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Menopause

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Can't cope with perimenopause

17 replies

Perimenopausehell · 05/04/2023 20:59

That's as concise as it can be really. I've always struggled with all things gynae, I have ovarian cysts, adenomyosis, PMDD, hormonal migraines the works. Peri has completely amplified all of this and then some. I can go 3-4 months without a period but in these months my mental health plummets and at my worst I become suicidal and riddled with anxiety and paranoia. This all stops when I get a period again.

I then get a few months of periods but they aren't consistent. Some months are 21 days others nearer 35 but I do ovulate and my anxiety, paranoia and suicidal intention don't present themselves. My periods though are something else. At their most manageable I flood from day one and I can take tranexemic acid and ride it out. At their worst I get 2 days of flood, 3 or 4 light days then a few days where I simply cannot do more than sit on the toilet and let the blood pass (tmi sorry!). I never know what I'm getting from one month to the next.

I have seen my GP who ran blood tests, all came back ok. They told me I'm too young for menopause (I'm 40) and said the bloods show my hormones are fine and sent me away. I'm not stupid I know what this is and yet I can't cope and have no help. I'm on the waiting list for a hysterectomy due to the adenomyosis but that could be years away.

Is anyone else in this situation? Is there anything natural/non medical I can take to manage this hell?

OP posts:
SparklingLime · 05/04/2023 21:06

Oh god, I had a very similar situation to you. Realise now I was peri at 41. The flooding! I had no clue though. Eventually went on HRT (transdermal: oestrogel and Utrogestan) at 46 ish. Wish I hadn't waited so long. Your GP does not have it right. Let me find the NICE guidelines...

Greensleevevssnotnose · 05/04/2023 21:09

Go to a menopause specialist. Mine is Olivia Hum. I was undiagnosed for 10 years. Blood tests are useless. I attempted suicide and lost my job due to paranoia and anxiety and the gp kept giving me Setraline. Two weeks on estrogen and utrogestan I was a different person. Still fiddling with the dose but much better

FlyingFang · 05/04/2023 21:11

I paid for a Bupa menopause call (about £200). I think I was 41. They took me seriously and prescribed HRT which really helped. If you can afford it, go private. I'd been fobbed off with the 'too young /hormones OK' chat by GP. You know your body.

SparklingLime · 05/04/2023 21:17

Also had severe anxiety. (Drenching sweats didn't arrive until years later.) I spent hours on Menopause Matters website and forum and worked it out myself. GP useless.

I found nothing non-prescription that was evidence-based. Apart from a healthy diet and lifestyle that I couldn't manage. The transdermal HRT I mentioned above is bio-identical and as close to what your body should ideally still producing at 40.

Your GP is right in that blood tests are suggested below 45, but they should be on day 3 of your cycle, and if you don't have a reliable cycle... Flexibility and prescribing to symptoms is vital at your age.

www.nice.org.uk/guidance/ng23/ifp/chapter/Treating-menopausal-symptoms

SparklingLime · 05/04/2023 21:20

You absolutely should not have to pay to go privately. Ask who is interested in women's health/menopause at your GP. Worth asking again, armed with more information.

Also see: thebms.org.uk/find-a-menopause-specialist/

WhereAreWeNow · 05/04/2023 21:23

I'm sorry you're having such an awful time. Like you, I've always suffered with hormonal mood related stuff (PND, PMDD) and heavy bleeding and unfortunately I think that does make me more prone to a 'difficult' perimenopause. HRT has been a game changer for me. Mirena coil has stopped my periods completely - I've finally stopped needing iron tablets and ibuprofen! And estrogen patches have really improved my other symptoms (aches, depression, anxiety, insomnia).
Don't let your GP fob you off. Ask to see someone else if possible. Go with a list of symptoms and the Nice guidance. Good luck!

Pattydale · 05/04/2023 21:24

Sorry to reply quickly but could you have a coil. Mirena is a bit marmite on here but worked for me and broke my cycle thereby breaking my migraine cycle too. I was demented. Now have that plus patches and feel human

Perimenopausehell · 05/04/2023 21:26

Wow! Thank you all so much for your speedy help, I'm sorry to hear so many others have gone through this hell.

