Thread #5 for those living with incurable cancer, supporting each other and remembering the lovely friends we've lost along the way

[SewingBees]

New thread, an open invite to anyone living with Stage 4 cancer to share your worries and joys and just generally chit chat about whatever you're going through today x

I'm just on the way back from my appointment for meds. All present & correct for a change

Nurse - Do you have your consent form?
Me - Nope, didn't know I needed it
N - Everyone has to bring them
M - Fairly sure it's recorded in my notes - check there
N - Could do with yours
M- Still don't have it with me, can't magic it into my handbag & why is it being put on patients to bring them when it should be recorded
N - 🤷‍♀️
M - brilliant, something else to remember 🙄🙄🙄🙄🙄🙄🙄🙄🙄

Fucking shrug!!

My friend rang me while I was waiting for my injections...another friend has been for biopsies this week but didn't want to worry me.

Ffs!

I wonder when patients start getting a salary from the NHS 🤔

@lucysmam what was the consent form for? Not just to collect meds, surely?

To collect & so I could have the Goserellin/Denosumab...that I consented to almost 2 years ago.

@lucysmam - that’s just ridiculous

Yup. They should have this available to them. & realistically, which idiot is willingly off to their local chemo suite for random cancer meds 🤷‍♀️. Just doesn't make sense.

@lucysmam would make so much more sense for them to keep it with your records. Maybe you’d need to show another form of ID.

But who would turn up for cancer meds they weren’t on? The drugs aren’t exactly known for being fun.

I feel like I have reached the end of a very long week. My DH and DS have been away they have had a successful week seeing puffins on Skomer island off the Pembrokeshire coast.
That has left me in the tender care of my mum who is very good at practical help but has the emotional intelligence of a banana!
It's been a tough week but they are on the way home
@RedRosesPinkLilies 'informed denial' was indeed me although it's harder now reality is kicking down the door!
Love to everyone on this wet and grey Easter weekend xx

Morning everyone! Happy Easter 🐣

How's everyone doing?

I'm still full of this bloody fluey thing. The amount of snot I have blown is rediculous! Quite enjoying the slow & steady pace of the long weekend - not looking forward to work on Tuesday though.

Morning @lucysmam
A slow one here.
DS asleep having been 🤮 in the night.
DD in bed after a heavy bottomless brunch yesterday!
DP moaning that the hedge trimmer battery is shite and I’m looking at the shit load of ironing, thinking “ nope, that can wait”

No clue what’s for dinner, egg on toast probably! 🤷‍♀️

Oh no, your poor ds, hopefully just a one off 🤞.

None of mine are up yet - just me and girl cat for quiet cuddles this morning 😊. I do want to do a bit more cleaning after last weekend, but it won't be loads! Might rope the girls in...might do it in peace...who knows 🤷‍♀️

I'm having a very quiet weekend. My daughter is away with her dad and the energetic dog. I'm home with the slow old one - I can relate.

I went away for work this week - that was tough physically. The "assistance" at various stations was extremely variable. I could rant but I won't bother.

Daughter is back tonight/early hours tomorrow so I'll see her early doors. She's with me all next week and I'm looking forward to a week off work and some time with just her.

The week after I'm seeing my spinal surgeon and going to ask him to fix the broken rods in my back (second attempt after the stupid allergic reaction I had under general anaesthetic that meant they had to abandon the operation). I'm getting a lot of break through pain despite the morphine, paracetamol and naproxen I take religiously. The GP recently upped my morphine dose and it has made no difference. So surgery it is.

My district nursed promised to ring before she came so I could get in the shower. She never. That annoyed me as I can’t do it with the dressings on and I feel minging. I’m home alone so nothing unusual about that. My appetite has totally gone which is worrying me I just don’t feel hungry the only thing I’m eating is cereal. It looks like a lovely day outside. I’m going to try and do abit of cleaning. Everyday is just the same. I have no energy but I know if someone rang to meet me I’d be out like a shot. I shouldn’t complain really.

hope you enjoy your eggs!

@EachandEveryone are all your friends still in your life and bother with you? My circle is tiny now, I’ve come to the conclusion that people just don’t want to know ( particularly as I’m so sweary and bad tempered these days!)

It’s funny isn’t it? I would say yes but the offers of lifts etc has gone now. My friends seem to have school age kids so the holidays are a no basically. I think they think I’d be bored but I love being around children. Also no one has any money. I’m getting my eyebrows bladed next week in town and I’d love it if someone came with me but no one has volunteered. One dear friend is also my now manager and I hope this isn’t going to get awkward between us as I know HR are on her back. We are all going to Glastonbury though but I’m camping with my old tribe I’ve told them not to include me in any of their plans.

my older friends are still around but it’s got to the point I have to reach out to them. I get I am a miserable sod these days so I don’t blame them.

Yes I’m a right misery. Currently only communicating with my kids, parents, partner and aunty; that’s it! ( oh and us lot on here, which is very essential!)

Glastonbury, will you manage with the wound and camping? Well hopefully said wound will have done a runner by then! 🤞🤞🤞

That is what I’m hoping! We are glamping proper beds and showers. There is a hospital tent there run by doctors and nurses as well.

Morning everyone.
Yesterday was quite a busy one spent with some of my children and the little ones.
It was beautiful weather so we were mostly out in the garden.

I'm not doing much today.
I've been up to the hospital for my pre chemo bloods, but yesterday knackered me out so I'm staying in and will watch a film or something.
However, I do need to nip out to get some shopping as my fridge and cupboards are bare.

It's such a grey drizzly day, such a contrast to yesterday.

Love to all xxx

I'm still full of snot! Snot for bloody days! & I'm sweaty as fuck. Not sure if it's hot flush sweaty, or poorly virusey sweaty tbh 🙄. I've decided to get my arse in gear & sort out my kitchen sides - it's half done & I'm ready for a nanna nap 💤. Best carry on though or it's likely to stay this way for another week.

Anyone for some snot <blows nose again>

D day for me tomorrow. Full
scan results, yep dreading it! I know it’s spread because of the pain. Can’t believe I have no hair, I don’t recognise myself. Now got weakness in left hand. I hope they pass the assisted dying bill soon!!

Enigma I will be thinking of you all day tomorrow.

We're all here for you @Enigma53 .

@Enigma53 We will all be thinking about you xx

Thinking of you @Enigma53. Xxx

@Enigma53 As above thinking of you today❤