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Menopause

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Have had to come off HRT and I am suffering from leg pains....

6 replies

TheOldWiseOne · 21/10/2014 21:36

My doctor said that I had been on HRT for too long ( 7 years) and that I had to come off it or sign a disclaimer if I continue with it....(not much experience with the NHS as I have recently come back to live in the UK)...anyhow since I came off it I have suffered from the most excruciating leg, hip, thigh, pains - after sitting I am like an invalid trying to get up. It is like my bones don't want to support me! After a few seconds I am OK and ready to roll...I think that exercise worsens it. The pain is worst during sleep and it tends to wake me up through the night and wake me early. I am also glowing for many parts of the day - e.g. after I eat and other random times..It is just like before I started HRT except worse. I feel like I am 99 years old. It really is shit.

Has anyone else experienced this?

Has anyone had their doctor suggest similar ? ie the disclaimer....

I do have an appointment and am going to tell him I want something done as it is just bloody horrible!

Thanks [ confused]

OP posts:
pinkfrocks · 21/10/2014 22:20

Your dr is a bit behind the times. There is now no need to limit HRT to any length of time . The risks that were found in 2002 have been shown to be exaggerated and discredited. Very few GPs seem up to date with this.

How old are you and have you come off HRT slowly or immediately? If anyone stops they should gradually come off it over 3-6 months by reducing the dose.

You may be suffering aches and pains because of the rapid loss of oestrogen. if your dr wants you to sign a disclaimer- to cover them against you suing if you get side effects- then just do it. All it means is that you have been made aware of the risks and have made an informed decision to stay on HRT.

Have a read of these guidelines from the BMS

BMS Consensus Statements: Summary & Practice Points

Title: Hormone Replacement Therapy

Article: » print this

Managing the Menopause

British Menopause Society Council Consensus Statement on Hormone Replacement Therapy

Summary

The British Menopause Society Council aims to aid health professionals to inform and advise women about the menopause. This guidance refers to estrogen- based hormone replacement therapy (HRT) and tibolone, which is classified in the British National Formulary as HRT. Treatment choice should be based on up to date information and targeted to individual women's needs. HRT still offers the potential for benefit to outweigh harm, providing the appropriate regimen has been instigated in terms of dose, route and combination for a valid clinical indication.

23 May 2013

Summary practice points

The decision whether to use HRT should be made by each woman having been given sufficient information by her health professional to make a fully informed choice

The HRT dosage, regimen and duration should be individualised, with annual evaluation of pros and cons.

Arbitrary limits should not be placed on the duration of usage of HRT; if symptoms persist, the benefits of hormone therapy usually outweigh the risks

HRT prescribed before the age of 60 has a favourable benefit / risk profile.

It is imperative that women with premature ovarian insufficiency are encouraged to use HRT at least until the average age of the menopause.
If HRT is to be used in women over 60 years of age, lower doses should be started, preferably with a transdermal route of administration.

It is imperative that in our ageing population research and development of increasingly sophisticated hormonal preparations should continue to maximise benefits and minimise side effects and risks.
This will optimise quality of life and facilitate the primary prevention of long term conditions which create a personal, social and economic burden.

TheOldWiseOne · 22/10/2014 09:40

Thank you, pink frocks. I will read up some more on that.
59 years old and came off within about 6 weeks....now been off for about 10 weeks...

OP posts:
pinkfrocks · 22/10/2014 11:44

I am around same age and have been using it for 6 years. My consultant gynae (Harley St) is happy for me to carry on indefinitely as long as no new evidence comes along showing it's more risky.

TheOldWiseOne · 22/10/2014 18:25

I have an appointment to see him again to discuss this as really this just makes life MISERABLE.

OP posts:
Morgan10 · 16/11/2021 19:07

Hi is anyone suffering from leg pain on hrt patches, I have been on the patches for nearly 4 years with no problems until now. My legs ache and sometimes my whole body aches. I have recently tried vitamin D and magnesium but the problem is still there. Any advice would be appreciated thank you

aquashiv · 20/11/2021 07:50

Definitely signpost to latest guidance from BMS. I'm being buried with my HRT the pains and joint ache prior to being on it were debilitating.

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