Sadly I don't get on with a mirena, I've had 3. First 2 got severely infected and the third they insisted I keep in for 6 months and I didn't have a single day where I didn't bleed in that time. I'll be taking that NICE guidance to my GP, I'll ring them tomorrow to get a prebookable with the gynae specialist GP in the practice. I've seen her a lot and know how lovely she is so hopefully she will take me seriously. I can't carry on like this.

OP posts:
SparklingLime · 05/04/2023 21:36

I saw a private gynae (useless) so went back to my GP and asked for oestrogel and Utrogestan. She hadn't heard of the latter (some years ago, before the patch shortages) but to her credit looked it up on the system and prescribed.

It's not the answer for everyone, but it is possible to vary the dose yourself. And use the Utrogestan vaginally if preferred (off license).

Benefits of HRT for brain, memory, prevention of osteoporosis etc are also vital when you get an early peri.

WhereAreWeNow · 06/04/2023 07:21

If the Mirena isn't an option, you could ask GP about prescribing Qlaira or Zoely. They're contraceptive pills but they're often prescribed for perimenopause. I was on Qlaira for a while. It didn't control symptoms as well as Mirena and patches but it did reduce my periods from 8 days of flooding to 3 days of light bleeding. I definitely felt better on it than not. GPs are sometimes reluctant to prescribe because it's more expensive than some other pills so you might have to do a bit of research and be prepared to make a case for it.

Movinghouseatlast · 06/04/2023 12:27

Try to be referred to a menopause specialist. I went to a group consultation last week and there were two women under 40 who were prescribed HRT.

If the GP won't refer you it may be worth going private?

UsernameNotAvailableNow · 06/04/2023 12:36

I am 40 and have been in peri for at least two years. I had to try 3 GPs before I found one who took me seriously and prescribed HRT. For me a combo of coil (had one in anyway) and patches has helped hugely. I had bloods done that showed everything within normal range,but she prescribed based on symptoms and family history. Couldn't date the bloods to cycle due to coil.

Sorry you don't get on with the coil but please do try another GP so you can get it sorted. Do you have any friends who are in meno who have had good support from GP? See if you can reregister with their GP perhaps?

BotherhoodOfMan · 07/04/2023 12:15

It could be worth trying desogestrel as that sometimes stops periods (took about a year though for me and it unfortunately didn't stop the migraines just the bleeding). In the meantime try different GPs and/or a different practice and hopefully get HRT.

ChopOrNot · 07/04/2023 19:59

Get them to start to listen over your heavy periods. Do this and tell your GP what your score it (from what you have said you will be in the "you should talk to your GP about this).
https://assets.nhs.uk/tools/self-assessments/index.mob.html?variant=54

When I was on the implant I was 17/18.Horrific. Flooding every 2 weeks and not stopping the medium/light bleeding in between. I think I had (bar 1-2 days) an 18 month long cycle.

I can't have the coil (well, they try and fit them, if they get it in it expels/moves. Next step for NICE is an ablation - tried but uterus too narrow.

HRT has significantly calmed things down, including a higher than normal dose of utrogestan.

Please go back to your GP for help with periods...

NHS Self Assessment

https://assets.nhs.uk/tools/self-assessments/index.mob.html?variant=54

WhoToBeToday · 07/04/2023 20:07

I have cut and pasted the below from a Facebook group I am on, with advice on how to speak to your GP about trialling HRT. Tis a bit long, but worth the read, especially if you have already had a knock back:

Lots of posts about people have issues with the GP, getting angry at the GP, getting worried about speaking to the GP or confused about how to talk to their GP recently. I’ve posted versions of this in replies but given the posts today about GPs, a general post seemed a good idea.

