Decades of period issues and very heavy bleeding lead me to chose a uterine ablation to stop the heavy bleeding. That was almost 4 years ago and 6 months post op I was experiencing so much pain each period (ablation doesn't stop the cycle).
An MRI discovered deep endometriosis and diffuse adenomyosis. I 50 when this was discovered and almost 53 now. I am now under a specialist endometriosis gynae at my local hospital and on a waiting list for a hysterectomy and excision surgery.
The truth is that I'm not mentally fit for such a big surgery, I've been under a hug amount of stress over the last 6 years whilst caring for my mum who is now in advanced dementia. I have ADHD and perimenopause is making my mental health a million times worse. If I have surgery right now I'll have a breakdown I'm sure of it.
I get the awful pain around a week before my period and around 5 days during the period (literally no bleeding due to the ablation) and for a few days mid cycle/ovulation time. The rest of the time is fine apart from daily IBS/digestive issues which is a whole other story.
Tbh, at my age I was hoping by now to have gone in to full menopause but I still seem to be having regular cycles which is so frustrating.
If my endo had been picked up before it was I would have had a mirena but it's too late now due to the ablation scarring. The procedure has also worsened the adenomyosis. It was never mentioned but I've gone back on all my us scans and it looks as though a small amount of adeno was detected in 2020. From what I read online ablations are not suitable for adenomyosis sufferers.
I really need to stop my cycle and I'm sure it will help with the pain then when I go into menopause I am hoping everything may ease off.
But I'm finding it hard to get correct advice for my issues. I'd like to try hrt but my gynae says it's not a area he is interested in, my GP has only basic knowledge of HRT for non complicated patients and I can't afford to go privately so kind of stuck knowing where to go for advice.
I was wondering if the mini pill could stop my cycle and then I can use oestrogel to form a HRT package?
I'm worried the hormones may exacerbate my issues and I also worry because my mum also has breast cancer and I don't know what that means to my risk factor (although I am a non smoker, non drinker and slim).
Has anyone been in a similar position with endometriosis and/or adenomyosis?