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Hysteroscopy referral but they had the wrong info! What do I do??

4 replies

GlomOfNit · 10/03/2026 13:46

Would appreciate some insights here if you're experienced in perimenopause and all the weird things your ageing body can throw at you ... I'm 52, have been taking sequential HRT for three years (Sandrena gel, currently 2 x 0.5mg sachets, and 2 Utrogestan capsules for first 14 days of cycle. Used to be 12 days but I was brow-beaten into taking them for 14 days.)

I've posted about hysteroscopy on here before. I had one last spring - I complained to GP about intermittent right-sided pain, often cyclic (tends to start up around the time I'm ovulating, which I'm still doing I think and then last until my withdrawal bleed, so about 2 weeks in every 4. Not every monthly cycle though). This pain is something I've had for years and years - I'm now 52, consider myself to have been perimenopausal since about 46, HRT for last three years. I had this intermittent pain BEFORE I started the HRT.

So, last year, I talked about this with GP, she referred me for an internal ultrasound scan. In addition to the pain, and a bit of urinary incontinence, I was also experiencing an odd bleed pattern, but again I've experienced this for years and again, this was the case before starting HRT. I tend to have a sort of 'false period' in week 3 of my cycle where I think my 'period'/withdrawal bleed is starting but then it stops for a few days and then starts up again 'properly'. This has been defined by the gynaecologists as 'mid cycle bleeding' or 'irregular bleeding' and though I see that it is, it's also normal for me for the last several years! So she thought those three things - pain, a bit of pee leakage and the odd bleed pattern - warranted further investigation. Off I went for an internal scan.

At the scan last year, the scanner measured my endometrium after looking for cysts on my ovaries (they found two, very small 10/12mm ones which they weren't worried about). It was only a smidge over the 'allowed' thickness for my circs, but coupled with the pain and odd bleeds, they decided they wanted to do a hysteroscopy.

I thought, ok. Let's get it checked out. I have suffered from cervical shock several times (miscarriage, an ERPC op, during painful periods) and had read enough horror stories to know I wasn't having one without an appropriate level of analgesia, and in fact I stuck to my guns and requested a GA. This only delayed the procedure by about another week, in fact.

The hysteroscopy went well (apparently. I wouldn't know, I was unconscious, yay!). They took a biopsy and had a good look around. Nothing untoward was found. They did suggest (literally within the last 30 mins before they took me down) that I'd like a Mirena fitted at the same time, and since this had been jumped on me with no thinking time, I said no thanks, for now. They also wondered if I should go onto continuous progesterone if I thought my periods/ovulation had ended. I thought they hadn't (I can tell when I ovulate) and said I'd leave that for now and go on as before.

Ok. Sorry, this is boring! So fast-forward to now. I went back to GP, again saying 'look, I do still get this pain and I wondered if, given the scan last year showed cysts, if one might have got bigger?'

GP quizzed me about my HRT regime and it was at this point that she said 'you're on continuous, right?' I said 'Wrong! It was suggested I might want to consider that IF we thought my ovulation had ended, but I think it's still sometimes happening so I didn't. They knew this.' Apparently it wasn't on my notes. Anyway, GP said I should have had a 6 month follow-up ultrasound to see if the cysts had just dispersed or were still there. She said, let's send you back and get scanned again. I thought, ok, fine.

Silly me. The more investigations you have, the more likely they are to find something that they then feel they need to act on. The scan a few weeks ago found no cysts at all, yay. But the scanner did then measure my endometrium. She said, 'it's 4mm' I said 'I thought that was fine' She said 'but you told me you started bleeding 5 days ago and it's a bit thick if you've been bleeding that long'

I tried to explain to her, I have this odd bleed pattern where I start bleeding in week 3, only a bit, then stop, then it starts up again, and nobody seems to know why, but I've had it years. I explained I was expecting to start bleeding 'properly' in the next day or so. As I did - two days later I had my normal withdrawal bleed.

The scanner sent all this on to Gynae, who decided that someone on continuous (!! yes it was still on my notes) and who had been bleeding 5 days at the point of scan, needs a hysteroscopy. My GP, the one who referred me, said she'd get back to them and correct the wrong info about not being on continuous progesterone and also that I have this rather predictable bleed pattern, and see if it made a difference.

Apparently it doesn't - a GP from the practice (not the one I've been seeing) rang yesterday to tell me that I'd been referred on the urgent pathway for another hysteroscopy. I was quite upset. I pointed out that I was presenting in exactly the same way as I had last year, that these are issues I've had for years and have had numerous ultrasounds and one hysteroscopy since, and nothing has been found.