  1. “I think I’m peri / menopausal, should I bother talking to my GP? There’s lots of other women seeking help / I guess I’ll just struggle on till there’s no HRT shortages”
This is silly. Sorry not sorry. There is no prize for “struggling” and there’s evidence to suggest women who start HRT earlier do better. There are always going to be people seeing the GP and it really doesn’t matter if some of those people are also seeking help for menopause. There is not a quota for how many women can get help for menopause per day! As for shortages - there are always some shortages and while it’s a bad thing, most women are able to get their HRT after a bit of phoning round and potentially travelling further than they should have to. If you’re waiting until there’s no shortages or risk of shortages, you’re gonna be waiting a long time. So call your GP! And when you make the appointment, and the receptionist asks what it’s for, make sure you say “I believe I am peri / menopausal and want to trial HRT”. Lay the groundwork early.
  1. The appointment
First things first. Younger GPs are not necessarily better or worse than older ones, female GPs are not guaranteed to “understand” just because they too have a uterus. So unless you’ve got personal experience of a GP, don’t assume. If you have the option of speaking to a receptionist to make an appointment, you could always ask to speak to “someone with a special interest in menopause” but not all surgeries will have someone. Second, prepare your information. The frightening (in one way) and awesome (in another way) about peri-menopause and menopause is you get to (or need to!) do your research and take control. We’re used to going to the doctors and being seen in a paternalistic fashion- being told what to take and how long to take it for. Few of us are going to argue for a different antibiotic, we are nice polite ladies and take what we are told, saying thank you doctor on the way out. Peri / Meno / HRT is different. You are expected to have some ideas about what to take. If you haven’t, you will end up with what the GP thinks is best for you based on their preferences which may or may not be the same as yours. For instance, GPs where I am love the coil, and would give that to every woman if they could. It doesn’t suit me though, so if id just asked for HRT, that’s what I’d have got. Download the “balance” menopausal app onto your phone and fill in the symptoms checker. The biggest mistake people make is going to the GP and crying about feeling sad. Some GPs will consider HRT at that point but most will (understandably) equate crying woman with depression. And if you’ve not fully explained other symptoms a handful of anti depressants is hardly unsurprising. If you fill in the report on the balance app it’ll generate a PDF you can email or email and print off which puts your symptoms in doctor speak. For instance, night sweats are vasomotor dysfunction. You need to take this to the GP with you so print it off. Next go to Google and find the NICE menopause guidance. This is the GP “rule book” on how you should be treated. Read it several times and highlight bits if you want - print it out, take it with you but KNOW what it says. Next, work out what HRT you want. Forget about shortages. There are always shortages near enough. At the moment it’s gel, next year it’ll be patches or even spray. Work out what you WANT. You will need something to give you oestrogen and something to give you progesterone. If you want the BEST (most modern) option go with transdermal oestrogen (patches, gel, spray) and Utrogestan progesterone tablets. You can consider the coil and patches for progesterone but these are synthetic progesterone (progestin) and some people don’t manage them as well. You MAY be offered a single daily “combined oral HRT” tablet. You can only take these for five years and they carry a slightly higher clotting risk. So you’d need to change again at 55 - just get the new stuff to start with. So now: You have your report You have your NICE guidelines You know what you want On appointment day, scrap any combative attitude you have. No “getting ready to do battle” or “preparing for a fight”. Your attitude will affect your behaviour and that will affect the GPs attitude and behaviour. Look at it from the GPs side. They probably don’t know you from Eve, and in stomps a bolshy woman with a face like thunder. Of course it shouldn’t make a difference but it does. Be confident and self assured, cos you’ve done your homework. Remember too that your GP has ten minutes. GPs are trained to talk abs question in a masculine fashion. Woman chit chat, dance round the subject and hint at things obliquely. It’s what we do as part of society. We don’t ask clearly and simply for what we want. This is fine when you’re chatting to a shop assistant but not when you’re explaining symptoms to a GP. Example: a male approach would be “I’d like to trial HRT because I believe I’m peri-menopausal and my quality of life is suffering as a result”. A female approach (and I’m talking from experience) “I feel really weird and sometimes I cry and I don’t know why and I’m anxious about things like the other day I was in the shop and I just felt really worried and I’d only gone for some bread but there was so much and I just couldn’t choose and then I knew