Stage 4 cancer... ? incurable? Thread #2 is here. In memory of our inspiring, lovely mowly77

[Tilllly]

New thread
All welcome, reluctantly

Yep, green paper towels cure all @Florsilvestredelcampo !

@TwigTheWonderKid shall I bake a loaf of bread with a file in it?

@balkanscot where are you?

Has anyone heard from @Tilllly ? She's gone very quiet and I'm rather worried.

@WrenNatsworthy Hunkering down, waiting for the CT scan results next week (had the scan on Monday). Going delirious with scanxiety. Had 4th dose of nab Paclitaxel on Tuesday, currently in the throes of constipation, necking Dioctyl.

Another gem from my MIL: apparently if you freeze bread and then defrost it, it “kills off” some of the calories. I was tempted to whack her over the head with a frozen loaf. What utter bollocks, and as if I care about calories living with stage IV! I couldn’t give a flying toss about any kind of calories, protein, fat, sugar. Yesterday she split one slice of brown sugar tart into 4. And I spent the whole evening trying to locate a newly bought packet of biscuits in the larder (staying with the in laws - had I been at my own place that would never happen), without success. I was like a demon possessed and felt murderous to the extreme at my failure to locate them.

Gin, rum, and all the sugar and fat to you all!

Yeah what is it with cold bendy NHS toast? I guess they have better toasters with private as mine was at least crisp as that was all I could manage to eat. They took away my pain pills and everything and then put it all on request like ARE YOU PEOPLE INSANE. So I had to request paracetemol and 10mg oxy at a time all night long (I was on 20mg oxy break thru 3 times a da). It sucked a LOT. 'Oh just tell us every two hours if you need it. Bullshit, by thr time I ring and its dispensed we are way past two hours, more if you fell asleep. So then you start falling behind on painkiller levels in thr bloodstream.

I finally broke down in pain some point around breakfast and told them give me some goddamn ibuprofen already, paracetemol does not much for me. Course I had a high fever and heart rate when they did obs, like no fucking shit!

My normal consultant is awol and I've got some coverage team now that I don't think they know what to do either.

This video helped me so much on Tuesday when I thought I'd be constipated forever and die on the toilet like Elvis.

Sorry your MIL is assuming that as calories are so important to her that they would be to you. Uber Eats?

Where are you our @Tilllly ?
And all the other nice AWOL posters.

👋🏻
Quick check in
Admitted to hosp earlier in week, SATs at 80%, just couldn't breathe
I've been transferred to the hospice today, still on oxygen
They had me on antibiotics but think now it's lymphangitic carcinomatosis which is a bleak outcome
Just want to be able to breathe, it's terrifying

Oh bloody hell our @Tilllly , cancer really is the gift that keeps on giving.

So sorry this is happening to you. I hope everyone in the hospice is treating you like the princess you are.

I’m sorry - that sounds truly crap. They have the knowledge to relieve your symptoms. Every symptom ask for help, this includes the terror. Lots and lots of love xx

They are letting me go home!

I suspect they've just given up trying to work out what's going on with me but I don't care.

Oh @Tilllly it sounds beyond horrific. Have been thinking and thinking about you and so sorry it's like this, if only we could help. I hope they will find some way to get you more comfortable.

@Tilllly I hope you're being treated incredibly by the hospice staff! Gentle hugs and love xx

@Tilllly probably on the best place to get things under control and watched effectively. I hope its a lovely space with no shout neighbours!

Fed up over this push pull pain management bs going on, and im pretty certain thr nurse just gave me two doses slow release oxy instead of one being pregabalin. My paracetemol seems to have gone missing too, though I did have a sanity breakdown about 830. Now I'm running a fever and a high heart rate again. Gee kids you think there is a correlation?! Just want to go home and manage my own pills and pain in my own system, damnit.

@Tilllly So sorry to hear things are so bad for you x

I'm on my last night of holiday. It has been a blast travelling round Scotland for the past fortnight, revisiting some old haunts and discovering some new. Emotionally hard though, knowing this is likely the last time I'll visit - even if I make it another few years there are other places on my bucket list.

I am sooooo looking forward to being back in my own bed. My back has been twingeing and every time I think it's the cancer on the move or growing. I'm due a CT scan in a week or so, then I'll find out if the Ribociclib is working for me. I've also been getting some joint pain - in my feet mostly - probably the Denosumab or the Zoladex - but it has been affecting how far I can walk. I've had to borrow wheelchairs to get around some museums and that has been interesting. People want to be so helpful, which is lovely, but also a touch condescending. And just because I'm in a wheelchair doesn't mean I've lost my hearing or brain or common sense. I did like being at eye level with my daughter though and she loved pushing me fast when she could.

@Tilllly as others have said I hope the staff are treating you like the princess you truly are. I'm sending you love and keeping you in my thoughts today x

@Tilllly I'm mainly on the other thread, but have been thinking of you also, these past few days and hope you are comfortable 🌺

@Tilllly
Thinking of you and sending strength 💐

@Tilllly I am sendĺng you breath via carrier pigeons and wind. I am joining in with hoping hospice are treating you like royalty. Much love. 💐🌬

@Tilllly Sending you gentle hugs.

@Tilllly hoping the hospice team have made you more comfortable. Sending love and keeping you in my prayers Xxx

Sending love to you Tilllly from Floof and I. This is Floof concerned he's eaten all the prawns from the fajitas and there's none left.

Maybe we could post some nice floof pictures for @Tilllly to look at. Hope daisy is with you!

This is my newest floof. She's a bit smaller than we anticipated!

Best wishes @Tilllly that you are comfortable finally and have a great place in the warm sun, free from the tyranny of hospital toast. I don't have any good floofy fotos to share of my two, but it looks like some of the ladies got uou well started.

@TwigTheWonderKid my crp numbers keep going down then back up with each new antibiotic. I also complained yesterday about just not feeling well, which I didn't, so either they kick me out tomorrow since they can't tell what this is OR I'm stuck here forever and ever. I keep mentioning my hip hoping maybe a light bulb will go on and help connect the two but no luck yet.

Sending you a huge hug, Princess @Tilllly. I hope you're comfortable. Thinking of you a lot.