Oesophagus stage 4 cancer prognosis?

[Totallybannanas]

We don't have any prognosis but he is having any treatment. He has had a stent to help with eating and drinking but that's it. He has lost alot of weight, but still eating and drinking. He was admitted to hospice with UTI and agitation but they seem to have stabilise him. His mobility isn't great and he seems to be getting weaker. I just feel I am stuck and in limbo right now. Everything is on hold. He is meant to be going into a nursing home but there is an issue with funding. I just for his suffering to be over with as he is extremely agitated and distressed by the whole thing. Can anyone share their experiences of this awful disease?

My sister in law was diagnosed in early December 2019 and died in March 2020, sorry I can’t be more positive

Best wishes

My father in law only had around 6 weeks following diagnosis but he has been really struggling with eating/ drinking and losing weight for months before that. It’s a horrible disease 😢

My dad passed away 14 months after diagnosis. He had radiotherapy and a stent fitted. Wishing u the best x

I just wish I knew how long for. I was preparing for a sprint but seems like it could be a marathon.

Hi, it could be a sprint unfortunately. My Dad was diagnosed in the September and died in the January. Sorry it isn’t better news and sending you all the hugs as this is a truly awful disease 💐

It's been 2 months since diagnosis and I am truly exhausted.

My dad was diagnosed in March 24, went though chemo, surgery and more chemo which finished Dec 24, fast forward to May this year and he's been given around a year to live given that it's returned in 4 places. This disease is so utterly cruel, he's been through so much and we still have what's to come. My thoughts are with you.

My Dad was diagnosed in 2018 but it was caught early. Surgery, chemo, radio and he was clear for a further 6 years. Then last year a very aggressive throat cancer emerged and he died within a couple of months. So sorry you’re going though this. It was extremely quick and peaceful at the end.

My Dad had this, he miraculously beat the odds. He now has MDS leukaemia instead. Not sure which is the worst option tbh. Sorry

My grandmother was 92. Diagnosed in the May and sadly died in the November. I miss her every day nearly 7 years on.

My grandmother was diagnosed with this after struggling to swallow at Christmas. She passed away the following May. She was 77.

Sorry for everyone's loss. It seems such an awful disease. DF wants to go now, but his body isn't ready. He is losing weight but I don't think he's as bad as he thinks. Every day he tells me he doesn't think he has long left 😕

My sil was diagnosed in 1999.
It was caught very early.

She has a very restrictive diet.
Now is suffering from lung cancer.

"I don't think he's as bad as he thinks. Every day he tells me he doesn't think he has long left..."

I think this is a very common experience, sadly, and one which I recognise from both of my parents. Both bore their respective illnesses bravely but felt continuously as if they were closer to the end of life than their clinical teams and carers knew to be more realistic estimates. It was heartbreaking as they both really wanted to go.

Do prepare for the marathon, OP. It is exhausting, and then it is over. If your relationship is a close one, you will be so glad you were able to be there for him. If you have family, can they close ranks and manage more of your home while you direct your energy toward your dad and keeping yourself afloat too. Sending strength.

My Dad ( 78) was diagnosed last year in July. It was found purely by chance when they were looking into an upper hernia and reflux issue. It was caught very early. They decided that surgery was too higher risk with a terrible and long recovery. They started chemo. Chemo was awful and he was very, very ill. It shank by half with the first round. The second round did nothing. They changed treatments to immunotherapy. He continued to have terrible reactions to the treatments. It caused heart issues, he had numerous infections, it has caused his thyroid to misfunction, kidneys, heart attack, pace maker put in, fluid around the heart and sudden onset diabetes.

That said, they scanned and scoped him last week and he is officially cancer free. He's a physical wreck and a shadow of himself but he's really looking forward to regaining his quality of life.
Anyone reading this with a reflux issue, get it seen/ investigated as this is a big red flag.

My uncle, who we are very close to, has just been diagnosed with this, as he was struggling to swallow. No news as yet as to the stage he’s at, as they’re awaiting the PET scan (?) results. Desperately hoping that it’s not as bad as I suspect it might be.