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Miscarriage/pregnancy loss

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Please please come and tell me what you think: antenatal/preconception screening

7 replies

daisyj · 05/11/2010 09:48

I have had a letter published in the Daily Mail today, which I wrote in response to a friend's loss and her open letter to Lily Allen, published on Wednesday. I have no idea where to take it from here - well, I have a few thoughts, but not concrete ones.

This is the text, which they have printed as their lead letter today, almost exactly as I wrote it.

Dear Sir

Thank you for publishing Rachel Morarjee?s eloquent open letter to Lily Allen (3 November). She spoke from the heart about an issue that is rarely discussed and little understood. The common belief that a pregnancy is ?safe? after 12 weeks discounts the thousands of women (and men) affected by late miscarriages and still births each year, some of which might be avoidable if it were possible to implement a system of screening for women who were trying to conceive or in the early stages of pregnancy.

As anyone who has experienced it is aware, antenatal care is already something of a lottery in this country ? in some areas pregnant women see a midwife at around 10 weeks, in others not until after the 12-week scan. Even if comprehensive pre-conception screening were not an option, an extra test to check at an early stage, for example, for antiphospholipid syndrome, requiring low-dose aspirin as a treatment in pregnancy, would save hundreds of babies' lives every year. As it is, a woman usually has to wait until she has endured three losses before tests are routinely offered. Of course early miscarriage is incredibly common, and usually just a matter of bad luck ? nature?s way of dealing with a chromosomal abnormality in the embryo, a baby that never could have survived ? but this is no consolation to the women who go on to suffer multiple losses (at any stage) that could have been avoided had they been aware that there was a problem that might have been dealt with ? not an abnormality in the foetus itself, but something for which they themselves could have received treatment.

To pre-empt any argument over the expense of screening programs, I can only imagine that the cost of a few hundred thousand blood tests would be at least partially compensated for by the saving on the cost of scanning, treating and counselling those women who avoidably miscarry or give birth to still-born children every year.

I hope that if nothing else Lily Allen?s terribly public losses, and Rachel?s response, can serve some small purpose in beginning a long-overdue discussion.

Yours faithfully

Etc.

What do you think? An MN campaign? I know there are campaigning organisations such as SANDS, but I'm not sure that this quite fits with what they do...

OP posts:
labtest · 05/11/2010 09:57

Totally agree with you. My first child was stillborn at almost 42 weeks and though a post mortem proved inconclusive tests later showed I had a condition similar to factor V leiden that required me to take aspirin in my subsequent pregnancies. It sickens me to think that had I been tested early in pregnancy my daughter would likely be alive today.

Cadmum · 05/11/2010 09:58

Your letter is beautifully written and well thought out.

As a mother who has had 4 second trimester losses, I cannot tell you how much misery I might have been spared with some screening following our first (or even second) loss.

I never understood the idea waiting for three miscarriages when the losses were after 12 weeks and there were no fetal abnormalities; no signs of pre-term labour nor infections.

As it turns out, a low dose of aspirin could have prevented the first 3 losses. Sad The silver lining is that neither my ds2 nor my dd2 would have been born so life would be very different.

Just to show that not all miscarriages can be avoided, I went on to lose a pregnancy in January because I was not able to take the prescribed low dose of aspirin due to a low lying placenta. My subsequent 20 week loss required a C-Section but continuing to take the aspirin might have cost my life as I was slowly hemorrhaging.

daisyj · 05/11/2010 10:06

Thanks so much for sharing these experiences labtest and Cadmum - and I'm so sorry for your losses. Absolutely true, of course, that not all mc's can be avoided - certainly I don't believe mine at 11 weeks could have been - but I strongly believe there is more that could be done for a lot of women. If there was as much focus on this as there is on fertility treatment then I'm sure we would see a result...

Just to say, I'm at work so will check in again at lunchtime. xx

OP posts:
daisyj · 05/11/2010 11:21

bump

OP posts:
labtest · 05/11/2010 20:52

Hi Cadmum. Sorry to hear of your losses. Did your doctor tell you not to take aspirin because of your low lying placenta. I just ask because in my subsequent pregnancy I had a complete placenta previa and was still told to take aspirin all the way through til the day before my section.

Cadmum · 06/11/2010 14:36

labtest The consultant did advise me to quit taking the aspirin as my previa was complete and bleeding at several locations. The result of which can be thatbecause your blood is constantly clotting to fight the small bleedit would be ineffective in the event of a hemorrhage.

I am not sure that makes sense but the other issue is that the consultant didn't really take me very seriously when I explained my history. He suggested that it might not be relevant that my pregnancy with dd2 was successful because of the aspirin. I already have 4 children so...

(No matter that ds1 was 5 lbs and I was pre-eclamptic or that dd1 or dd2 were borderline IUGR and ds2 had an unusually calcified placenta. Doctors always know better than mothers.)

labtest · 06/11/2010 15:38

Don't they just! I think I was probably kept on the aspirin as my previa never bled. In my case it was never proved that my 'sticky blood' was the cause of Laura's death as she was a good weight, 9lb 4oz but you try to eliminate every risk don't you. It was discovered in my next full term pregnancy ( I had a missed miscarriage at 10 weeks in the interim) that I had gestational diabetes which could also have been a factor in Losing Laura.
My best friend lost a baby at 22 weeks to PROM. She had been backwards and forwards to the hospital with symptoms of prem labour, backache, losing plug etc, but was told she was just one of those women that worried. In her case she had previous mental health issues that the docs could not see beyoun. Makes me sick. I can get so angry just thinking about these needless deaths.

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