Please or to access all these features

Life-limiting illness

Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

Unclear about what happens next (S4 cancer/sepsis)

12 replies

Badgerbadgermushroomsnake · 22/06/2024 10:02

Family member is 77 and has had stage 4 prostate cancer for five years that we know had spread to his back/pelvis but in a small area and the treatments have worked keeping PSA negligible all this time. He is an ostrich and does not wish to know the details during his consultations and appointments, consequently, we are in the dark but trying to piece things together as he has now been in hospital for 19 days with a perforated gallbladder, sepsis in the abdomen, kidney damage from the infection and severe anaemia for which he’s had a transfusion.

It is really hard getting any information from the staff about his prognosis (possibly because it’s noted that he doesn’t want to know) and we haven’t been able to catch the consultant since the initial admission.

I realise it’s not looking great but he’s finished the course of antibiotics, the drain is working well and his vital signs/obs are good (no “score”), so the nurses say he’s doing fine. And yet he looks and acts like he’s at death’s door when we visit. He has his eyes closed and comes round to mutter a few words then drifts off again.

He’s now refusing food, drink and medication; they get into him what they can. I know that this is something that happens in the final stages before death, so we are concerned, but the staff don’t seem to share our concern and haven’t told us anything to that effect. They haven’t said they think he’s going to recover but they do deem he has capacity and want to encourage independence, so they say they won’t “bully” him into eating. But by not helping him eat, he’s just going to go downhill.

We are determined to pin down the consultant for an update on Monday but in the meantime, as we have no prior experience of anything like this but, does this sound like this is the beginning of the end, even though his vitals are fine?

We can’t help feeling that there’s something the hospital are not telling us and as he’s in a hospital 40 minutes away, we want to make sure we’re with him if/when the time comes.

OP posts:
Badgerbadgermushroomsnake · 22/06/2024 16:12

Hopeful bump.

OP posts:
olderbutwiser · 22/06/2024 16:43

I don’t know, but this must be so difficult for you. It could be that the staff don’t know which way things are going to go for him either, and ultimately if he has capacity then how this is all handled is up to him. I hope you can get some useful information soon.

radio4everyday · 22/06/2024 16:44

Sounds as if he is in the last days of life. Sympathies xx

RoobarbAndMustard · 22/06/2024 16:48

Who does the hospital have as his next of kin? Have they been told anything? Does anyone have Lasting Power of Attorney welfare for him?
Sorry your family are this situation. It does sound very difficult.

papadontpreach2me · 22/06/2024 16:53

It sounds as if it won't be long op. So sorry.

papadontpreach2me · 22/06/2024 16:53

Can you ask for a move to hospice. It will be much more peaceful in there.

DullFanFiction · 22/06/2024 17:08

We’ve been in a similar situation with FIL.

Is the ward he us in an oncology ward or a general ward fir the sepsis?

I found that departments are very separated. If you are in a department for sepsis, cancer doesn’t exist (FIL was in the urinary department) and doesn’t seem to be taken into account even though he was stage 4 and at the end if his life.
I think you really need to catch the consultant bd ask awkward question, incl around the way he behaves. You’ll have to be assertive. Ask if some of the symptoms could be linked to his cancer rather than sepsis. How do they know if it hasn’t spread? Etc….

FIL died when there was still restrictions on visits in hospital as a result, he spent the last 4 months of his life alone in a room chasing the elusive ‘recovered enough to get back home’. It was crap tbh.

DullFanFiction · 22/06/2024 17:09

And YY about involving Hospice Care asap rather than waiting for the consultant etc… to suggest it.
It might be harder to negotiate with him but they’ll know how to guide you.

evrey · 27/07/2024 13:18

I have worked in an end of life setting for many years. Like a previous poster said if he is in a cancer ward they will be focused only on that if he is on a surgical ward they will be focused on the sepsis. I would ask for a meeting with his responsible medical officer and ask some of the following.
Firstly - Can he eat? is his swallow reflex still there? if he has aspirated on food /vomit during his most recent illness, my experience is that someone rarely comes back from that and you will be looking at a few weeks.
Ask the nurses if as family you could try to encourage him to eat and if so what food iddsi level is he at. Are his fluids thickened or normal?
Secondly is he sleeping nearly all the time? is this because of illness or pain medication?
Thirdly does his chest sound rattly? Secondary chest infections can quickly follow sepsis. are his vital signs all stable?
Also make it clear to the staff that you would like to be informed of any deterioration sooner rather than later.

Badgerbadgermushroomsnake · 04/08/2024 07:19

I just wanted to thank everyone for their helpful advice, which I did read but didn’t have time to respond to.

He did indeed pass away, despite hospital staff declaring him fit and able all along and wanting him out of the bed.

We are confused but grateful that we were with him when he passed and it was as peaceful as possible.

OP posts:
renomeno · 04/08/2024 07:32

So sorry for you loss Flowers

DullFanFiction · 04/08/2024 10:26

I’m sorry @Badgerbadgermushroomsnake 💐💐

New posts on this thread. Refresh page