Stage 4 cancer... ? incurable? Thread #2 is here. In memory of our inspiring, lovely mowly77

[Tilllly]

New thread
All welcome, reluctantly

That's kind of what I was wondering. Maybe I'll take DH with me tomorrow and see what he thinks.

Hello all! Sorry if I offended anyone by suggesting Facebook! I didn't mean to upset anyone.

I spoke to my oncologist on Friday and
He also said he was very happy with my response to the treatment so that is brilliant. He said he hoped I stayed tumour free as he's had some patients on the same trial as me and they're still clear 10 years later

In other news we've been accepted to foster, in a previous life I worked on nicu and would always have the babies withdrawing from drugs to look after. These are the babies we've been accepted to foster so I went shopping for a cot, car seat and bits and bobs today

I'm 32 and we were in the middle of trying for a baby when I found the lump so this is a dream come true.

@ShalommJackie That's two lovely pieces of news, so good to hear. Fingers crossed you stay tumour free, and I hope that fostering is rewarding and wonderful for you.

I wasn't at all offended at your Facebook suggestion, and while I can't speak for others I didn't get the impression that anyone else was either x

Nobody was offended @ShalommJackie xx

And what wonderful news on our saddest of threads.

@ShalommJackie What lovely news. Congratulations.

I wasn't offended in any way by the Facebook suggestion.

@ShalommJackie Congratulations! Wonderful news xx

Thank you! I really do feel so blessed.

How is everyone today?
I’ve just finished a first stage of the Camino de Santiago with friends, and my feet are killing me!
Enjoying this health just now as Ca125 over 800, and whilst I don’t have many symptoms- I suspect the ovarian type cancer has spread to my bowel.
CT next month to find out. Joy.

That's amazing! A friend of mine did this a few years ago and it looked incredible

It is incredible- strange to spend so much time walking through countryside. I don’t live in a big city, can easily get to the country, but I’ve never spent this much time in the sun, the trees, the hills. Hopefully it’s going to work like radiotherapy and zap everything inside. Xx

@RedRosesPinkLilies well done for even starting and walking that far! I tell you, its important for all of us to cram as much as we can jnto periods of good health because boy when thr bottom drops out you just have no idea how long, how far, or how deep it goes.

How much of the trail are you walking? Hopefully it gives some of the peace and introspection needed!

Still in hospital, still popping off fevers. Not sure if I'm ever gonna get out of here at this rate.

Must admit I am envious of those of you doing interesting stuff. Apart from this stooopid fever and a few tummy pains I'm relatively ok but all I want to do is wallow in bed. Think I just feel overwhelmed by everything and just want to hide

DS is going back to uni today and I have set myself the goal of taking him for lunch before he gets his train. Just feel like I have let both boys down over the past month. They deserve better than a mum lying in bed all day watching crap TV.

@TwigTheWonderKid I had a relatively 'normal' weekend by our standards, but I am paying for it now. The lymph node in my left armpit has swollen up again, I've got a weird lump on my back that travels about, and my lower back hurts shed loads.
My body is moaning because I walked about more than usual. I'll rest today and try something tomorrow.

In bed today and drifting in and out of sleep.

@HerbalRefreshmentt have they identified your infection?

@RedRosesPinkLilies As I was stumbling through my Spanish duo lingo the phrase ' me duelen los pies' came up and I thought of you! (Pies =👣)
what route are you doing? I spent 3 weeks in Northern Spain last summer, los Picos de Europa are heaven on earth. I certainly found it curative of spirit and sustaining of body.
@HerbalRefreshmentt My husband and I have the mind set 'let's not put things off and do them while we can' since my diagnosis, we are whittling through my sons inheritance, making memories ( hate that phrase! but it is what it is, hate that phrase too!). I told my oncologist that our plans were to do as much as possible and how it was effecting what we would be able to leave our son.Don't worry about leaving money it the memories he will cherish. He's right although easier for my comfortably well off oncologist to say😅

• don't worry about leaving money. FFS I edit posts and still get thing's wrong🙄

@RedRosesPinkLilies I think it is amazing you walked so far. I decided to walk to the hospital yesterday to have my PICC flushed. Took me about 30 mins and I was knackered for the rest of the day.

@HerbalRefreshmentt I'm sorry you are still in hospital. Do they know what is causing you to have a fever? Sorry if you have already said.

@TwigTheWonderKid sometimes wallowing in bed is what we need but I hope you feel better today and I hope you had a lovely lunch with your son.

@WrenNatsworthy sorry you are feeling poorly. I hope you feel better after a good rest.

@Florsilvestredelcampo I agree with your Oncologist but like you say it's easy for your wealthy Oncologist to say.
I won't have much to leave behind unfortunately and my children know this.
Once my ill health retirement comes through I'll have a bit of money that I'll have to use to live off and maybe a bit to spare.
Mind you that's all dependent on me still being alive as they certainly don't rush themselves to sort it out.

I try to do as much as I can while I can but the chemotherapy does hold me back somewhat.
I really look forward to my week off as that is usually when I feel at my best.
This is my week off but I've come down with a bit of cold that has made me feel a bit shit but hopefully it will be gone before my party on Saturday.
I'm also hoping to get the train today to a town not to far away where I can walk my dogs along the pretty seafront walk.
I live near the sea anyway but sometimes it's nice just to have a change of scenery.

They think the source may be a pocket of infection in my hip but need thr MRI imaging to be sure and then I may be stuck on a really long course of antibiotics in hospital or surgery. I hope they figure it out this week!

Edit, between you ladies and the nurses, coming up with all sorts of holiday ideas once I am out of here, capable of walking, and have some strength back!

Hi, can’t remember everyone to tag them. We are doing approximately 100km from Ourense to Santiago. The Via de Plata I think my friends have booked it because of the cancer. Getting luggage transferred etc.
Lucky with the weather so far.
Yes, absolutely need to do as much as we can whilst we can.

Sorry - was trying to add a few pics and can’t will try later. About to walk again xx

Lovely to hear about those making the most of (relatively) good health while they are able. I have a trip to Australia booked for me and my daughter in August, and a CT scan tomorrow which will give me some idea about whether I'll be going ahead or cancelling. I have to wait nearly 3 weeks for the results though, that's going to be hard.

I did enjoy our 2 weeks in Scotland recently, but kept comparing what I can manage now (very limited) compared to the past (long walks, hill climbs etc). Keeping positive in the face of such real evidence of the impact cancer has had on me was really challenging at times.

@SewingBees really hope your scan allows you to go on your holiday but are you not nervous of being so far away from home? I feel like everything is so precarious I'm terrified of something going when I'm away and being stuck in a hospital far away from home. I guess I'm just a massive coward.

@TwigTheWonderKid You're not a coward!

I'm a little nervous. But I have a very good friend in Sydney who lives close to where we'll be staying for the first week. And I used to live there so know it well. The second week's plans are cairns and Darwin, with lots of excursions booked. If those seem out of reach nearer the time then I'll switch to 2 weeks in Sydney

To be honest though, I'm so excited to see it all again and show my daughter I'll just up my game and make it happen. I'm extremely determined and stubborn when I need to be.