Hi all, mum to a 6, nearly 7 year old girl. She has had quite a tough life medical wise and is currently going through a struggle feeling different to other children. I have spent thousands on private therapy for medical trauma and saw a great improvement when she finished a couple of months ago, and seem to be going backwards again unfortunately.
We live outside a small town and she goes to a small village school, her needs are purely medical and has no reason not to be in a mainstream school. The primary school has only 35 kids and she is the only one with complex medical needs. She has been tube fed since birth and has a metabolic disorder which effects her blood sugar, she also has a port a cath central line. She can eat orally now however needs supplementary feeds to help hypoglycaemia. She has a continuous blood sugar monitor which alarms when she is low which she is starting to get very frustrated with as it draws attention to her.
We are in North east England and although we do have one child in town who has almost identical needs who is 3, she would just love to have some friends like her her own age or older. I’d LOVE if anyone reads this and isn’t too far would like a meet up, or mabeys even virtual! She really is such a lovely girl I really feel for her and it’s heart breaking seeing her so upset about being different.