Well done if you've managed to read all of this. Smile

I'm expecting a phone appointment with the GP who referred me for the scan in the first place. I just don't know what I should say, at this point. SHE knows I've not been on continuous, and that I have this odd bleed pattern. The Gynae department have now been told that new info, so presumably they think it makes no difference. I think I'm just going to have to suck it up and have another sodding hysteroscopy, aren't I? Sad I'm not the expert here, clearly - but it feels like nothing has changed since the last time I had one and it showed nothing.

I'm now wondering about having a Mirena fitted, if they're going to go in there anyway. One reason I've never wanted a coil is because of my touchy cervix. But maybe, given the odd bleeding pattern, it would make sense. Except that on here, I'm always reading about women who bleed MORE with a Mirena, or have bleeding that doesn't settle down for months. Any insights??

Plus I'm getting really nervous about requesting another GA. But there's no bloody way I'm doing one without.

OP posts:
JinglingSpringbells · 10/03/2026 14:15

The guidance on this from the BMS and RCOG is that if there is odd bleeding, you adjust hrt but no need for a hysteroscopy if the last one was less than 6 months ago and no abnormalities were found.

Also 4 mm is not a thick lining. I've had many scans and on sequential hrt they allow a lining up to 10mm before a bleed and around 4-5mm straight after a bleed. My scans are done by a very experienced gynaecologist and they say the measurement is only part of the assessment- it's what can be seen and whether it's normal or not that is important.

I'd refer to the guidance on not repeating the hysteroscopy . You don't have to agree to investigations and if necessary and you can afford to, it may be better to see someone privately for a 2nd opinion.

GlomOfNit · 10/03/2026 14:31

Well, the last one was just after Easter last year so it's more than 6 months ago. The scanner (and I assume, the gynaecologist who looked at the scan results) thought 4mm was 'too thick' for a scan done if I started bleeding about 5 days earlier. Unfortunately my head is like Swiss cheese and I hadn't kept records. So basically it's on my estimate. But I did explain to her (and the GP) that this wasn't my 'proper' bleed!

I know they're trying to stop womb cancers and save lives but it just feels like they're not listening to me saying, this IS normal for my body, for several years now!

Thank you, you've been very helpful to me in the past. I'll look up the RGOG and BMS guidance, but if I can't find it, please could you post a link here? It might help others, too. (also - do GPs, etc, regard the BMS as a good source?? A GP - several years ago now - was very scathing and said they were funded by HRT manufactures, which I thought was bollocks at the time!)

OP posts:
JinglingSpringbells · 10/03/2026 15:09

GlomOfNit · 10/03/2026 14:31

Well, the last one was just after Easter last year so it's more than 6 months ago. The scanner (and I assume, the gynaecologist who looked at the scan results) thought 4mm was 'too thick' for a scan done if I started bleeding about 5 days earlier. Unfortunately my head is like Swiss cheese and I hadn't kept records. So basically it's on my estimate. But I did explain to her (and the GP) that this wasn't my 'proper' bleed!

I know they're trying to stop womb cancers and save lives but it just feels like they're not listening to me saying, this IS normal for my body, for several years now!

Thank you, you've been very helpful to me in the past. I'll look up the RGOG and BMS guidance, but if I can't find it, please could you post a link here? It might help others, too. (also - do GPs, etc, regard the BMS as a good source?? A GP - several years ago now - was very scathing and said they were funded by HRT manufactures, which I thought was bollocks at the time!)

The BMS guidelines are written by the most experienced and eminent gynaecologists in the country. many are doing research or have done and incorporate research done worldwide and by the IMS (International Menopause Society.)
I hardly think they're getting back-handers from drug companies and HRT is dirt cheap anyway.

Okay so your last hysteroscopy was a year or so back but the 4mm they quoted as being too thick makes no sense. The guide is 4mm or less for women not on any HRT or on combined continuous. In the 'proliferative' phase of sequential, up to 10mm is considered okay (compared with up to 16mm for fertile pre-menopausal women.)

I don't want to put all my medical history online but I can share more by PM if that helps.

GlomOfNit · 12/03/2026 14:11

thanks as ever for your information and help, JinglingSpringbells

Turns out there was a miscommunication issue, either from the GP who rang me on Monday or from the Gynae department, but in any case, a day after I posted this, a letter appeared in my NHS app from the gynaecologist, saying that as per BMS guidelines (yay) I should adjust my HRT, and they recommended that since I'm 52 and now at the average age for actual menopause, I should go onto continuous progesterone. Give it 6 months to settle and see if I still have any bleeds at all. I'm happy with this result. Smile

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