Found the holy grail - but now it’s going to be taken away?

[Rocklobstershell]

please excuse the weird title / not sure how to summarise this issue succinctly :

I started hrt a few weeks ago: Utrogestan 200mg and Sandrena 1mg daily after pretty crippling peri symptoms and it’s been wonderful so far … early days and some of this could be placebo I guess but I feel like it has reduced my anxiety by a significant amount of notches, is helping me sleep better, my moods are sunnier and most wonderful of all I have way less brain fog.
BUT alongside issuing my first prescription my Dr sent me for a barrage of tests.

All came back fine except for the pelvic scan. Dr telephoned yesterday and apparently I have a condition which causes there to be a lot of blood vessels in my womb (it sounds a bit like endometriosis but begins with an A I think .. I wish I’d written it down at the time). This condition can increase (she thought) my cancer risk on hrt slightly. It also causes heavy painful periods.

She is checking with an obstetrician and will get back to me this week. I’m really worried she’s going to advise me not to continue on the hrt anymore. I’m really tempted to argue the case for me to go ahead regardless but with regular pelvic scans… I mean. I already know hrt has risks … I think I am prepared to accept a little more risk for better quality of life. Am I mad? And would I even be able to do this or would the Dr outright Vito me?

Adenomyosis?

It's your choice and is about balancing the risks and benefits, like anything else medical.

You can also request a second medical opinion.

Sounds like you have adenomyosis. I can’t help with the HRT advice but following with interest as I have endometriosis and adenomyosis (treated with ablation) and I’m entering peri menopause.

Adenomyosis - yes that’s it thank you wondrous mnetters! The weird thing is I don’t really have horrible periods … I mean the first two days are heavy but not unmanageable and I get cramping but it’s not the kind that sends you to bed and keeps you there so I do wonder if I have been misdiagnosed? I am in the fortunate position of having private medical insurance through work so I think I might ask if it would cover a second scan (first was Nhs) and see what they say?

@Rocklobstershell

Are you in the UK because a 2nd opinion would be from a gynaecologist, not an obstetrician (although some are qualified as both.)

I have adenomyosis which was diagnosed on scans many years ago (which I have privately as part of my long-term HRT.) My scans are done by a highly experienced gynaecologist who specialises in identifying female gynae cancers by ultrasound (ovarian and uterine). So I trust what he says!

Adenomyosis is similar to endo, but with adeno the muscle of the womb lining has receptors for estrogen and that can cause heavier bleeds when they respond to estrogen (in HRT or per-menopause. ) With endo, it's the lining of the womb rather than the underlying muscle.

It has never been an issue that I have adeno.

There is no added cancer risk as long as you use the progesterone part of HRT as it ought to be used (and that applies to all women on HRT.)

If you want to use your private cover for a 2nd opinion I can recommend where to go but it depends on where you live, of course.

Honestly, get a proper - private if necessary- opinion

Yes sorry Jingling I meant Gynaecologist! That’s really reassuring thank you 🙏

And yes please to the recommendation!

I will PM you.

Thank you!

Interesting…. I’ve just been diagnosed with Adenomyosis and told the best thing to do is stay on the HRT……