Hi!
I run a support group for people who have been diagnosed with or suspect they may have Hypermobile Joint Syndrome/Ehler Danlos Type 3. The group is part of the Hypermobility Syndrome Association, which provides advice and support for people with the condition. See www.hypermobility.org for more details.
Meetings take place in Exeter and I try to do them at least once every other month (although having the condition, working part time and having a toddler sometimes means I don't quite get around to it but I'm pretty close!) and if I'm organised every month!
We're a friendly bunch and very informal, we usually have a general chat and then share coping strategies and tips about gadgets that help us. There is also plenty of tea/coffee and cake!
If you have the condition or are a parent of a child/ren with the condition get in touch - [email protected].
Thanks!
xx