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Too old for St Marys on NHS. How much to go private?

17 replies

Coconutfeet · 04/03/2011 11:00

My GP tried to refer me to the RMC at St Mary's in Paddington, but we've been told that at 43 I'm too old to qualify for NHS treatment (cut off is 42 apparently). They will see me privately but I've got no idea how much that would cost. Has anyone who's been there privately give me an idea of the overall cost?

Thanks.

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artifarti · 04/03/2011 12:42

Sorry I don't have an answer for you but just wanted to say hello from our old thread and so sorry that after finally getting the referral it was crappy news; it must feel like one thing after another. Hope someone can help you soon and that things get better for you. Sending hugs. x

MsJL · 04/03/2011 12:46

coconut feet I think I have an old email with their prices. Do you want to send me you email address?

I am sorry they haven't accepted you via NHS. It seems very unfair. x

Coconutfeet · 04/03/2011 13:06

Thanks Ms JL. Have sent you a message. I've never had any private medical care so I'm completely clueless.

Hello again Artifarti. I noticed that you had lots of replies on your molar pregnancy thread. I really hope that's been helpful. How are you doing??? I'm having to go back to the hospital regularly because I'm still getting positive pregnancy tests and apparently my hormone levels are dropping really slowly. It's never ending is it!

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artifarti · 04/03/2011 15:52

I'm okay. Lots of support on the other thread from some lovely ladies who've been there, done that. Things are pretty awful but first results back Monday and I'll take it from there.

From what I've read (and I've read a lot!) there's a huge variation in how long it can take hormone levels to fall to normal - from days to months. So frustrating for you though, hope they drop soon.

Coconutfeet · 04/03/2011 21:07

Artifarti Good to hear that you've been getting good support. I suppose the big question is whether you'll need chemo? Have they been able to reassure you about that yet? I really feel for you. What a massive slap in the face when you were just starting to feel like you could move forward. I really hope next weeks results bring you some positive news.

Well I heard from the hospital today and my hormone levels have barely dropped since last week and I have to go in and see the consultant for a further scan. I think the worry now is that they've left something beind (even though I've been scanned once and was told it was OK). I really don't want to have to have another ERPC.

Msjl - Thank you so much for your email. Very much appreciated. Smile

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Coconutfeet · 06/03/2011 09:20

God Arti, I've just read back my last message to you and realise how badly I've worded it. "The big question is whether you need chemo" sounds awful. I didn't mean it was a big question for me, rather that I imagine it's hanging over your head. Sorry - I didn't want to second guess how you're feeling and that all sounded really clumsy and didn't come out right at all. Please forgive me. I just hope you're managing OK.

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artifarti · 06/03/2011 10:50

Don't be daft, I took it entirely in the spirit you meant it. Smile It is my big question, certainly. First test results back tomorrow so will know a little better what I'm dealing with, at least at the start. The emotions are very similar to after a mc really - one day positive and gung-ho, the next day on the floor and "why me?". Today I'm positive!

So sorry you have all this worry but good that they are following you and hope they can sort it out soon and you can start to move on

Coconutfeet · 06/03/2011 11:43

Phew thanks. Smile

Glad today is positive. I really hope you get some answers tomorrow.
xx

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HOPEFULLNESS · 07/03/2011 23:25

Hi there. You may have this info already? Person to talk to is Mary Stanton 020 7886 1050. She is lovely once you get through - keep trying and leave loads of messages! I am in a similar position - too old for nhs treatment at St Mary's so going private - initial consult is £230 (ouch) Mary will send a list of charges for each procedure. Have to wait a month after mc before they will see you. My appointment came through quickly - had 4th mc last month and have 1st appointment with Raj Rai on Thursday 10th March. Hope this helps. good luck xx

Coconutfeet · 08/03/2011 18:39

Thanks for that Hopefulness. MsJL (further up the thread) has sent me a price list - the costs are pretty hefty aren't they. I've been referred to my local RMC and, given that I can't go to St Mary's on the NHS, I'm going to see how it goes there before I decide whether to go for it. It's definitely good to know that I can get an appointment quickly if I do decide to go down that route.

Sorry to hear that you're in this position too. I really hope your appointment goes well. Good luck!

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HOPEFULLNESS · 08/03/2011 20:13

Thanks - the costs are huge and very scary... St Mary's said i could save money by having some tests locally at the RMC - they are happy to liaise...and so i had the first 'clotting' one this week having waited a month, but found out that the wait for test results is 6-8 weeks. If they find anything they make you wait a further 12 weeks before repeating them and then its 6-8 weeks again. AHHH! I just dont have that much time(i'm 44...) St Mary's take a couple of weeks so i guess i'll pay. I hope your local hospital is quicker!! i have also heard from several people (i have a fab fertility support group here in Lewes)that the local tests dont always find the stuff that is later found at St Mary's - their reading of the tests may be more sophisticated??? Dont know if thats helpful to hear for you or not. Personally i just feel a huge time pressure and several people have said they wasted too much time not getting pregnant, testing locally and ended up at st mary's anyway. The other thing to remember(sorry if you know all this)is that st mary's does not do the testing for Natural Killer cells (see Dr Shehata) Anyway, very good luck - i'll keep posting if i learn anything useful! xx

Coconutfeet · 08/03/2011 21:02

Thanks for all that info Hopefulness - very useful! Particularly good to know that they are happy to take tests done elsewhere, that should save a bit of dosh. Do you know whether St Mary's recommend women of our age to keep TTCing throughout all the tests or whether they say to wait?

