Illness and doing it alone

[charlene82]

Just a whinge I guess sometimes it's so difficult raising my child with life long illness and work as well as a house to run , Been in so much pain lately and absolutely exhausted and have no one to help , just feels like a massive battle sometimes and wish I was not I'll feel guilty that it impacts our lives so much

It sounds as if you are working hard to create a good life for all of you, it is hard with a long term illness take time for you when possible and keep talking

I'm sorry that you have to deal with this on your own.

I am on my own with my little boy. I don't have a long term illness, but for what it's worth, I spent three days and nights looking after my little boy while he had a sickness bug, only to then get it myself. This knocked me for six so I was unable to take him into school last Monday. He just spent all day sitting on my bed watching the laptop and looking worried about me. It was a horrible situation for him.

I had a good cry about it. On the plus side, (although it's very hard to see it that way), I think it gives them a strong sense of independence.

On reflection, I think that all you can do is to keep talking to them about the situation; try to reassure them that you will all be okay. Also, keep a supply of long life food in, for those times when you can't leave the house.

Hugs to you, you are doing the best that you can. Focus on what you do achieve and be realistic about the things you can't. Washing needs to be done, but dust...well it just comes back, eh?

Agree with the planning situation...

I keep some easy foods to hand - tins of soup, or in the freezer with bread and some long life milk.

At least then you can eat.

I remember waking with a migraine so bad I could barely move. Couldn't even get up to get my prescription nasal spray in the bathroom. DS took my phone and took a picture of the shelf then i pointed to the one in the picture and he went to get it!!!!

He does a lot of things for me now he's 12, and can cook himself some basic meals.

But when he was little, it was duvets on the sofa, and hugs all day through sickness.

Your DC will grow up with an empathy and understanding of life that you can not teach.

I have along term chronic illness and DCS have a maturity and understanding of my needs sometimes stop me cooking tea , doing things right then and there for them.

Was recently poleaxed with norovirus, I lay on the floor in the bathroom, they bought me a pillow and a bucket - it was streaming from both ends simultaneously, brought me a blanket, glasses of water - because you need to keep drinking mummy and the two of them got their duvet and pillows and slept there with me, they got up everytime I chundered and gave me a wet flannel and then put toothpaste on my toothbrush - not to taste the sick.

Love them both dearly and at times like that there is nothing else I can say. Eldest felt guilty because he had started it 2 days before!