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Life-limiting illness

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I don't know what I need?

57 replies

KindaDefinitelyMaybe · 18/10/2023 09:02

This is so rambling but I hope it makes sense and I hope it resonates with someone else out there. DM is end of life. She's in kidney failure. She's in a home but supposed to be moved to a hospice today. She's just fallen out of bed and now going back to hospital despite asking for no further hospital admissions. She's 68. Stage four ovarian cancer which has spread everywhere (top tip: the perineum and peritoneum are two very different areas on the body! Learned this when asking the Dr something last week). I live 300 miles away but am up here now as I was told it was a matter of days. That was a week ago. I'm still trying to work. I miss my kids. My DB is being absolutely useless. I am laid in my old childhood single bed because there's nowhere else to 'be' in her house (sofa was removed to get a bed in the living room). And it's too much. It's just all too much and I can't cope. But if I tell people I'm not coping, I'll get hollow words of sympathy and messages of 'hugs' and 'you're in my thoughts' and I can't handle them. All her friends have been to see her to say goodbye, it's all been very sad and emotional but.....she's still here! And now I'm getting daily messages asking how she is, any changes, any updates. I feel like a one women repository that people keep taking from. And in the middle of all this is my Mum. Mostly asleep, mostly pain free, hanging on for dear life as her body fails around her. And I need something, but I have no idea what.

OP posts:
KindaDefinitelyMaybe · 15/11/2023 14:19

I just feel so so so sad. The outpouring of emotions I've had from her friends just shows how loved she was but every message I read sets me off again. It's doubly emotional because (and this is totally going to 'out' me) it's my birthday today. And somehow I feel there's a cosmic link or connection to her leaving this world on the same date I came into it. I've come home now (to my Mums) and I'm exhausted, so I'm going to have a hot bath, a glass of wine, order a domino's then sleep for the rest of the afternoon.

OP posts:
WhenRobinsAreNear · 15/11/2023 14:24

@KindaDefinitelyMaybe i am so sorry today is your birthday 😞 I'm sure if she could have held on she would but you could also look at it like this. Maybe she picked a day that meant the most to her? Because she had you ❤️
Let yourself feel all of the emotions and yes you are allowed to feel relieved so if that one comes up do not feel bad, you've don't the best for your mum always, you couldn't have done more. Your plan for this evening sounds fantatsic 💐 enjoy it xxx

vipersnest1 · 15/11/2023 20:26

@KindaDefinitelyMaybe, it will take time to sink in - and can feel quite surreal at times.
Treat yourself gently.

Ilikewinter · 16/11/2023 18:03

Oh im so sorry OP. Im in a similar situation but a few steps behind you. Mums on EOL care, is at home in a hospital bed and 2 carers 4 x daily, sleeps all the time. I live 80 miles away so up at the weekends but mum cant / doesnt want to talk on the phone in the week.
Nothing anyone can say or do makes anything better does it 😥

LaviniasBigBloomers · 16/11/2023 19:38

oh I am so sorry @KindaDefinitelyMaybe, but glad you were there at the end and the end was peaceful. God bless you.

WinterCarlisle · 16/11/2023 20:04

Sending you a load of love @KindaDefinitelyMaybe. I’m so glad you got to be there x

cheezncrackers · 17/11/2023 10:03

Flowers and my sincere condolences @KindaDefinitelyMaybe

I'm glad you got there in time to say goodbye.

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