It's all academic for me at the moment, as my hormone levels are dropping very slowly and they're not sure why. Have got a follow-up appointment tomorrow to find out more.

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HOPEFULLNESS · 10/03/2011 00:09

Very good luck for tomorrow. I had a similar thing with my first miscarriage which was quite late at 11 wks - still felt pregnant for several weeks and had positive tests. I felt so awful i almost convinced myself that they'd missed a twin or something but eventually they scanned and found nothing. They were kind enough to tell me i was ovulating and all looked ok - some consolation i suppose. Re TTC - i'm afraid they say NO while testing or they cant get an accurate reading or something - another reason for my decision to go privately as it will all be a lot quicker and then we can start again...Using the time to try and get healthy and recharge batteries - do you feel as knackered and run down by all this as i do? Also trying acupuncture for the first time - supposed to be good for egg quality as well as general fertility.
Anyway hope they sort you out tomorrow. Hang in there xx

Dozer · 10/03/2011 21:03

Hi ladies,

I had tests done privately there and in total, with 3 consultations and blood tests and an HSG (but no ultrasounds, which I think are about £300 each if done by a doctor) it was about £1500.

It really helped to speed things along in terms of tests, helped me cope with the uncertainty and feel like I was doing everything I possibly could IYSWIM. Seeing the doctor privately also means you get dedicated time with a senior doctor, which is hard to get on the NHS (sadly). I have been extremely lucky and had my lovely DD2, will never know if the treatment I had (progesterone / heparin) made a difference (I am in my early 30s and had 4 mcs after DD1, they didn't find a reason for my mcs).

St Mary's aren't great about returning calls or emails, but they can send a price list. There are extra charges of about £15 or so every time they take bloods for phlebotomy (done in the Linden Wing of the hospital), this wasn't mentioned on the price list.

As Hopefulness says, they are happy for women to have some tests with them and some elsewhere. If you can, get the "karyotyping" tests done on the NHS (on you and partner), as these are by far the most expensive blood tests on the price list! It's also the test that takes the longest for the results though (12 weeks) as they have to do special analysis or something.

The more invasive tests, e.g. HSG (dye to look at uterine lining and tubes with a scan), are more expensive.

Hopefulness, St Mary's do a special blood clotting test called a thromboelastogram (TEG) that isn't done elsewhere, where they whizz the blood around or something (!). This is done in addition to tests for specific clotting issues (e.g. antiphospholid syndrome, FactorVLeiden), which are part of the tests done at other mc clinics.

Coconutfeet, not sure what they recommend re TTC, but suspect that they don't tell people what to do but leave it to couples to decide. For a couple of the tests, e.g. the HSG, you do have to be sure you aren't pregnant. I knew a couple of (younger) ladies from another forum who got pregnant in the midst of blood tests etc and the clinic helped to get results back quickly etc.

If the doctor suggests any medication, they should put full details in a letter to your GP. If your GP is nice, they can prescribe the medication and you shouldn't have to pay for it (otherwise, if you have to get a private prescription from the St Mary's doctor, you have to pay). It is worth getting a private prescription too, just in case your GP won't prescribe it, to avoid delay getting the medication when you get pregnant (extra stress no-one needs when dealing with a new pregnancy, as I know from experience!) You can then just not use it if the GP will help.

Sorry, have rambled on, bit of a brain dump! Really hope they can help you.

HOPEFULLNESS · 11/03/2011 23:07

Hi Dozer! Thaks for your message - all that info was really helpful. Really good to hear from someone who is the other side of all this and with a successful outcome! So pleased for you. Having had my first consult, i'm feeling positive and ever hopeful...thanks again xx

HOPEFULLNESS · 11/03/2011 23:10

Hope you are ok coconutfeet?

Coconutfeet · 12/03/2011 09:23

Dozer, thank you for that. That's all really useful information. Congratulations on your DD. It sounds like your experience with St Mary's was a positive one. A couple of people I've spoken to recently went to St Mary's as NHS patients and were not hugely impressed with the treatment/care that they got (one has transferred her care elsewhere and is now seeing a private doctor). It made me wonder if the NHS/private experience is very different.

I've got an appointment at my local hospital's RMC in May so I think I'll see what they say there before I decide what to do. It's good to know that I can get an appointment quickly if I need to.

Meanwhile, I think your approach of getting healthy is good Hopefullness. I definitely feel completely worn down by the last few months too. I had my appointment and it turns out that they left some "products" behind at my ERPC six weeks ago. Co-incidentally I've also been bleeding so the doc thinks it may come away naturally. I had some very heavy bleeding and passed some big clots yesterday and things seem to have subsided a bit now so I'm hoping that it may have come out. Got another appointment next week for them to check. If not, they're going to do another ERPC. Sad I think it's going to take me until May to get my cycle back to normal anyway.

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