Clinic - my first appointment is on the 9th of June...
IGGI - Age 41, 3 year old DS. 3 MC last year, at 6, 8 and 8 weeks. Last two had hb detected. NHS blood tests came back clear, except for presence of antinuclear antibodies. To take aspirin for this. Tests with Mr Shehata confirmed high natural killer cells - to take progesteron and steroids for this. 4th MC in May, at around 5 1/2 weeks. Waiting a month or so before trying again.

GRADUATES WITH BABIES!!
LUNATIC dd1(4) 2 mmc (8 wks) dd2 stillborn (32+5). Seen at St Mary's. clotting problem, pg #5 aspirin 150g daily. Ds1 born 9/2/11 c/s @ 35 wks
STILLFRAZZLED Age 35, DS1 (3.6yo), 1 mc @ 5 weeks Jan 09, 2nd mc @ 9 weeks March 09, DS2 born @ 35+3 on 04/01/11 with Intra Uterine Growth Restriction but currently home and doing well.
MUMATRON Age 28 2 dc then 4mc, 3 @9weeks 1@5weeks, tests showed possible free protein s ishoo. dd2 born 06/01/2011, aspirin, claxane and high dose folic acid through pg.
JULEZBOO Age 29 1 mc @ 14 wks, DS1 (8yo) 4 mc @ 5/6 wks, DS2 (3) 2 mc @7 wks... DS3 (14/01/11 @35 wks) Dx with Factor V Leiden and Septate Uterus. Clexane and Aspirin throughout pregnancy and progesterone with DS3.
GLITTERYBITS 1 anembryonic MC (12 weeks), unexplained infertility, 1 round of clomid, currently pg and terrified!
JUSTMEE Age 21, MC1 (7 weeks), MC2 (6weeks), MC3 (5weeks) currently pregnant with 4th pregnancy using clexane injecting 20mg a day EDD 24/09/11
LOVELYBUNCHOFCOCONUTS Age 23, 1 MC (13 weeks), 1 MMC (10 weeks - growth stopped at 7), 1DD born 2008, PCOS diagnosis, bi-cornuate uterus. EDD 01/10/11
MUMMYABROAD Age 36, 1DS (2.9), 1MMC Mar 2010 (@14weeks) Ashermans diagnosis and treatment Nov 2010, Started TTC Jan 2011 BFP on Cycle 2 EDD 4/11/11. Heartbeat seen at 10 weeks.
BANANA87 Age 30- 1mmc@7 weeks, DD (2), 1 mmc 6 weeks, 1 mc 7 weeks, Going to try aspirin and progesterone as per consultant. Clotting bloods normal.

i think LMS has had a baby but i think ladybee mcd. :(

Coconuts thank you so much for the welcome. I do feel like I want a big family more than anything (have no DC yet) and have always looked forward to pregnancy and having a baby, but the actual thought of getting pregnant paralyses me at the moment. It's good to know that you have a two month old little miracle in your arms - it's stories like that which give me hope.

LAF77 a phrase you used really touched me, not being consumed by fear any more. That is what I feel like at the moment, consumed. I guess what you said about putting dates, would help me focus on what needs doing now, in the next few days, next week, next month, as opposed to "when I get pregnant, what if I bleed/cramp/miscarry again" thoughts which I am having at the moment.

I am in fact having counselling (in fact it is bereavement counselling for losing my dad, but it has turned into general anxiety counselling). I do feel it helps most of the time.

Thanks for the welcome.

coconuts lady is pg again, she is in the FO room thread and currently 16 weeks!

escape I'm sorry to hear about the loss of your dad. It makes dealing with the loss of MC even harder. The anxieties will lessen, it takes time, but I think that you need a plan to help you focus on the next steps.

For me, knowing when the local hospital would see me helped. That was the first step. From MN, I learned which specialists I should ask for a referral to and how to get the referrals. Waiting for the appointment from the specialist was the worst. I couldn't move on until I knew when they would see me. I knew from MN that they would want to follow up with bloods again in another 6 weeks, and then I'd get the results in another 4 weeks. I was plotting my cycles in my diary to know which cycle I could try again and what the likely date would be. I lay wide awake on the night that I knew I would ovulate wondering if I could really put myself through it again. But here I am, being kicked from inside by my baby. My fears won't go away until he is with me in my arms and breathing, but I have come a long way and I never thought I'd be able to write these words.

laf oh i feel terrible now If you see this lady i apologise for my error.