pregnancy loss due to fatal anomilies

[lonelydesigirl]

20 weeks scan showed serious anomilies in baby.baby was diagnosed with Congenital High Airway Obstruction syndrome (CHAOS).i had a MTP on dec 23.have very little info why this happened.even best doctors could not give me any answers.will be trying again in 6 months time.not sure if it would be recurrent problem.has anyone got any kind of information.i am just lost and too scared when i think of getting pregnant again.

I'm so sorry.

Have you tried looking on the antenatal tests and choices threads.

iirc they recommend an organisation called ARC,for support and info,or maybe you could try SANDs organisation

Take care xx

Hi there,

We lost our first baby - a little girl - also at 20 weeks in November. Her heart stopped. We've just had the final test and post mortem results back and it was caused by congenital heart defect which meant the right side of the heart didn't develop normally. It took more than 12 weeks for all our results to come back and we only had our appointment yesterday - although for you it sounds as if they already know what the problem was, with us it wasn't clear. That said we did have some warning that all might not be well - we had a very high nuchal measurement at 12 weeks, which can be associated with heart problems. We had CVS at the time and the baby's chromosomes were absolutely fine as that was the other worry.

I don't know about the anomolies your baby had but we were told yesterday that the condition our baby had was very rare and we were just very unlucky, it was "an accident of nature". We were also told that it would be unlikely to recur again but anybody with a history of any kind of congential heart problem does have a slightly increased risk of it happening again - 3-5%, or more positively more than 95% will be fine next time.

Perhaps a consultant at your hospital would be able to advise you on the specifics for the condition your baby had? I would speak to somebody at the hospital and ask for more information. Or failing that perhaps ask your GP if you get on well?

I know exactly how you feel about the fear. I'm terrified and know that I will never be able to treat pregnancy in the same way again. It seems so unfair.

Hope this helps.

thanks for the reply shiningstar.we were also told that our babies condition was very rare and not much research done on it.they said that since it was an accidental case there are very less chances of recurrence but again that is also a guess.we did get an autopsy done and me and my husband did genetic mapping for oursleves and that was normal.i just keep thinking what exactly went wrong.