I’d gone for something else but I couldn’t remember what so I had to call my husband. And at night I just can’t sleep and sometimes I get really hot and go all red but no one else is hot and I’m not wearing a jumper so it’s not that and I wake up in the middle of the night and I’m all sweaty, I used to get that when my husband cuddled up to me but it’s not that, I don’t want him cuddling up to me and it’s a shame cos we used to have a really good sex life but I’m just not interested now but it’s probably a good thing cos it’s all sore down there you know anyway…” See the difference? It may seem rude to speak in a masculine fashion but it’s really not and it’s just for now. Your GP will appreciate you being direct because your appointment is only short. But you’ve got your lovely balance app checklist, so this is going to be easy! “Hello, I believe I am peri-menopausal and would like HRT. I have tracked my symptoms on the Green Climeratic Scale (hand over the report from the app), and I have read the NICE guidelines. I have a copy of the NICE guidelines if you would like them. (Offer to hand them over). (If you’re 45 or over you can say: I am aware I should be offered HRT based on my symptoms as I am over 45.) I am happy to have blood tests to rule out other conditions but would like to trial HRT for three months now. Having done my research, the formulation I want is (whatever HRT you want). Then sit back and say nothing with a polite smile. If they offer blood tests that’s not a bad thing (iron, vitamins can cause issues) and say you are happy to have them for OTHER concerns but (if you’re over 45) point to the guidelines and say “the NICE guidelines for menopause treatment at my age state diagnosis is on symptoms as blood tests are unreliable. If you are refusing to follow NICE guidelines for my treatment, I would like that added to my medical records along with your justification so I can make a formal complaint”. Don’t be emotional, just polite. That should work nicely.
  1. If they say no
This isn’t the end of the world and don’t take it personally! Ask for them to document why they are refusing to allow you to trial it and ask for the reasons to be added to your medical records. Ask for them to provide you with a copy of that entry and explain you want a second opinion and you’d like that arranged now please. Just be calm and polite. Then repeat this process with the second doctor.
  1. If “the blood tests are normal”
This is only an issue if you are under 45. 45 or over you can remind them that it says they should treat based on symptoms in the NICE guidelines. Blood tests should be carried out on two specific dates in your cycle to have any chance of being accurate. If you’re told your blood tests are normal based on one test, explain that you’re aware there should be two tests carried out, but even then it is unreliable. Explain that “even thought my blood tests say I am not menopausal, my symptoms suggest i am, and I would like to trial HRT in the form of (your choice) for three months please”. If you’ve got an agreement to trial HRT, make sure you use the balance app to track your symptoms so you can show what has changed. And Finally: GPs aren’t all perfect but they’re not all dreadful. They’re GENERAL practioners and yes of course they should know everything about the menopause, but we also expect them to know about cancers and strange rashes and weird ear issues and dodgy toes and funny lumps and why your pee smells funny and why the baby won’t stop crying and god knows what else. We need to take control and research ourselves. The info is out there, and brain fog isn’t a reason not to do it. If the Balance Menopause site is too hard, watch the Davina McCall programmes. Use the search bar here - it really does work. Or post your own question. But don’t let fear put you off.
QueefQueen80s · 08/04/2023 00:24

God OP you poor thing, I had my womb out last Oct for a giant fibroid and would have let you go ahead of me ten times. You really should be high up the list, it would solve so much.

Aloevera123 · 08/04/2023 03:44

In a similar boat, I really hope things get better for you. Replying with this in solidarity. Why are we not heard?! If nothing else you are not alone. For me, seriously long family history of early menopause at my age, every symptom in the book many of which started a year up to 2 years ago. Struggling to cope so went to gp. Mental health and fatigue, brain fogs the worst it affects my job, physically i cant do what i normally can to manage wellbeing. That makes it worse. Joint pain and fatigue messes that up. Months of going for tests, told by one doc can't be that too young, must be pcos, they also told me to lose weight. I weigh 7 stone! Had some tests done, another doc said if everything comes back fine its likely perimenopause and low and behold all fine. Saw a different doc to review, hormones fine and too young, I should be glad it's not that it can cause health issues. You're probably depressed. OK so why am I swinging from 2 day periods 2 weeks apart to 13 day period 5 weeks apart. Have you had covid. Maybe cut down on caffeine! Diagnosis depression and pmt. Having a few weeks break to go back and yet again try to advocate for myself without feeling ignored.

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